A @ResearchWales funded study on severe period pain education and management. Co-produced with public and professional partners. https://xitter.cf/t.co/hNePIpReov
Wales
Joined October 2023
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Severe Period Pain is Not Normal (SPPINN) Study retweeted
To participate or learn more, visit: cardiffunipsych.eu.qualtrics…. Participation and inquiries are confidential. Prize draws available! Know someone who might be interested? Please share widely!
Severe Period Pain is Not Normal (SPPINN) Study retweeted
We are proud to announce a total of £49m investment to boost Wales’ health and social care research capabilities, including the funding of 5 brand new centres.
Read the full announcement here: healthandcareresearchwales.o…
Severe Period Pain is Not Normal (SPPINN) Study retweeted
Fantastic to see the important @sppinnstudy from Dr Robyn Jackowich, funded by our Health Research Grant, on @BBCWalesNews
Our Interim Director, Michael Bowdery said: "we look forward to tracking [the study's] potential for improving the treatment pathways and education."
Even morphine doesn't help my horrific period pain bbc.in/41B8tjH
Severe Period Pain is Not Normal (SPPINN) Study retweeted
AMAZING NEWS! Diolch yn fawr, @WCVACymru for choosing @FTWW_Wales as 'most influential small organisation in #Wales'! We're delighted, not least as this proves the importance of #WomensHealth & the upcoming NHS Plan. Well done @DaringtoDream5 & @CarmsPF, equally fantastic orgs!
Severe Period Pain is Not Normal (SPPINN) Study retweeted
It's been a challenge getting some of @FTWW_Wales's trustees, staff, and volunteers to tonight's #WelshCharityAwards but their tenacity in trekking across #Wales, mobility scooters 'n' all (with trains / roads not always playing ball) shows why our team is so amazing #proud!
Severe Period Pain is Not Normal (SPPINN) Study retweeted
Shape research into communication around women’s health.
We would like women, girls and NHS practitioners to take part in a short survey to help identify the gaps in research around communication in all aspects of women’s health.
Deadline on 25 Oct: healthandcareresearchwales.o…
Severe Period Pain is Not Normal (SPPINN) Study retweeted
It was like an introduction, we spoke about periods for disability, young ladies and young adults like myself and others
We have spoken about @SPPINN_Study
Disabled ♿ people, including those living with long-term mental or physical health.
Severe Period Pain is Not Normal (SPPINN) Study retweeted
Excellent meeting of the #WomensHealthWales Coalition this evening, with Clinical Lead @chelenmunro, as the #NHSWales #womenshealth Plan develops. TY @LUPUSUK @veritypcos @asthmalungcymru @AutisticUK @WAMESMECFS @FSRH_UK @wancymru @SPPINN_Study @DVSC_Wales for contributing!
Severe Period Pain is Not Normal (SPPINN) Study retweeted
If you didn't catch it yesterday, FTWW volunteer, Emma, shared her experience of #endometriosis and induced #menopause with @BBCWalesNews, alongside #Wales-based menopause specialist, @DrMichelleOlver, & friend to FTWW, @katharinegale - diolch, all! bbc.co.uk/news/articles/cql8…
Severe Period Pain is Not Normal (SPPINN) Study retweeted
It's fantastic to see so many projects underway. Have a great conference and please say, 'hi' to @SPPINN_Study's Dr Robyn for us, presenting on the #Endometriosis #Cymru Symptom Reporting Tool coproduced with FTWW, and #PMDD!
Severe Period Pain is Not Normal (SPPINN) Study retweeted
Wishing @cardiffuni @SPPINN_Study's Dr Robyn well for tomorrow's @4mhealth conference, presenting on the endometriosis.cymru/srt/, coproduced with FTWW, & healthcare experiences of patients w. #PMDD. Check out the programme here: 4M Conference 2024 – 4m (4mhealth.uk)
Severe Period Pain is Not Normal (SPPINN) Study retweeted
We spy with our little eye @SPPINN_Study's Dr Robyn & FTWW's @JosephRL3_CU at today's @EveryWomanFest_ ! Please visit the @cardiffuni stand, if you can, and don't forget to say, 'hi' to @FTWW_Wales w. @LauraTeareJones, @Becci_frost87, @glowclaire, @alippritchard @ThePontyPoet!
Excited to be at @EveryWomanFest_ today in the beautiful Insole Court in Cardiff. We’ve teamed up with fellow @cardiffuni colleagues who are also researching areas of women’s health - hopefully the first of many collaborations! #EveryWoman2024 ncmh.info/whresearch
Severe Period Pain is Not Normal (SPPINN) Study retweeted
Do you have experience of severe #periodpain or are supporting someone who does? Are you in #Wales? Please get involved in the @ResearchWales-funded @SPPINN_Study! It aims to find out what's needed to improve understanding & care for this often-misunderstood symptom. Diolch!
ALT The SPPINN Severe Period Pain Is Not Normal poster has a brightly coloured logo, saying SPPINN. It has logos across the bottom for Cardiff University, Bangor University, FTWW, Health & Care Research Wales, and Welsh Government. It invites people with experience of severe period pain themselves or as a family member or carer for someone who has severe period pain to get in touch with researchers at Cardiff University by emailing [email protected].
Severe Period Pain is Not Normal (SPPINN) Study retweeted
If you haven't registered already, please do! March 28th @FTWW_Wales, @EndometriosisUK, @huw4ogmore, @SPPINN_Study, @BruenLiz, @EndoUKWales will discuss Diagnostic Delay for #endometriosis & what's happening in #Wales to address it. See below to register & submit questions!
This #EndometriosisAwarenessMonth, FTWW is co-hosting an online panel event with @EndometriosisUK & @huw4ogmore, discussing diagnostic delay & upcoming additions to endometriosis.cymru - for more info, inc how to register & submit questions, pls visit endometriosis-uk.org/civicrm…
ALT A green poster with yellow text, inviting people to join an online panel event on Thursday March 28th from 7-8.30pm to hear from campaigners, researchers, healthcare professionals, and patients as we discuss diagnostic delay and the work underway to address the issue in Wales. Underneath are logos from Endometriosis Cymru, FTWW, and Endometriosis UK.
Severe Period Pain is Not Normal (SPPINN) Study retweeted
It's #InternationalDayOfActionForWomensHealth so time for @WelshGovernment to commit to implementing the #WomensHealthWales plan to improve the health of women, girls, and those assigned female at birth @BHFCymru @MarieCurieCymru @EndometriosisUK
ftww.org.uk/womenshealthwale…