@RetinaAustralia

Retina Australia is dedicated to supporting people affected by inherited retinal diseases.

 Australia
retinaaustralia.com.au/
Joined July 2012
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  • Followers348
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Today is the last day of #RetinitisPigmentosaAwarenessMonth and also #RareDiseaseDay. Many people live with undiagnosed, misdiagnosed or misunderstood conditions. Today we recognise these experiences & advocate for improved healthcare, support & policies for the community.
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BIONIC EYE TRIAL RESULTS SHOW SUBSTANTIAL VISION IMPROVEMENTS OVER TWO AND A HALF YEARS Blind participants with retinitis pigmentosa able to locate doorways, avoid obstacles SEGMENT Filmed in Melbourne and Sydney | February 2025 Released on Retinitis Pigmentosa Awareness Month INTERVIEWED Professor James Fallon, Chief Technology Officer, Bionics Institute @BionicsInst & Head of the Medical Bionics Department, University of Melbourne @UniMelb Associate Professor Penelope Allen, Head of Bionic Eye Project & Principal Investigator, Centre for Eye Research Australia (CERA) @EyeResearchAus & Vitreoretinal Surgeon, The Royal Victorian Eye and Ear Hospital @EyeandEarHosp Dr Ash Attia @ash_ashattia Chief Executive Officer & Managing Director Bionic Vision Technologies Results of the first clinical trial of Australia’s ‘second generation’ bionic eye have demonstrated ‘substantial improvement’ in four participants’ functional vision, daily activities and quality of life over a period of more than two and a half years. Detailed outcomes from the trial, led by the Centre for Eye Research Australia, Bionics Institute, University of Melbourne and Royal Victorian Eye and Ear Hospital, were published in Ophthalmology Science. The findings add to interim results which showed that the second-generation bionic eye developed by Australian company Bionic Vision Technologies provided rapid improvements for four patients with blindness caused the genetic eye condition retinitis pigmentosa. Retinitis pigmentosa is an inherited retinal disease which affects about two million people worldwide and is one of the leading causes of vision loss in working-age people. The bionic eye comprises an electrode array, designed by the Bionics Institute and the Centre for Eye Research Australia, that is surgically implanted behind the eye. The electrode receives signals from a video camera mounted on glasses, which stimulate the patient’s retina. Credit: Retinitis pigmentosa fact sheet from Retina Australia @RetinaAustralia Australian Health Journal @AUHealthJournal Produced and published by AUDIENCED Get your interviews captured across Australia audienced.org/contact
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Meet Peter Vance, singer-songwriter living with #RetinitisPigmentosa. For #RPAwarenessMonth, he's been raising awareness through #RetinaAustralia’s Do It in The Dark campaign, spreading hope for a brighter future.! #RPawareness #RP #VisionLoss🎶✨youtube.com/watch?v=qB8tFOh0…
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28th February is Rare Disease Day. @Retina_Int is hosting a webinar on 21st Feb to discuss the impact on mental health. Register at [email protected]. #rarediseaseday2025 #rarediseaseday #irds #inheritedretinaldiseases #retinaaustralia
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It’s not too late to raise awareness for #RetinitisPigmentosa this February! Host a Do It in The Dark (DITD) event with #RetinaAustralia. Wear glasses simulating tunnel vision & raise funds for medical research. More info: lnkd.in/e3mEwWxb#RetinitisPi…
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#RetinitisPigmentosa (#RP) is a genetic eye condition that causes progressive #visionloss. It starts with night blindness, followed by tunnel vision, and eventually can affect central vision leading to blindness. Let’s raise awareness! retinaaustralia.com.au/help-… #RPawareness
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February is #RetinitisPigmentosa (RP) Awareness Month! Help raise awareness & funds for RP research: 1. Register for a Do It in The Dark event 2. Share your story & raise awareness 3. Donate to research More info: retinaaustralia.com.au/help-… #DoItInTheDark #RetinaAustralia
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Today is World Geographic Atrophy (GA) Day. Join the movement to raise awareness for this progressive form of age-related macular degeneration (AMD). Find out more at: tr.ee/SumJe8IJic #retinaaustralia #geographicatrophy #ga #worldgaday
Photo shows a woman and a man sitting next to each other, with the woman looking over at the man, and both of them with their hands together.

ALT Photo shows a woman and a man sitting next to each other, with the woman looking over at the man, and both of them with their hands together.

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The Summer 2024/25 edition of our bi-annual newsletter Retina Reporter is OUT NOW! Download it here: tr.ee/_a3nIIvEJf or SUBSCRIBE here: tr.ee/k6OeQqQORI #inheritedretinaldisease #retinaaustralia #retinitispigmentosa #geographicatrophy #generesearch #eyeresearch
Photo shows a close up of an eye, with the text Retina Reporter Retina Australia's Bi-Annual Newsletter Summer 2024/2025

ALT Photo shows a close up of an eye, with the text Retina Reporter Retina Australia's Bi-Annual Newsletter Summer 2024/2025

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Support life-changing research for people living with inherited retinal diseases by making a donation to our 2024 Christmas Appeal. Together, we CAN make a difference! Donate today at: tr.ee/Fwv6ibXrjz #retinaaustralia #inheritedretinaldisease #genetherapy #ChristmasAppeal
Photo shows a Christmas gift with the text 2024 Christmas Appeal. Give the gift of hope by funding life-changing research. Donate now

ALT Photo shows a Christmas gift with the text 2024 Christmas Appeal. Give the gift of hope by funding life-changing research. Donate now

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Retina Australia is delighted to announce the 2nd recipient of a $60,000 Research Grant for 2025 is Dr Jiang-Hui (Sloan) Wang from @EyeResearchAus, with his study advancing Usher Syndrome type 1B gene therapy. tr.ee/QziF-0ICmu #retinaaustralia #inheritedretinaldisease
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We are delighted to announce the first of two 2025 Research Grant recipients, Professor Robyn Jamieson. Robyn's project aims to develop gene replacement therapies for autosomal recessive (AR) IRDs where no treatments currently exist. More info here: tr.ee/QziF-0ICmu
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Representing the Steering Committee of The Inherited Retinal Disease Priority Setting Partnership, Retina Australia CEO Julia Hall and A/Prof Lauren Ayton from the University of Melbourne & CERA, at the @RANZCO Congress 2024. #inheritedretinaldisease #ranzco2024 #retinaaustralia
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Spreading the word about inherited retinal disease at the @RANZCO 2024 Congress in Adelaide. Great to connect & hear about research into IRDs and the increasing understanding and importance of genetics in diagnosis & treatment #ranzco2024 #inheritedretinaldisease #retinaaustralia
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Woman playing golf while wearing tunnel vision glasses

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ALT Presenter and panellists shown at bottom of picture with large projection of presenter at the top

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Great to be a part of Vision 2020 Australia's Parliamentary Friends Group for Eye Health and Vision Care Cocktail Function and Exhibition in Canberra - another terrific opportunity to raise awareness of IRDs. #inheritedretinaldisease #worldsightday #loveyoureyes #retinaaustralia
Four people standing in front of the Retina Australia banner

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Woman wearing tunnel vision glasses with her hands raised in the air

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Man wearing tunnel vision glasses kneeling about to play golf

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We are thrilled to share the Top 10 Research Priorities for Inherited Retinal Disease, from the perspective of individuals with lived experience, families, carers, and health professionals. Full report here: tr.ee/FXNiCxItbl #inheritedretinaldisease #retinaaustralia
Photo of people at launch event – from left: Associate Professor Anai Gonzalez-Cordero – Children’s Medical Research Institute (CMRI), Carly Iles – Vision 2020 Australia, Julia Hall – Retina Australia, Tim James MP, Professor Robyn Jamieson – CMRI; The Children’s Hospital; University of Sydney, Dr Eden Robertson – UNSW Medicine & Health; CMRI

ALT Photo of people at launch event – from left: Associate Professor Anai Gonzalez-Cordero – Children’s Medical Research Institute (CMRI), Carly Iles – Vision 2020 Australia, Julia Hall – Retina Australia, Tim James MP, Professor Robyn Jamieson – CMRI; The Children’s Hospital; University of Sydney, Dr Eden Robertson – UNSW Medicine & Health; CMRI

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Thank you @Vision2020Aus for inviting Retina Australia to its eye screening event at the Parliament of NSW. World Retina Day is this Sunday, 29th September. @richiewilliamson and @GeoffProvest100 tried our DITD puzzle challenge. More info: tr.ee/dECtHAvSCB #worldretinaday
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Woman wearing glasses working on a jigsaw puzzle

ALT Woman wearing glasses working on a jigsaw puzzle

Woman wearing glasses having completed jigsaw puzzle

ALT Woman wearing glasses having completed jigsaw puzzle

Two women wearing glasses having completed jigsaw puzzles

ALT Two women wearing glasses having completed jigsaw puzzles

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The Geographic Atrophy: We Can't Wait and See report was launched last week, and highlights the urgent need to address the impact of geographic atrophy (GA), one of the leading causes of loss of vision and blindness. Read more here: tr.ee/c6uawQNowE
Photo of 9 people: Dr Amanda Ruth - Director Corporate Affairs, Access & Policy, Apellis Australia, Ms Libby Croker MP, Dr Kathy Chapman - CEO of MDFA, Dr David Gillespie MP, Ms Meryl Swanson MP, Chris Edwards - Manager Government Relations & Advocacy, Vision Australia, Judy Hatswell - CEO of Sight For All, Julia Hall - CEO of Retina Australia, Carly Iles - CEO of Vision 2020 Australia

ALT Photo of 9 people: Dr Amanda Ruth - Director Corporate Affairs, Access & Policy, Apellis Australia, Ms Libby Croker MP, Dr Kathy Chapman - CEO of MDFA, Dr David Gillespie MP, Ms Meryl Swanson MP, Chris Edwards - Manager Government Relations & Advocacy, Vision Australia, Judy Hatswell - CEO of Sight For All, Julia Hall - CEO of Retina Australia, Carly Iles - CEO of Vision 2020 Australia

Cover picture with text Geographic Atrophy: We can't wait and see

ALT Cover picture with text Geographic Atrophy: We can't wait and see

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Retina Australia was delighted to engage with government, industry, health bodies, academia & advocacy groups at #PharmAus24 focusing on "Accelerating patient access to new medicines". Thanks to supporters of our awareness activities. #InheritedRetinalDisease
Photo shows 5 people standing behind a table covered with brochures

ALT Photo shows 5 people standing behind a table covered with brochures

Photo shows a man playing golf while wearing tunnel vision glasses

ALT Photo shows a man playing golf while wearing tunnel vision glasses

Photo shows a man playing golf while wearing a pair of tunnel vision glasses

ALT Photo shows a man playing golf while wearing a pair of tunnel vision glasses

Photo shows two women sitting at a table doing a jigsaw while wearing tunnel vision glasses

ALT Photo shows two women sitting at a table doing a jigsaw while wearing tunnel vision glasses

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Join our community as members of Retina Australia or renew your membership, to support people affected by #inheritedretinaldisease. Two new benefits to members with our Membership Partners Optometrist Warehouse and @ChemistWhouse and Good Citizens Eyewear tr.ee/TTv33oe8bE
Photo shows group of people pointing at viewer. Text reads Retina Australia Membership. Come join us! $100 gift card offer from Optometrist Warehouse. 15% discount from Good Citizens Eyewear

ALT Photo shows group of people pointing at viewer. Text reads Retina Australia Membership. Come join us! $100 gift card offer from Optometrist Warehouse. 15% discount from Good Citizens Eyewear

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