Ruth Martin

“When you find something you’re passionate about, it’s not hard to do. That’s my love for writing.” Emile Smith, who lives with Becker muscular dystrophy, blogs about the difference his writing makes to his life and wellbeing. bit.ly/3H7OlYX #MDUK

Our President @GabbyLogan would like you to nominate someone awesome from our community for one of her President’s Awards: the Alexander and Valerie Patrick Carer of the Year Award. Nominations close on Friday 5 November. Find out more and nominate here 👇 buff.ly/3aYf9N9

Limb girdle muscular dystrophy is a group of rare, genetically inherited neuromuscular conditions. Muscle weakness in #LGMD may cause changes in posture or in the appearance of the shoulder, back, and arm. Help us raise awareness 👇 buff.ly/3uksQPz #LGMDAwarenessDay

We want to say a huge thank you to everyone who attended our #MicroscopeBall last night at @LondonHiltonPL. It was a truly memorable night, and thanks to you, we have raised an incredible £328,000 that will help fund groundbreaking research into muscle-wasting conditions!

Our #CheerSquad have set up our MDUK cheer point ready to cheer on #TeamOrange! Join us! Location details on page 4: 👇 bit.ly/3z6B3Y6

Next up, we welcome Sam Allardyce to #BGCCharityDay. Sam is a firm favourite with the traders and good friends with Carmela @ChilleryWatson too! Thank you #BigSam for your support today. @BGCCharityDay

We are thrilled to share a video from our Vice President Sir Alex Ferguson to send his personal thanks to the traders at @BGCCharityDay. Sir Alex has been part of the day for a number of years and hopes to attend again in the future! 🧡 #BGCCharityDay #MusclesMatter

We are pleased to share that the first ever guidance on the standard of care for adults living with #Duchenne has been accepted for publication. Read about this and the work of the North Star network in a blog by Professor Ros Quinlivan >> bit.ly/3h9QBo9 #WDAD21 @rcmq37

Fantastic story about two brothers with #Duchenne who will be playing Boccia in the #Tokyo2020 @ParalympicsGB team. They'll also be joined by their parents who are both ramp assistants - read more below!👇

Tom and Charlotte, a husband and wife who live with life-limiting muscle-wasting conditions, have revealed the devastating ongoing impact the #Covid19 pandemic has had on their physical and mental health. We're calling on the government to act now >> bit.ly/3eDQ1NY

As society opens up post lockdown, more than a quarter of a million disabled adults and children across the U.K will still struggle to access #ChangingPlacesToilets when they're out and about. This simply isn't good enough. Take action today 👉 bit.ly/3wMmub7 #CPAD21

Yesterday, Fulcrum Therapeutics announced encouraging results from its ReDUX4 Phase II clinical trial of losmapimod in patients with facioscapulohumeral muscular dystrophy (FSHD). Read more on this news here >> musculardystrophyuk.org/news…