Scleroderma research at the University of Manchester & Salford Royal Hospital. For nailfold capillaroscopy research from our group, check out @McrNCM
Manchester, England
Joined March 2019
- Tweets146
- Following77
- Followers203
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SclerodermaSalfordManchester retweeted
🎙️ LIVE at #WSC2026
World Scleroderma Congress Highlights Podcast Chaired by Blaz Burja Speakers: Prof. Vanessa Smith & Dr. Michael Hughes
What are the key take-home messages from this year’s congress?What will change practice tomorrow?
Listen now: open.spotify.com/episode/3Zc…
SclerodermaSalfordManchester retweeted
📢 Participate in the @Worldsclerofnd Very Early Diagnosis of Systemic Sclerosis (VEDOSS) Survey!
Your insights will:
✔️ Identify key challenges
✔️ Highlight unmet needs
✔️ Shape future education & research
🔗 it.surveymonkey.com/r/8W59D8…
SclerodermaSalfordManchester retweeted
So exciting all my fundraising merchandise has arrived, for my first London Marathon 💚 🇬🇧 for @WeAreSRUK Time to make a difference💙 #scleroderma #raynauds donate below or share if you can 🙏🏻 💪🏻 2026tcslondonmarathon.enthus…
SclerodermaSalfordManchester retweeted
Our Head of Research, Ula is at @eular_org in Barcelona, kicking off with powerful insights on ILD, digital ischemia, GI involvement & more in systemic sclerosis. A vital reminder of how far we’ve come and what’s still to come.
#EULAR2025 #SystemicSclerosis #Scleroderma
SclerodermaSalfordManchester retweeted
National survey explores rheumatologists’ awareness, approaches to diagnosis & management, & training needs within systemic sclerosis
Dr Michael Hughes from @salfordco_nhs is the senior author on this @wearesruk survey academic.oup.com/rheumap/art…
@SclerodermaM
SclerodermaSalfordManchester retweeted
This study particularly needs females aged 52-59 currently - the research appointment @salfordco_nhs only takes an hour and could help to improve care for people with systemic sclerosis (we're looking for people without the condition)
🔵 𝗥𝗲𝗰𝗿𝘂𝗶𝘁𝗶𝗻𝗴 𝗻𝗼𝘄 – MISDOSS
Healthy participants aged 40+ years to help develop an imaging system to measure oxygenation in the skin of the hands and better manage people with scleroderma.
Message us or visit:
researchforthefuture.org/stu…
SclerodermaSalfordManchester retweeted
🚨 We are delighted to share the newly updated Systemic Sclerosis guideline, published today!
Key updates include interstitial lung disease, pulmonary hypertension, and more.
Read more: bit.ly/3XnMSHO
@WeAreSRUK
SclerodermaSalfordManchester retweeted
Great to see this work published - contributors include Drs Nuala O'Donoghue, Michael Hughes & Muditha Samaranayaka from @salfordco_nhs @SclerodermaM. Salford Royal is a referral centre for patients with #SystemicSclerosis & many of our patients have taken part in research.
🚨 We are delighted to share the newly updated Systemic Sclerosis guideline, published today!
Key updates include interstitial lung disease, pulmonary hypertension, and more.
Read more: bit.ly/3XnMSHO
@WeAreSRUK
SclerodermaSalfordManchester retweeted
Learn more about the role Physiotherapy can play in scleroderma in our brand new webinar.
On September the 27th at 12:00, we will be joined by guest speaker Will Gregory, a physiotherapist who will talk about pain management and exercises.
Sign up now! bit.ly/3TtaHg3
SclerodermaSalfordManchester retweeted
NEW SURVEY: We are looking for current patients of #Rheumatology outpatient departments in the UK NHS/HSC. We want to know what you think about clinic letters and who they are written to. To complete our survey, or for more information, please visit: bit.ly/W2Pptsurvey
ALT Advert for the 'writing to patients from rheumatology' patient survey, including the weblink and Rebecca's contact details. Tel: 0161 275 0546 / 07823 456696. Email: [email protected]
SclerodermaSalfordManchester retweeted
Today is #WorldSclerodermaDay! ✨ As we celebrate resilience and patient empowerment, and transforming #scleroderma care:
Let's work together to advocate for innovative models that prioritise patient ownership, foster collaboration and drive positive change! 🤝
SclerodermaSalfordManchester retweeted
🔵 𝗥𝗲𝗰𝗿𝘂𝗶𝘁𝗶𝗻𝗴 𝗻𝗼𝘄 – MISDOSS
Healthy participants aged 40+ years to help develop an imaging system to measure oxygenation in the skin of the hands and better manage people with scleroderma.
Message us or visit:
researchforthefuture.org/stu…
ALT Recruiting now - Misdoss study
SclerodermaSalfordManchester retweeted
Spreading the WORD that children and young people get rheumatic diseases too @WORDDay_org @RMCHosp
SclerodermaSalfordManchester retweeted
👉Join Us in Prague!
Don't miss out on this chance to be at the forefront of scleroderma research and advocacy. Learn more and register now: web.aimgroupinternational.co… We can't wait to welcome you in Prague ! @EUSTAR_org
ALT https://web.aimgroupinternational.com/2024/sclerosiscongress/programme/#
SclerodermaSalfordManchester retweeted
If you are a patient with an autoimmune or rheumatic disease, we encourage you to ask your family and friends to take this survey this survey.
Anyone with an autoimmune disease is eligible.
Please find the link to the CoVAD-3 survey here: bit.ly/49UlEx0
SclerodermaSalfordManchester retweeted
Collating the Voice of people living with Autoimmune Diseases (CoVAD 3) Survey. We aim to understand your life so that physicians may understand healthcare interventions needed to improve those with chronic diseases. If you are >18, can you spare 15 mins? surveymonkey.com/r/TV6JF75
SclerodermaSalfordManchester retweeted
Important work here from an international survey of patients’ unmet needs and treatment preferences concerning digital ulcers in systemic sclerosis - senior author is Dr Michael Hughes from @salfordco_nhs @sclerodermaM academic.oup.com/rheumatolog…
SclerodermaSalfordManchester retweeted
Meet our latest Research Star @SalfordCO_NHS Assistant Academic Network Manager Adam Lounsbach. Adam is approachable, kind, knowledgeable, helpful & always goes above & beyond. As one of the 1st people new starters to the R&I team meet, he's so welcoming & reassuring
@UoM_ITS
ALT Adam Lounsbach with his Research Star of the Month certificate
SclerodermaSalfordManchester retweeted
Interesting insights here: Significant gastrointestinal unmet needs in patients with Systemic Sclerosis: insights from a large international patient survey
Authors include Dr Michael Hughes from @salfordco_nhs @SclerodermaM
academic.oup.com/rheumatolog…
SclerodermaSalfordManchester retweeted
When Cheryl found out that she had scleroderma, her life changed forever. And that is why on the 24 September, Cheryl will be doing a skydive with her best friend to raise money for SRUK.
Read more: bit.ly/3DYgxhl
