Improving quality of life for individuals and communities affected by sickle cell disease. *We do not monitor this inbox.
Minneapolis/St. Paul, MN
Joined September 2014
- Tweets9.1K
- Following2.3K
- Followers2K
- Likes8K
SickleCellMN retweeted
Food Deserts, Limited Access to Transportation Linked to More Complications Among Preschool Children with Sickle Cell Disease.
Read more about this new study, published today in @BloodAdvances: ow.ly/VkCC50TFJy8 #SickleCell #SCD #SDOH
SickleCellMN retweeted
Join the Children’s National Sickle Cell Family Education Symposium — "Sickle Cell Unlocked: Conquer College & Career with Confidence"!
Oct 12, 2024
7-10 AM PST / 10 AM-1 PM EST
Virtual & In-Person
For young adults with SCD navigating college & careers.
Register Now!
SickleCellMN retweeted
Countdown alert – two weeks to go! Get ready to join us in Atlanta, Georgia, Oct. 23-26 for SCDAA’s 52nd Annual National Convention. This is your chance to engage with cutting-edge sickle cell research and connect with the community. Register now: bit.ly/SCDAA2024Convention
SickleCellMN retweeted
"If you stick a knife in my back 9 inches and pull it out 6 inches, that's not progress. If you pull it all the way out, that's not progress. Progress is healing the wound that the blow made. They haven't pulled the knife out; they won't even admit that it's there." —Malcolm X
SickleCellMN retweeted
A 15-year-old scientist named Heman Bekele from Ethiopia has been named the 2024 “Kid of the Year” by Time Magazine after inventing cancer fighting soap
Your thoughts on this
SickleCellMN retweeted
I’m late to the #SupaCell party but thank you @netflix @NetflixUK for televising what those of us who are privileged to care for #SickleCell have always known: that our #SCDWarriors are superheroes!
SickleCellMN retweeted
Reminder: Read Across America Day is this Sat. Plan ahead allocate time for reading during Read Across America Day bit.ly/3ufPfC4
SickleCellMN retweeted
Newborn Screening is essential to learning trait or #SCD status in the US and worldwide. Curious about #newbornscreening or what your #trait status means? @SCDAA_org answers your #FAQs here: sicklecelldisease.org/2022/0…
SickleCellMN retweeted
I believe in therapy! Tag a friend who can relate to this message. Visit the SCDAA website ➡ sicklecelldisease.org to learn more. Feel free to reshare.
SickleCellMN retweeted
#BlackHistoryMonth Meet Bethany Chasteen, a registered nurse, actress, globally recognized fashion model and warrior. From strutting on runways for Louis Vuitton to gracing campaigns for Victoria’s Secret, Bethany's journey is a testament to resilience and achievement.
SickleCellMN retweeted
The deadline to register for the Policy Forum is fast approaching. Register by February 28th to receive a program book in the mail. Register by March 8th to participate in the Virtual Hill Day on March 30th.
🔗Register:
events.zoom.us/ev/AmJVlOEOiG…
SickleCellMN retweeted
🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours
SickleCellMN retweeted
#DYK that today is #RareDiseaseDay? @BloodStrmMedia has the largest podcast network for rare diseases, including Cheat Codes: A Sickle Cell Podcast. Take a listen here: bloodstreammedia.com/cheat-c…
SickleCellMN retweeted
Today on #RareDiseaseDay, we reflect on the progress that has been made in #SickleCell and resolve to stay the course.
Learn about recent progress and get updates on what ASH and partners are doing to improve the lives of all affected with SCD: ow.ly/KJg750QH9Rn
SickleCellMN retweeted
Today is Rare Disease Day. Meet Tristen, a true warrior whose strength and resilience serve as a beacon of hope, inspiring positive change and shining a light on the challenges faced by those living with a rare disease. Read Tristen's inspiring story here: buff.ly/3HJoGYZ
SickleCellMN retweeted
#GeneTherapy revolution that has started with hematologic disorders is here to stay.
#Revolution
@ASH_hematology
@ASTCT
@CMAdocs
@CDCDirector
endpts.com/accelerated-appro…
SickleCellMN retweeted
If you are suffering from a condition,
Use your experience to inform and inspire many,
So, others will not suffer what you suffer.
@TackleSickle @w_sicklecell
@sicklecellnig @SickleCellMN
@ConquerSCD @AuSickle
@Pearls_SCF @DrDexPatelSCAF
@CareSickle @znsava
@Sickle_Matters
SickleCellMN retweeted
Vertex’s non-opioid drug reduces chronic nerve pain in mid-stage study $VRTX firstwordpharma.com/story/58…