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RARE Science

@RARE_Science

We are a nonprofit research organization accelerating therapeutic solutions for patients and fostering research collaboration in the rare disease community.

 San Diego, CA
Rarescience.org
Joined March 2014
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  • Followers1.3K
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Photo by RARE Science (@RARE_Science)Photo by RARE Science (@RARE_Science)Photo by RARE Science (@RARE_Science)Photo by RARE Science (@RARE_Science)Photo by RARE Science (@RARE_Science)Photo by RARE Science (@RARE_Science)Photo by RARE Science (@RARE_Science)Photo by RARE Science (@RARE_Science)Photo by RARE Science (@RARE_Science)Photo by RARE Science (@RARE_Science)
Thanks to our friends @RARE_Science for donating #RAREBears to 13 children who received free clinical whole genome sequencing from RGI!
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Check out ehlers-danlos.com for more info #DazzleTogether
Image from The Ehlers-Danlos Society (@TheEDSociety)
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But you don't look sick! Check out ehlers-danlos.com for more information. #DazzleTogether
Image from The Ehlers-Danlos Society (@TheEDSociety)
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Ehlers-Danlos patients often have GI comorbidities Learn more at bit.ly/2qQiQ2q #DazzleTogether
Image from The Ehlers-Danlos Society (@TheEDSociety)
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Check out ehlers-danlos.com for more info #DazzleTogether
Image from The Ehlers-Danlos Society (@TheEDSociety)
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Why do hypermobility spectrum disorders affect people differently? Check out ehlers-danlos.com for more information. #DazzleTogether
Image from The Ehlers-Danlos Society (@TheEDSociety)
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If many forms of EDS are collagen disorders, can we take collagen supplements? Go to ehlers-danlos.com for more info. #DazzleTogether
Image from The Ehlers-Danlos Society (@TheEDSociety)
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What is Vascular Ehlers-Danlos Syndrome? Check out ehlers-danlos.com for more information. #DazzleTogether
Image from The Ehlers-Danlos Society (@TheEDSociety)
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What are the Hypermobile Spectrum Disorders? Check out ehlers-danlos.com for more information! #DazzleTogether
Image from The Ehlers-Danlos Society (@TheEDSociety)
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What are the Ehlers-Danlos syndromes? Check out ehlers-danlos.com for more information! #DazzleTogether
Image from The Ehlers-Danlos Society (@TheEDSociety)
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If we could lower barrier to access to data we could make a real difference to #rare #diseases - Christina Water at #BioDataWest
Image from Repositive.io (@repositiveio)
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#biodatawest @RARE_Science can help gather info by combining similar diseases - they even have an app that collects info from patients
Image from Manuel Corpas (@manuelcorpas)
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#biodatawest @RARE_Science - giving hope to patients
Image from Manuel Corpas (@manuelcorpas)
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RARE Science retweeted
Athena (@AthenaSTEMWomen) profile picture
Athena@AthenaSTEMWomen13 Apr 2017
Replying to @BioLabsSD
@BioLabsSD @CanaleComm @DLA_Piper @ESET @EveryoneCounts @illumina @KPMG_US @MiraCosta @Mitchell_Intl @Oracle @RARE_Science
Image from Athena (@AthenaSTEMWomen)
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RARE Science retweeted
Illumina (@illumina) profile picture
Illumina
@illumina4 Mar 2017
#FF Thank you #raredisease advocates: @raregenomics @rare_science @sdspecialneeds @VOC_foundation (3/3)
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Learn how #StemCells are working to help 30 Million Americans fight #RareDiseases. #RareDiseaseDay #careaboutrare https://teapawt.net/t.co/4WaMsVHYj2 – at Oakland, CA
Rare Disease Day is February 28

ALT Rare Disease Day is February 28

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RARE Science retweeted
Paul Ryan (@SpeakerRyan) profile picture
Paul Ryan
@SpeakerRyan30 Nov 2016
BREAKING → The House just passed the 21st Century #CuresAct!
Image from Paul Ryan (@SpeakerRyan)
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#InfantileSpasms Awareness Week is Set For December 1-7. Read about it here: prnewswire.com/news-releases… #ISAW2016 @Child_Neurology @tsalliance
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Just Released: NORD's full analysis on updated version of #CuresNow that the House will vote on tomorrow. Read here: bit.ly/2gSwaOJ
Image from National Organization for Rare Disorders (NORD) (@RareDiseases)
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There are now less than 100 days to go before Rare Disease Day 2017! What are your plans for the day? rarediseaseday.org/article/1…
Image from Rare Disease Day (@rarediseaseday)
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