Kind , honest and respectful
Ballyhalbert, Northern Ireland
Joined December 2015
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Thank you @QUBelfast supporting people with #RareDisease #RareDiseaseNI. #RareDiseaseDay2025 #LightUpForRare. Looks great & support very much appreciated!
ALT QUB lit up for rare disease
ALT QUB lit up for rare disease image
ALT QUB lit up for rare disease purple with two people
ALT Image of QUB lit up in support of rare disease day
@AerLingus pls consider passengers who can’t stand. If the armrests don’t rise fully, some of us can’t get into those seats! When using the aisle chair, having passengers board concurrently is #embarrassing & #illogical as the chair blocks the aisle! #disability #travel. – at Northern Ireland, United Kingdom
Flying with @AerLingus today…baffled by the large number of people using wheelchairs for priority boarding in USA…who on arrival stood up, got their luggage easily from overhead bins, & promptly walked off the plane unaided….#Travel #Disability #CommonSense – at Northern Ireland, United Kingdom
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Devastated! How can OT get things so wrong consistently? After much grief & eventually ~3 month wait wheelchair delivered….won’t fit through front / back door😱. Internal door 36”👇🏻. We bought & collected 1 the next day that works perfectly. @setrust @NI_RDP @RCOTNIreland
A lot of hard work by the teams Big thank you to @JulieMcMullan11 geting everything ready for Rare Disease Day today and all of the team who made it all come together so well! @NI_RDP @CPH_QUB @RareDiseasesIE #RareDiseaseNI
Great Day at the Joint North / South Rare Disease Day in Riddel Hall Belfast today Well attended and great Speakers, Well done to all the Prize winners today.
Good trip to Dublin today for the launch of Ireland’s Easyguide to Rare Diseases Great Speakers and a packed Room
Had a great day in London at the Westminster health forum. Good to hear Top Consultants Standing up and Saying they paid to come to this event themselves as no funding available; impressive commitment from dedicated #NHS staff towards helping patients with RD #RareDiseaseNI
Good to see a packed room from all over the uk at the Westminster Health Forum today in London @NI_RDP #RareDiseaseNI
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