Our mission is to revolutionize the rare cancer system: To redefine, redesign, and redevelop the patient journey so that all patients may live. #RareIsntRare
Alexandria, VA
Joined April 2016
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SHEPHERD Foundation retweeted
The Honoring our PACT Act recognizes toxic exposure as a cost of war.
This bipartisan bill ensures that present and future toxic-exposed veterans can get the care and benefits they've earned.
Watch @jonstewart explain why this bill is needed.
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SHEPHERD Foundation retweeted
So grateful for the opportunity to talk with #childhoodcancertalkradio about the newly introduced #HR5377 bill that lays the groundwork for the acceleration of precision medicine for all cancer patients. #rareisntrare toginet.com/podcasts/childho…
SHEPHERD Foundation retweeted
For the 2nd year in a row, the White House was illuminated in GOLD!
A special thank you to #ShepherdFoundation and #TeamBeans who are using their influence to inspire hope in our community, so that children and families all over the world will know that they are never alone.
SHEPHERD Foundation retweeted
Today is #RareCancerDay. Did you know all #ChildhoodCancers are considered rare cancers? Join the @ShepherdFound #RareIsntRare campaign to change the system.rarecancertoolkit.com/action…
SHEPHERD Foundation retweeted
#Cancer #Warriors #Patient #advocates - Thank you for working so hard to #makeadifference for millions! @ShepherdFound @LisaWardspeakup
If you want to help #patients support the Cancer Patient Equity Act - HR 5377! #RareCancerDay
SHEPHERD Foundation retweeted
Disproportionate impact of #cancer on people of color must end! Equity in care needed now! Join @AlonzoBodden @weSPARKsupport @EmCollective @ACCCBuzz @Fight2CureKids @SGO_org @smashingwalnuts @ShepherdFound in supporting HR 5377 #PrecisionMedicine @TheBlackCaucus @HispanicCaucus
SHEPHERD Foundation retweeted
Thank you for introducing #Cancer #Patient #Equity Act so all #patients gain access to life-saving molecular #diagnostics @GKButterfield @RepGusBilirakis #Advocates @ShepherdFound Tell #Congress to pass this bill, find your Member & email: house.gov #RareCancerDay
SHEPHERD Foundation retweeted
This week, Congressman G. K. Butterfield & @RepGusBilirakis introduced H.R. 5377, the Cancer Patient Equity Act, a bill to expand coverage for cancer molecular diagnostics, analysis, and testing.
butterfield.house.gov/media-…
SHEPHERD Foundation retweeted
No data means poor care. #Patients deserve better. Support HR 5377: ensure all patients get molecular #diagnostics & lets democratize #cancer #research @broadinstitute &⬆️ #rarecancer clinical trials @corrie_painter @EmCollective #RareCancerDay @ACSCAN @ShepherdFound @NCIDirector
SHEPHERD Foundation retweeted
#Cancer #Patient #Equity Act must pass #Congress to help ALL cancer patients with molecular diagnostics! #PediatricCancerAwarenessMonth #RareCancerDay Hear the stories, learn & take action! Call your Member of Congress to ask to sponsor HR 5377 #Warriors = heroes @ShepherdFound
SHEPHERD Foundation retweeted
I’m proud to co-author bipartisan legislation to ensure patients with rare cancers have access to the treatments they need! #RareisntRare #RareCancerDay
finance.yahoo.com/news/bipar…
SHEPHERD Foundation retweeted
Im honored to speak at this one
Join us tomorrow for our #RareCancerDay Congressional Briefing with this amazing panel of #cancer #patients #advocates #researchers @GKButterfield @RepGusBilirakis @LisaWardspeakup @LevineChildrens @EmCollective @AlonzoBodden @corrie_painter
Register: bit.ly/3zzAlTr
SHEPHERD Foundation retweeted
Proud to co-author this bipartisan legislation to help ensure patients with rare cancers have access to the treatments they need.
Honored to announce the intro of the Cancer Patient Equity Act H.R. 5377 by @GKButterfield & @RepGusBilirakis . Years in the making, countless hours of meetings with Reps, patients, advocates, researchers & clinicians, all with the goal of saving lives.
rarecancertoolkit.com/action…
SHEPHERD Foundation retweeted
Join us on Thursday, September 30 12:30pm EST for our annual RARE CANCER DAY Congressional Briefing. We will bring together #patients, #advocates, #researchers, and more to discuss the need for greater investments in #RareCancer treatments. REGISTER: bit.ly/3zzAlTr
SHEPHERD Foundation retweeted
Fall 2021 marks 20 years since the first BPI classes started and we are celebrating that milestone in our inaugural BPI Day of Giving.
With 6 hours to go, we have just $5,000 left to raise to meet our $50,000 goal. Can you help us get there? bit.ly/3A0FmWn
#ISupportBPI
SHEPHERD Foundation retweeted
1st ever #patient #therapy matching algorithm to be shared at @myESMO Conf thanks to DELVE computational approach to ensure medicines work for #Cancer #patients #AI #precisionmedicine @ShepherdFound globenewswire.com/news-relea…
SHEPHERD Foundation retweeted
All of New York City is #TeamBeans.
Together, we will fight to end childhood cancer in the memory of Francesca and every child we’ve lost.
SHEPHERD Foundation retweeted
We introduce you to the Cancer Patient Equity Act of 2021: What is this bill? How/why did this bill come about?
How will it help patients and the cancer community at large? Questions or to connect over advocacy: [email protected]
fb.watch/6VxhM65CY5/ via @FacebookWatch
SHEPHERD Foundation retweeted
Today is #GBMDay, bringing the glioblastoma (#GBM) together to shine a light on the most common, complex, treatment-resistant, and deadliest type of brain cancer.
Contact your members of Congress today to support the Glioblastoma Awareness Day resolution: p2a.co/XEJVz3q
