The University of Pennsylvania Frontotemporal Degeneration Center
Philadelphia, PA
Joined March 2014
- Tweets857
- Following212
- Followers1K
- Likes430
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
We understand that care management can be tough. This October, we are sharing tips to consider when starting or resuming a routine.
📍Check out our website for more information on Support & Resources
The Penn FTD Center joined @AFTDHope for the Walk for FTD yesterday in the Philadelphia area to provide resources and information to attendees!
📍 Check out our Support & Resources tab
📷 Read our monthly blog
📱 Follow us on all social platforms
In honor of FTD Awareness Week 2026, we are putting care partners in the spotlight. From our Co-Director Lauren Massimo, PhD, CRNP, FAAN, we want recognize the support and hard work of all care partners. #spotlightFTD #endFTD
In honor of FTD Awareness Week 2026, we are putting researchers in the spotlight. From our Co-Director Corey McMillan, PhD, we want thank those who dedicate their careers to studying FTD. #spotlightFTD #endFTD
Visit our website to get more information on FTD Awareness Week!
In honor of FTD Awareness Week 2026, we are putting research participants in the spotlight! From the Research Staff at the Penn FTD Center, we thank all research participants for your willingness and dedication to FTD research. #spotlightFTD #endFTD
In honor of FTD Awareness Week 2026, we are putting clinical research staff in the spotlight! From our Assistant Director and Clinical Research Program and Operations Lead, Dahlia Kamel, MS, we want to thank all staff that work in the field of FTD research. #spotlightFTD #endFTD
Penn FTD Center retweeted
World FTD Awareness Week begins today.
From Sept 28 - Oct 4, people around the world are putting a Spotlight on FTD to raise awareness of frontotemporal degeneration and recognize the people impacted by it.
ftdregistry.org/press/spotli…
#spotlightFTD #endFTD #WorldFTDAwarenessWeek
In honor of FTD Awareness Week, we are putting patients in the spotlight. From our Co-Director David Irwin, MD, we want to acknowledge the determination and perseverance of patients and the inspiration you bring to providers to bring all closer to a cure. #spotlightFTD #endFTD
Penn FTD Center retweeted
Today begins World FTD Awareness Week. 🧠💛
This week is deeply personal to me.
And organizations including @AFTD, @CureGRN, and the @PennFTDCenter are helping connect families, advance research, and turn greater awareness into action.
🔗 Resources: theaftd.org/
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
Penn and Miami researchers launch study to detect ALS and frontotemporal dementia before symptoms appear with $26 million NIH grant.
Read more about the work from Co-Director Corey McMillan, PhD in the article below!
pennmedicine.org/news/penn-a…
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📰 Are you subscribed to the Penn FTD Center newsletter?
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
Penn FTDC's Dahlia Kamel, MS collaborated on a paper to explore Clinical Research Coordinator's influence on the research participant experience, including training adequacy, job satisfaction, retention, and much more.
Read the paper below!
frontiersin.org/journals/neu…
In bvFTD, we found that the spatial relationship between neurodegeneration and a neurotransmitter receptor was associated with disease severity and cognition.
Read the paper from Penn FTDC's Melanie Matyi, PhD below!
direct.mit.edu/imag/article/…
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
Caregivers are invited to join us for Caregivers Day at ISFTD 2026 on Friday, October 9 in Philadelphia. This one-day conference features expert-led sessions on FTD care, the latest research advances, symptom management, advocacy, and more.
Register now at the link in our bio!
Penn FTD Center Staff Highlight 🌟
Mary Kate Merenich, B.S. is a Clinical Research Coordinator at the Penn FTD Center. “As a CRC, I really enjoy the breadth of responsibility I have across the entire research process.”
📍Read details on Mary Kate in our blog! Link in bio!
