PANS PANDAS awareness advocate after my daughter has suffered horrifically for over a decade. Catch up NHS it’s not rare, just rarely diagnosed 💔
Berkswell, England
Joined August 2011
- Tweets8.2K
- Following502
- Followers529
- Likes14.1K
Pinned Tweet
PANS PANDAS Awareness Day 20. This is Tillie. Tillie has PANS, this is her voice describing how hard it is to live with & how necessary awareness is. #hellomynameis #Iamjustamum #PANS #PANDAS #ocd #emotionallability #NHS #BeMyVoice #anxiety #CAMHS #Neurology #APPG #Psychiatry
Emily Jackson retweeted
#panspandashour the horror of PP means I’ve barely seen or spoken to my Son now for 5 years when he was 9. He lives with his Mom and won’t leave the house or be seen. My only way to communicate is letters, cards & photos. He never replies. Here is today’s card. Please retweet to spread awareness. I love you mate ❤️
Emily Jackson retweeted
I am appalled by the recent AAP report onPANS. While it is a step forward that AAP is recognizing PANDAS/PANS, they have left out CRITICAL RESEARCH MILESTONES from many labs including mine who have advanced our understanding of the disease. Shame on them! linkedin.com/posts/dritan-ag…
Emily Jackson retweeted
It’s so sad that it’s come to this, but we deserve so much better and it’s time we started challenging those at the top to do better!
#HerGameToo
And on my birthday too … @Jackosleepsalot
“This is it, this is happening”
Tickets on sale this Saturday 31st August (🇮🇪8AM IST / 🇬🇧9AM BST)
Dates:
Cardiff Principality Stadium - 4th/5th July
Manchester Heaton Park - 11th/12th/19th/20th July
London Wembley Stadium - 25th/26th July & 2nd/3rd August
Edinburgh Scottish Gas Murrayfield Stadium - 8th/9th August
Dublin Croke Park - 16th/17th August
Emily Jackson retweeted
A history-making career comes to a close.
Max Whitlock scores 15.200 on the pommel horse, but just misses out on a place on the podium, finishing in fourth.
#Paris2024
ALT Photo of Max Whitlock after his last ever pommel horse routine at Paris 2024.
Emily Jackson retweeted
2/2 Want a more in-depth look at the #science behind the microbe and #mentalhealth connection? Check out this new paper published in the journal Healthcare by Dr. Bransfield, @md_rosalie and Dr. Charlotte Mao. #LymeDisease mdpi.com/2227-9032/12/1/83
Emily Jackson retweeted
1/2 Many #LymeDisease patients are told their symptoms are “all in their head” before getting diagnosed. A panel — led by psychiatrists Dr. Robert Bransfield & @md_rosalie — explores complex connections between #mentalhealth and microbes. Watch Part 1: youtube.com/watch?v=fPpS7cOD…
Emily Jackson retweeted
#Lyme and #COVID share much. Here, Dr. Robert Bransfield, published Lyme expert & treating psychiatrist, tells how. Sounds all-too familiar. Been there?
@StevePhillipsMD @Lymenews @BayAreaLyme @LymeLightFNDN @LymeAlliance
Emily Jackson retweeted
For any medics following my account. If you are working with kids you need to read this. You need to believe parents and you need to treat these kids early to avoid long term complications and a whole world of pain for the child and the family. #pandas #pans
My Sons story published by @thetimes today. Thx to @louise_eccles and @PandasPans for making this happen. Awareness & early intervention are critical, PLS SHARE❤️
‘Let me die’: the mysterious syndrome changing children overnight
thetimes.co.uk/article/d2c07…
Emily Jackson retweeted
Good piece by the Times on the struggle of sufferers and those who care for them to get this terrible condition recognised.
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Emily Jackson retweeted
Shining a light on this horrific condition that has brought our family to its knees. More research, education for doctors, & treatment is crucial to save lives #PANDAS #PANS @panspandasuk @MedTweetMYHQ @NHSEngland @MorecambeBayNHS @simonfell
“She was clawing at her mum and screaming, ‘Make it stop.’”
Doctors are uniting to find a cure for Pandas, a disorder that arrives ‘like the flick of a switch’ and torments children as young as three ⬇️ thetimes.co.uk/article/he-sc…
Emily Jackson retweeted
Watching your previously happy, confident child change after a #Strep infection is 💔😢. Seeing them struggle with painful motor & vocal tics & other debilitating symptoms.
This is our 2nd time with a 4 year gap in onset - still the lack of awareness is shocking #PansPandasHour
Emily Jackson retweeted
STRICTLY SIGHTINGS ONLY - DO NOT CALL, CHASE, GRAB OR ATTEMPT TO CATCH - MISSING IN AN UNFAMILIAR AREA
#RUTH IS #MISSING FROM THE #IBISSTYLES, #BIRMINGHAM NEC AND AIRPORT, MARSTON GREEN, BIRMINGHAM #B40 AREA, SINCE SUNDAY, 10TH MARCH 2024.
facebook.com/groups/68634588…
Emily Jackson retweeted
This is in 2day’s @DailyMailUK #Pans #Pandas needs 2 be common knowledge - brain inflammation after a Virus &/or infection especially after #Covid
Pls can this be discussed further on @thismorning @timubhi @dollyjoyner?
It would help so many 🙏🏻💚 Abx to be trialled 1st
