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Why are researchers into ME/CSF not looking more closely at the work of cardiologist Dr Paul Cheney & Dr Myhill theory about PFO and #MECFS
drmyhill.co.uk/wiki/patent_f…
Sandy B retweeted
Did a podcast with Nutritional Medicine Institute on #LongCovid #mecfs on YouTube, Spotify etc. It’s far from perfect, I just hope that I have done this amazing community a good service by advocating for better understanding of PEM &lack of treatments etc
positivenutrition.ie/article…
Sandy B retweeted
We need help! There is SO MUCH SUFFERING and so little research funding. We are losing patients to suicide because they lose hope.
Sandy B retweeted
#MEAwarenessDay
10 years 99.9% bedbound.
15 years since the illness began.
23 y/o to 38 y/o in the blink of an eye, but the extraordinary suffering has been felt in every second of those years.
And there are thousands like me, or worse.
#MECFS #ME #MEAwarenessDay
Sandy B retweeted
We Need Your Help
Imagine starving to death and being allergic to all food. And everyday trying to decide between starvation and a deathly allergic reaction. ME/CFS is like an allergy to energy expenditure. Imagine everyday trying to decide between doing something that makes you feel alive or deathly sickness. The more you do, the less alive you feel. And the less you do, the less alive you feel. And the more you do, the less you are physically capable of doing. That is ME/CFS. Everyday. For decades.
But if you don’t have ME/CFS, and are not allergic to life itself, you could decide right now to help us. And it won’t cost you anything but an extra work day, or one less toy or luxury, or some other small sacrifice in an otherwise life full of blessings and opportunity. Which I would not want to take away for a second. But a small sacrifice from you would go a long way towards helping people living in absolute hell.
Go here to donate to ME/CFS research:
whitneydafoe.com/donate
Learn more about ME/CFS here:
whitneydafoe.com/mecfs/whati…
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#mecfs #mecfsawarenessday #mecfsawarenessday2026 #chronicillness #pwME #spoonie
Sandy B retweeted
My family has 5 members with #MyalgicEncephalomyelitis over 3 generations; my mother, me, my sister & my two children.
When my son developed #LongCovid & ME I was beyond heartbroken. He is now 11 & attends school part-time.
Pls support #MEAwarenessDay
#pwME #MEKills #MECFS
Sandy B retweeted
Today is #worldMEday and part of #MEawarenessweek
I’ve had this horrific disease since I was 14yrs old. A fit, health and active teenager, until I got a severe gastric flu, and never recovered.
For the last 7yrs in various ways my health has been declining, until near death
Sandy B retweeted
Our son loved the outdoors – invisible illness means he now can't walk or talk bbc.in/4sxUCVW
Why are researchers into ME/CSF not looking more closely at the work of cardiologist Dr Paul Cheney & Dr Myhill theory about PFO and #MECFS
drmyhill.co.uk/wiki/patent_f……
Sandy B retweeted
Why are researchers into ME/CSF not looking more closely at the work of cardiologist Dr Paul Cheney & Dr Myhill theory about PFO and #MECFS
drmyhill.co.uk/wiki/patent_f…
Sandy B retweeted
I find it very odd that all these parents in CityWest with young children seem terrified of protests outside the grounds of their accomodation, but have absolutely no issue with child rape on the grounds of their accomodation. Strange.
RTÉ News was given permission to enter Citywest Hotel to speak to some of the 1,200 residents in the wake of a series of protests outside the facility
rte.ie/news/ireland/2025/102…
Sandy B retweeted
RYAN CASEY has issued a lengthy statement following the sentencing of the Puska family yesterday. Gript Media, with his consent, is publishing it in full.
"I was utterly disgusted by the verdicts" he writes:
gript.ie/ryan-casey-ashling-…
Sandy B retweeted
Before today's sentence was passed, Ashling Murphy's sister Amy told the court of the family's anger at the "injustice of it all" and the "staggering" public cost to pay for legal teams that could have been directed to "vital and underfunded services across Ireland".
She said her family felt "gaslit" when barristers for each of the accused described their clients as holding family values and wanting to educate their children and create a better life for them.
"How dare they speak those words?" she said. "Words they clearly don't live by and that their actions completely contradict."
"Our parents worked incredibly hard to provide for us, to ensure we were educated and to instil in us a strong work ethic, integrity and moral responsibility. To sit there and hear those values twisted and used in defence of people who have demonstrated none of those qualities was infuriating.
"It felt deeply insulting to Ashling, to our parents and to everything decent families stand for."
Sandy B retweeted
A third world migrant raped a 10 year old, and instead of condemning the rape, the prime minister condemns the protests
What the hell is going on in Ireland
I strongly condemn the violent disorder that unfolded in Citywest in Dublin this evening.
I pay tribute to the frontline gardai who acted courageously and quickly to restore order.
ALT Statement by Taoiseach Micheál Martin I strongly condemn the violent disorder that unfolded in Citywest in Dublin this evening. I pay tribute to the frontline gardai who acted courageously and quickly to restore order. The Minister for Justice and Garda Commissioner have briefed me on the operation, and I thank everyone for their work. An Garda Siochana protect us all and have a proud tradition of service to the Irish people. There can be no justification for the vile abuse against them, or the attempted assaults and attacks on members of the force that will shock all right-thinking people.
Sandy B retweeted
"Ashling represents the best of everything Ireland is. She represents beauty and kindness, compassion, and talent, love and innocence. This will forever be her legacy.
Ireland is a better place because she was here.
I ask the Puska family sitting here today: what is your legacy? What have you done for Ireland but damage it beyond repair.
You all came to our great country in search of a better life, but built that life on a strong foundation of taking, never giving.
A family who benefited greatly from everything our nation offers to those in need while contributing absolutely nothing in return.
A family who knew, without question, that one of their own had gone out into the streets of Tullamore and murdered our beautiful girl in the most horrific way imaginable.
And instead of doing what was right, instead of doing the honourable thing by coming forward and telling Gardai what you knew, you did everything possible to conceal what you knew and to destroy vital evidence in the hopes that my family would be left without justice and closure for the rest of our lives, while your husband and brother would be left free to roam the streets of Ireland to possibly do this all over again to another innocent family."
- Victim Impact Statement of Ray Murphy, father of Ashling Murphy
Also feel free to repost to get as much attention. I feel it needs to be looked at by those with more scientific minds than myself. 🙏🏼
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Also the treatment for PFO other than closure is blood thinners like aspirin/heparin etc it might explain why so many find blood thinners or nattokinase improve symptoms like @CiaraGlenville.
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Sandy B retweeted
I’m trying a new experimental treatment for ME/CFS & would love to hear if anyone else has tried it: microdosing of GLP-1s. Experience has shown that people with autoimmune disease who take it for weight loss often see improvement in their underlying disease. Anyone tried it?