Evie's Journey (@Rachellevy92) header
Evie's Journey (@Rachellevy92) profile picture

Evie's Journey

@Rachellevy92

The journey of a beautiful 2 year old girl battling an extremely rare progressive disorder Infantile Neuroaxonal Dystrophy (INAD)

youcaring.com/family-fundraiser/evies-journey-inad/294544
Joined December 2014
  • Tweets31
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  • Followers68
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Photo by Evie's Journey (@Rachellevy92)Photo by Evie's Journey (@Rachellevy92)Photo by Evie's Journey (@Rachellevy92)Photo by Evie's Journey (@Rachellevy92)Photo by Evie's Journey (@Rachellevy92)Photo by Evie's Journey (@Rachellevy92)
Excited for Evie's Family disco tomorrow, hope to see lots of smiling happy faces 😁 #INAD #Eviesjourney #RareDisease
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youtu.be/GxUQ18VcUQ0 #Eviesjourney #RareDiseaseDay2015 #RareDisease #INAD
Help us fight INAD!

Help us fight INAD!

Please help us to raise enough funds to support vital research into...

youtube.com
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Mary's post about our meeting with the INAD researcher a-grace-filled-journey.blogs…
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Evie hanging out in her new, fully supportive car seat #Eviesjourney #RareDisease #INAD
Image from Evie's Journey (@Rachellevy92)
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We have a doctor prepared to research INAD - now we need funding! ❤️ youcaring.com/family-fundrai… #RareDiseaseDay2015 #INAD #Eviesjourney
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Amazed at people's generosity, we raised £5k at Evie's pub night ❤ #THANKYOU #INAD #RareDisease #eviesjourney
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Charity Karaoke Night on 6 February at 19:00 echo-news.co.uk/events/Basil…
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Kisses for her kitty ❤️ Beautiful kitty 4 a beautiful girl #eviesjourney #RareDisease #INAD #Bengal #BestBuds #kitten
Image from Evie's Journey (@Rachellevy92)
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Excited for Evie's karaoke night at Noak Bridge pub, 7pm Friday. Some great raffle prizes and karaoke, see you there #eviesjourney #INAD
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Evie's Journey retweeted
Keely Bacon (@Keelybacon) profile picture
Keely Bacon@Keelybacon21 Jan 2015
Replying to @Schofe
@Schofe rare and Incurable please follow @Rachellevy92 Please share youcaring.com/family-fundrai… xx
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Evie's Journey retweeted
Keely Bacon (@Keelybacon) profile picture
Keely Bacon@Keelybacon21 Jan 2015
Replying to @ThisisDavina
@ThisisDavina please can you follow @Rachellevy92 to raise awareness for my niece x
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Evie's Journey retweeted
Keely Bacon (@Keelybacon) profile picture
Keely Bacon@Keelybacon22 Jan 2015
Replying to @Rachellevy92
“@Rachellevy92: 💗 facebook.com/eviesjourneyx http://t.co/aoE1u8khkV” please follow

Evie's Journey

Evie's Journey. 2,239 followers. In November 2014 my daughter Evie was diagnosed with Infantile Neuroaxonal Dystrophy (INAD) this page is to share her journey and raise awareness.

facebook.com
Image from Keely Bacon (@Keelybacon)
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We recently purchased the Playpak from you. I would just like to say how brilliant this is and how much it... fb.me/1xmhuElsi
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Thank you @MissAmyChilds for donating items of clothing for our raffle in aid of Evie-Mae facebook.com/eviesjourneyx 💗💗
Image from Evie's Journey (@Rachellevy92)
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Evie's pre-school have kindly arranged a fundraising night for Evie! See details below. Spread the word #INAD
Image from Evie's Journey (@Rachellevy92)
💗 facebook.com/eviesjourneyx
Image from Evie's Journey (@Rachellevy92)
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Please read Evie's story and share to help raise awareness facebook.com/eviesjourneyx
Image from Evie's Journey (@Rachellevy92)
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