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Scleroderma News

@SclerodermaNews

We are dedicated to sharing the latest news, research, and SCL patient perspectives.

 Pensacola, FL
sclerodermanews.com
Joined October 2014
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John Stamos will receive the Bob Saget Legacy Award for his longtime support of scleroderma research at an October SRF fundraiser. sclerodermanews.com/news/joh…
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Treatment guidelines for systemic scleroderma (SSc) have evolved with advances in scientific understanding, a study shows. sclerodermanews.com/news/stu…
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Blood protein KL-6 may help identify people with SSc-ILD at greater risk of short-term lung function decline. sclerodermanews.com/news/blo…
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People with SSc who don’t show the scleroderma pattern of small blood vessel damage may have a milder course of the disease, per a study. sclerodermanews.com/news/lac…
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A wireless sensor may help track scleroderma-related skin stiffness at home, but larger studies are needed to validate its use. sclerodermanews.com/news/wir…
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A new scleroderma survey seeks patient experiences from adults to better understand disease burden, unmet needs, and research priorities. sclerodermanews.com/news/scl…
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Off-label treatment with JAK inhibitors appeared to keep lung function stable in systemic sclerosis, according to a real-world-study. sclerodermanews.com/news/jak…
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To mark awareness month and educate others this June, the National Scleroderma Foundation has launched a campaign dubbed "Beacons of Hope." buff.ly/b9ndqVc
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The experimental scleroderma therapy BLR-200 showed promise in a mouse model to prevent the disease’s characteristic tissue scarring. buff.ly/RZPPV5S
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Researchers have identified a molecular pathway in skin cells that may be involved in inflammation and scarring in scleroderma, per a study. buff.ly/wc9lGLk
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Sex-specific genetic findings may offer clues into why systemic sclerosis affects women and men differently, a new study suggests. buff.ly/XA4A01p
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In SSc without overlap syndrome, specific autoantibodies were tied to symptoms, while non-specific antibodies showed limited clinical value. sclerodermanews.com/news/aut…
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Blood levels of the liver enzyme ALT are the most accurate predictor of AIH in people with systemic sclerosis, a study in Turkey shows. buff.ly/Urs9Iqn
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Autologous stem cell transplant was effective for controlling scleroderma in a teenager with severe disease. buff.ly/Z49n67c
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A genetic analysis identified existing medications that could be repurposed as potential scleroderma treatment options, a new study reports. sclerodermanews.com/news/stu…
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Levels of anti-CD146 antibodies may help identify SSc associated with occupational exposure to silica and other mineral dusts, a study found. buff.ly/gcARnGm
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The scleroderma drug AISA-021 safely reduced Raynaud’s attack frequency and duration in a study but still failed to meet its primary goal. buff.ly/G4Hbr3S
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Hand baths enriched with carbon dioxide were found to ease symptoms of systemic sclerosis-associated Raynaud’s phenomenon in a small trial. buff.ly/TTuOCHp
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SSc-ILD treatment use has increased over time, with registry data showing fewer lung disease progression events. buff.ly/BwJXcvl
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Soluble CD13 levels are elevated in people with scleroderma, but may not reflect disease severity, a study finds. buff.ly/6Qv9JpE
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