Lily 🍭 (@SleepyGirlGuide) header
Lily 🍭 (@SleepyGirlGuide) profile picture

Lily 🍭

@SleepyGirlGuide

Posts about disability services and self-advocacy. 💗🍋 Also posts for anyone who is homebound or sheltering-in-place 🌺 In the US 💗

howtogeton.wordpress.com/
Joined April 2017
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Photo by Lily 🍭 (@SleepyGirlGuide)Photo by Lily 🍭 (@SleepyGirlGuide)Photo by Lily 🍭 (@SleepyGirlGuide)Photo by Lily 🍭 (@SleepyGirlGuide)Photo by Lily 🍭 (@SleepyGirlGuide)Photo by Lily 🍭 (@SleepyGirlGuide)Photo by Lily 🍭 (@SleepyGirlGuide)Photo by Lily 🍭 (@SleepyGirlGuide)Photo by Lily 🍭 (@SleepyGirlGuide)Photo by Lily 🍭 (@SleepyGirlGuide)
#Sleepygirl is my new hero. This is a brilliant resource for anyone who has found themselves blundering through a life turned upside down, wondering what's happened, if they might have ME, and what to do, or not to do next. howtogeton.wordpress.com/mya…
How Do I Know if I Have ME?

How Do I Know if I Have ME?

How to tell if you have Myalgic Encephalomyelitis or “Chronic Fatigue Syndrome”

howtogeton.wordpress.com
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Once again, I want to thank @SleepyGirlGuide and #neisvoid for her excellent guide to navigating benefits. I got my student loans discharged with one form in a month. Way easier than SSDI approval. howtogeton.wordpress.com/how…

How to Make Student Loans Disappear Like Magic (Disability Discharges)

If you are disabled, you may be able to apply for a disability discharge. Disability discharges can make all your student loans magically go away! You do not need to be approved for Social Security…

howtogeton.wordpress.com
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Replying to @msjodibee @StynaLane
@SleepyGirlGuide howtogeton.wordpress.com/201…
How to Get Enough Food Stamps to Actually Eat

How to Get Enough Food Stamps to Actually Eat

12 food stamps rules you probably don’t know. (Because nobody tells you these things.)

howtogeton.wordpress.com
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Section 8 Guide for the Disabled and Plucky howtogeton.wordpress.com/201… via @sleepygirlguide
Section 8 Guide for the Disabled and Plucky

Section 8 Guide for the Disabled and Plucky

Section 8 is a government program that can make your rent low. Super low. If you are low-income and disabled, Section 8 can pretty much be the key to staying alive. If you have ever tried to apply …

howtogeton.wordpress.com
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Transportation for Spoonies: howtogeton.wordpress.com/tra… via @sleepygirlguide #Fibromyalgia #chronicillness

Transportation for Spoonies

Free, discounted, or extra-helpful buses, trains, taxis, planes, paratransit, parking, and auto repairs for people with chronic illness & disabilities.

howtogeton.wordpress.com
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howtogeton.wordpress.com/soc…

The Sleepy Girl Guide to Social Security Disability

A self-advocacy guide to Social Security Disability. This guide is designed for anyone who is homebound and for Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, Lyme Disease, POTS, EDS, MCAS, M…

howtogeton.wordpress.com
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Replying to @LabGirl_Chloe
It's a tough, mostly unsolved problem. The one idea I can offer is for this person to try to get a housing voucher. It's not easy, but if willing to look at different counties or even states, some have open wait-lists. This website has the best info. howtogeton.wordpress.com/201…
Section 8 Guide for the Disabled and Plucky

Section 8 Guide for the Disabled and Plucky

Section 8 is a government program that can make your rent low. Super low. If you are low-income and disabled, Section 8 can pretty much be the key to staying alive. If you have ever tried to apply …

howtogeton.wordpress.com
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Replying to @katemeredithp
Thousands of people with #MEcfs have been through exactly this, including me. Perhaps this will help: howtogeton.wordpress.com/how…

Where to Find a Good Lawyer for Long Term Disability

Long Term Disability is disability offered through your employer’s insurance. Some people also purchase their own private disability plans. This type of disability is different than Social Se…

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#MEAwarenessHour With the increasing number of #Covid19 #longhaulers medicals also recognise the danger of #LongCovid to develop #MECFS. If you belong to this group & wonder about ME/CFS & if you have it, you might find help here:⏬ howtogeton.wordpress.com/mya… via @sleepygirlguide
How Do I Know if I Have ME?

How Do I Know if I Have ME?

How to tell if you have Myalgic Encephalomyelitis or “Chronic Fatigue Syndrome”

howtogeton.wordpress.com
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Replying to @Quiara @stalkmytweetsyo @twitchyspoonie
P.S. If you are ever looking for solid advice in the realm of social security I highly recommend @SleepyGirlGuide website. Much more informative than any other sources I have found.
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How to Practice Pacing howtogeton.wordpress.com/how… via @sleepygirlguide

How to Practice Pacing

How to Stay Inside Your Energy Envelope. A Guide for People with Myalgic Encephalomyelitis or Chronic Fatigue Syndrome.

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Replying to @katemeredithp
These might be useful resources for disability in general: howtogeton.wordpress.com/soc… howtogeton.wordpress.com/201…
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Today I had the privilege of speaking to Ricky Buchanan. Her story is inspirational and she is passionate about her cause. You can read more about Ricky in the article below. howtogeton.wordpress.com/ric… via @sleepygirlguide

Ricky Buchanan: geek-creative-disabled-bedridden-internet-citizen

Brilliant ways to use tools and technology to make life in bed more fun.

howtogeton.wordpress.com
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Lily 🍭 retweeted
Paul Winter (@kaazoom) profile picture
Paul Winter@kaazoom2 Nov 2020
How to Practice Pacing paper.li/kaazoom/1323192932?…
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Replying to @twoShaws @katemeredithp
howtogeton.wordpress.com/201… howtogeton.wordpress.com/how…

What Medical Tests Should I Get While Applying for Disability for Chronic Fatigue Syndrome?

Applying for Social Security Disability with Chronic Fatigue Syndrome. Strategies for collecting medical tests and evidence.

howtogeton.wordpress.com
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Replying to @twoShaws @katemeredithp
More... howtogeton.wordpress.com/201… howtogeton.wordpress.com/sam…

How I Got Approved for Disability for Chronic Fatigue Syndrome

Ten stories from super smart people who did super smart things to win their disability cases.

howtogeton.wordpress.com
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Replying to @MtnShepherdess
This is the best website to go to when needing help applying for Social Security Disability – SSI or SSDI. I helped a woman living in her van get on SSI her first try. howtogeton.wordpress.com/
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These things aren’t *required* for the application, but the problem is if you don’t do the work yourself, it’s likely that your caseworker will only get a small fraction of records in response to their request. = more likely to be denied, because they don’t have much evidence.
Alison Sbrana (@AlisonSbrana) profile pictureAlison Sbrana@AlisonSbrana26 Sep 2020
The executive functioning barriers prevent so many from successfully getting disability benefits. Requesting medical records from every medical/hospital system (often times paying for them.) For application, listing ALL appts with dates/provider name, all tests & treatments.
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I learned most of what I know about this from this amazing resource from chronic illness (especially #MECFS) community: howtogeton.wordpress.com/
Alison Sbrana (@AlisonSbrana) profile pictureAlison Sbrana@AlisonSbrana26 Sep 2020
These things aren’t *required* for the application, but the problem is if you don’t do the work yourself, it’s likely that your caseworker will only get a small fraction of records in response to their request. = more likely to be denied, because they don’t have much evidence.
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Primrose Gets a Disability Parking Placard howtogeton.wordpress.com/han… via @sleepygirlguide

Primrose Gets a Disability Parking Placard

If you have an invisible illness that makes walking difficult, don’t be afraid to get a disability parking placard. It can be a big help and is very easy to do! Primrose wanted to share her s…

howtogeton.wordpress.com
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