Dedicated to finding cures for rare cancers. 🔬 We empower patients to donate tumor tissue to research through our platform, https://xitter.cf/t.co/UXGcc69Vea.🎗️ Consent today!
Joined February 2013
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It may be a #NewYear, but our resolution remains the same: through our fiercely patient-centric approach, we are still working tirelessly to create greatly needed research infrastructure to improve the outcomes and care for #RareCancer patients. 💚💙
ALT Graphic that reads, “Have you or a loved one been diagnosed with a rare cancer? Are you looking for resources or more information? We’re here for you. Send us a DM or email [email protected]
Collaboration finds cures.
rarecancer.org/donate-2024
Diversity in data is key to making progress in the development of vital #RareCancer treatments. Representation in research leads to better health outcomes for everyone! 🤝
Here at RCRF, we’re working to achieve better health equity for ALL rare cancer patients. Join us today.
According to our partner the Chondrosarcoma Foundation, only ~19% of rare cancer patients receive genomic sequencing. 🧬
Here at RCRF, we're working to change that. We believe that every #RareCancer patient should have access to this increasingly important information.
RCRF is fiercely patient-centric.
Tissue donated through Pattern.org has helped to create over 58 rare cancer research models and counting!
As Jane says, it’s a game changer. 🤝
Today is #GivingTuesday2024, and we hope you will consider us in your donation plans as we work to improve outcomes for #RareCancer patients.
Learn more and give today at the link in our bio! 💙💚
Visit pattern.org to learn more about our #RareCancer tissue donation initiative.
💚💙 You can make a difference!
Click for a special message from us. 🦃 Thank you for supporting #RareCancer research! 💙💚
We're proud to announce we've been selected as an @ARPA_H Investor Catalyst Hub spoke: connecting researchers, entrepreneurs, & investors to accelerate solutions for innovative biomedical solutions! Excited to bring our expertise in rare cancer research to investorcatalysthub.org/
Happening TODAY at 12pm CT: Live (free) webinar, "Innovations in Rare Cancers," - RCRF President, Dr. Marshall Thompson, will join the panel discussion to share his perspectives on the most pressing issues in rare caner research! Register to join:
eventbrite.com/e/innovations…
Rare Cancer Research Foundation + Pattern.org retweeted
📣 Mark your calendars for 4/10-4/11 for The EHE Foundation's 2025 EHE 360 Global Patient Conference. More details to follow soon!
#EHE360 #EHE #EHEfoundation #TheEHEfoundation #justlive #rarecancer #EHEcancer #sarcoma #empowerpatients
Check out this article featuring a few of our team members! Our own @kaydaustin explains how she turned her diagnosis into a mission to help people with #rarecancers.
“My whole clinical history was just sitting there, and nobody was learning from it.” New platforms empower patients to use their clinical data and tissue for cancer research. bit.ly/4ewBBwb @corrie_painter @RareCancerRF @kaydaustin
Several members of the RCRF team are quoted in this @CancerTodayMag feature on "Patients as Research Partners," which discusses patient-driven rare cancer research programs, such as our Pattern.org program & The Broad Institute's Count Me In:
bit.ly/3TPcUT6
Want to take control of your data? Join us today on #RareCancerDay to sign up to #DonateYourData to the first patient-powered data commons- a resource that will help researchers accelerate discovery for #rarecancers: rarecancer.org/donate-your-d…
Our Pattern Data Commons will allow patients to donate their data by consenting to have RCRF collect medical records & sequencing data through a secure online platform. Sign up to learn more & #DonateYourData: rarecancer.org/donate-your-d… 2/2
We announced today on #RareCancerDay that we’ll be launching the Pattern Data Commons - a patient-powered data repository that will help researchers accelerate discovery for #rarecancers…1/2
Why is our tumor tissue donation platform called Pattern.org? By looking through multiple rare tumor tissue samples (donated by patients), researchers can identify patterns, like changes in tumor DNA, that can spark ideas for new treatments. #WorldCancerResearchDay
