
President & CEO @Project_Sleep, Author of Wide Awake & Dreaming: A Memoir of #Narcolepsy, #MedX Scholar, #TEDx Speaker, @BrownUniversity @BCLaw Alum.
Los Angeles, CA
Joined January 2010
- Tweets12.6K
- Following5.1K
- Followers5.8K
- Likes13.1K
Julie Flygare retweeted
9月22日は世界ナルコレプシーの日。
World Narcolepsy Day
過眠症に対する社会的理解がもっと進みますように。
今年も動画を制作しました。
youtu.be/zeVNNRLwXvQ?si=SIIM…
#世界ナルコレプシーの日
#WND2026
Julie Flygare retweeted
ちなみにラスカー賞の柳沢先生から睡眠科学の未来に関するプレゼンで感謝されたのは私です😂 2019年から7年先の未来で世界初のオレキシン作動薬
.@Tatsu_Fujimoto thanked by Dr. Yanagisawa in his presentation on the future if sleep science! #worldsleep2019
Julie Flygare retweeted
Today in 🤯 science: A team led by @Sergiu_P_Pasca engineered mice to be missing a large swath of their brains. Next, they transplanted human brain organoids, which grew and filled in the void. They're still mice, but with a human-dominated cortex. nytimes.com/2026/09/16/scien…
Julie Flygare retweeted
Fast-forward to today - after a lot of time, advocacy, failure, chemistry - there's now a first narcolepsy drug that mimics the missing ingredient in narcolepsy, orexin, and many following behind. 🎁 link: nytimes.com/2026/09/09/scien…
Julie Flygare retweeted
A reflection on getting older: When I was starting out in journalism, I met @RemRunner. She was super self-possessed, high-achieving - and she had only recently been diagnosed with narcolepsy. I wrote a story about the idea (then kinda fanciful) of creating a targeted drug.
Julie Flygare retweeted
Huge news! @US_FDA approved #Takeda's ORZEYFUL (oveporexton) today, making it the first #orexin agonist approved for adults living w/ #narcolepsy type 1 in the US. The approval marks a significant advancement in neuroscience and #sleep medicine project-sleep.com/orzeyful-f…
Julie Flygare retweeted
🎸 Wow, JACK BLACK @jackblack is rocking #sleepapnea awareness by joining our #SleepApneaLetsFaceIt campaign today! Thank you, Jack Black for elevating our efforts to new heights! Learn more and join us in flipping the script on sleep apnea stigma: project-sleep.com/sleep-apne…
Julie Flygare retweeted
Replying to @RemRunner
Ooof. It’s like they mated hypersomnia and narcolepsy to make a Hollywood stigma baby.
WATCH: Day 2 of #AxiosHouse at SXSW is live! Tune in to hear conversations looking at the role of media in shaping society's approach to health and wellness.
xitter.cf/i/broadcasts/1MKgNgbBD…
Julie Flygare retweeted
Can inaccurate TV portrayals actually delay diagnosis? Our community’s story just hit national news. @FastCompany published a major piece on @NBC's portrayal of #narcolepsy in #Stumble: fastcompany.com/91446176/stu…
Julie Flygare retweeted
September 22, 2025, marks the 7th annual #WorldNarcolepsyDay, a day dedicated to raising awareness about narcolepsy on a global scale.
🏅 Today, we honor the incredible #narcolepsy community. Learn more: project-sleep.com/world-narc…
Julie Flygare retweeted
Happy #WorldNarcolepsyDay today 9/22! We are so grateful for an amazing community of people living with #narcolepsy, supporters, scientists, doctors, and industry partners—we can break down barriers together! Get involved: project-sleep.com/world-narc…
Julie Flygare retweeted
First Colbert, now Kimmel.
Last-minute settlements, secret side deals, multi-billion dollar mergers pending Donald Trump's approval.
Trump silencing free speech stifles our democracy. It sure looks like giant media companies are enabling his authoritarianism.
Julie Flygare retweeted
"He's so personable & it's just refreshing to see that there's a human that is willing to put others before himself & also understand that this isn't about party-line politics. It's about people."
@RobSandIA in Davenport last night. #IAgov qctimes.com/news/local/gover…
Julie Flygare retweeted
New study this week again confirms: permanent Standard Time—not permanent Daylight Saving Time—is best.

ALT Screenshot from article (linked below): > “The elimination of switching clocks twice is a great move, but if we’re going to really be making changes to optimize health and well-being, then a switch to permanent standard time is really what best aligns our internal clock with the world around us,” explained Anita Shelgikar, president of the American Academy of Sleep Medicine and a clinical professor of neurology at the University of Michigan. The academy has advocated for a switch to permanent standard time.
Julie Flygare retweeted
🎥 Tonight’s the night!
Join us at 6:30 PM EDT for a LIVE webcast on narcolepsy & IH—tailored for NPs & PAs in sleep, cardio, neuro & pulm.
🎓 Register FREE for #CME/#CE credit: cmeo.me/WC-111
#SleepMedicine #LiveCME #Narcolepsy @RemRunner
Julie Flygare retweeted
⚠️ Treating IH or narcolepsy?
Your therapy choice could impact CV risk.
Learn more at our LIVE webcast 8/20 @ 6:30 PM EDT
🎓 Earn FREE #CME/#CE: cmeo.me/WC-111
#SleepDisorders #AdvancedPractice @RemRunner


















