Wife. Mother of 3 awesome kids. Founder of Chronically Simple (@cshealthapp). #EDS Warrior. Advocate for patient empowerment. Lover of coffee.
Toronto, Ontario
Joined February 2018
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Simply Kristy retweeted
Happy Nurse Week! We love nurses and love to celebrate their contributions to healthcare and health IT.
#Nationalnurseweek #NurseWeek24 #Nurses
Simply Kristy retweeted
The #SwaayHealth community is a BIG reason for my recent professional success. You took me in as one of your own, believed in me and my #advocacy message to empower patients, and amplified it. I will be forever grateful for your support. THANK YOU! 😘
The Patient Advocate of the Year Award from this year's Swaay.Health Live goes to Stacy Hurt! Congratulations!
#SwaayHealth @stacy_hurt
Simply Kristy retweeted
Could not be more deserving! @GraceCordovano is the GOAT! #swaayhealth
Grace Cordovano is the winner of the 2024 Swaay.Health Live Best Use of Social Media - Individual Award! Congratulations!
#SwaayHealth @GraceCordovano
Simply Kristy retweeted
“The difference between healthcare and football is that we just don’t have that same team mentality. Everyone is working toward the same goal to improve patient outcomes, but all the stakeholders are working separately.” - @CareersKristy at #SwaayHealth
Day one of #SwaayHealth Conference didn’t disappoint! I am representing my fellow #rare patients and caregivers, soaking in the learnings, which I will bring back and share.
Really missing my conference partner in crime, @RareDiseaseDad 💚. You are here in spirit, Adam!
Thank you @thegr8chalupa for sharing my message and for the warm hug! So wonderful to meet you in person today. Keep fighting the fight. We are right behind you #patientrevolution #rarerevolution
"We are NOT waiting to be invited to participate in our own healthcare." @SimplyKristyD at #swaayhealth #patientrevolution #rarerevolution
Simply Kristy retweeted
“Think about Nike. They don’t manufacture one cleat and expect it to work for football, soccer, and rugby. They have athletes from each sport who actually wear that shoe engaged every step of the way from ideation to product development to launch." @CareersKristy #SwaayHealth. 🌟
Simply Kristy retweeted
Congratulations to the incredible and inspiring @stacy_hurt!!! 👏🤩💗 #SwaayHealth
Simply Kristy retweeted
Integrated care is a long-term investment and commitment. So incredible to hear about @BurlingtonOHT journey since 2017
@peterskath1 #ICIC24
Why? Why are we still gatekeeping a patient’s information? This is MY body and MY data.
Ugh. I thought we were past this. Gatekeeping causes unnecessary anxiety for patients who choose to access their PHI. This decision shouldn’t be made for me.
#patientexperience
Simply Kristy retweeted
Many have attempted 2 illustrate the journey a fam undergoes when seeking a #GeneticTest that may lead 2 a #Raredisease dx, often these depictions fall short of capturing the true essence of the experience. I aim 2 provide a more accurate & factual representation of this journey.
Simply Kristy retweeted
Me and my #healthdata ❤️ This takes a lot of time to maintain as currently, the #healthdata I need, is not available online 😣 #Interoperability #patientsafety
Simply Kristy retweeted
hard stop. 🌍💖😊 #pinksocks ✨
love more. be kind in each now. ur already doing it. just keep doing that! 👊
Simply Kristy retweeted
People have NO idea how broken healthcare is until they have to advocate & legit FIGHT the system to just get basic needs for a patient covered. Sometimes I just want to give up, but every lost battle fuels my desire to change things 🥊
Strategy: Cry, lick wounds, dive back in – at Boston, MA
This piece is raw and real. Thank you @RareDiseaseDad for sharing your journey with such authenticity and honesty. I see you and I stand with you always 💚
#RareDiseaseDay2024: a time of hope, progress, & joy. Yet I’m not joyful & I have some choice words for my #RareDisease.
To those advocating & spreading awareness on #RareDiseaseDay, thank you.
To those hurting/struggling, I see you.💚
#RareDiseaseTruth
rarediseasedad.com/owning-my…
Simply Kristy retweeted
This is the perfect visual for what it's like to advocate for rare diseases. 🤣
#RareDiseaseDay #CTNNB1
Simply Kristy retweeted
Data that serves patients.
Kudos to #OpenNotes fit this leap forward, announced at #ViVE2024 🎊
#AI @TheLizArmy @myopennotes @chethanr @GraceCordovano
LIVE FROM #ViVE2024 📢
Today @myopennotes announced the launch of the new OpenNotes Lab… designed to explore the space where patient notes and AI meet.
Read more on this announcement:
opennotes.org/news/opennotes…
I was asked today if I own a a fax machine to send signed paperwork back to a caseworker. It is 2024.
They don’t have electronic signature software And think patients own a fax machine. Why is healthcare so hard??
#patientexperience
Needed a mood boost today as I braved the cold for another medical appointment. #pinksocks @hcldr
Simply Kristy retweeted
Are you a nurse and would you like to go to @theviveevent in February? @hlthfoundation is offering nurse scholarships to attend. Deadline to submit is January 10th #ViVE24 #nurses #nursinginformatics #Nursing – at Boston, MA