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Smile4Riley 🍀

@Smile4Riley

Riley Had a HEART and BILATERAL LUNG Transplant 3/5/13 @ChildrensPhila ❤ #BeatingtheOdds Everyday 💚 .. https://teapawt.net/t.co/wNeH5II2Ra

 New Jersey
chop.edu/stories/heart-and-lung-transplant-riley-s-story
Joined April 2009
  • Tweets12.4K
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Photo by Smile4Riley 🍀 (@Smile4Riley)Photo by Smile4Riley 🍀 (@Smile4Riley)Photo by Smile4Riley 🍀 (@Smile4Riley)Photo by Smile4Riley 🍀 (@Smile4Riley)Photo by Smile4Riley 🍀 (@Smile4Riley)Photo by Smile4Riley 🍀 (@Smile4Riley)Photo by Smile4Riley 🍀 (@Smile4Riley)Photo by Smile4Riley 🍀 (@Smile4Riley)Photo by Smile4Riley 🍀 (@Smile4Riley)Photo by Smile4Riley 🍀 (@Smile4Riley)
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Good News!

Good News!

We Love Good News! Dr Ryan has reviewed the biopsy results and they have come back normal. No signs of allergies, infection or inflammation. He recommends for Riley to go to every 4 weeks with the …

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Vote!

Vote!

Riley’s first time voting! 🇺🇲

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Riley and Mr Bo.

Riley and Mr Bo.

Photo Fun .. Riley and Mr Bo 🐱

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Visit with Dr Hummel

Visit with Dr Hummel

Today was Riley’s last well visit with Dr Hummel. Dr Hummel is retiring in January. When Riley was a newborn we were having a really hard time finding a pediatrician who was willing to be his…

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Visit with transplant teams @ChildrensPhila

Visit with transplant teams @ChildrensPhila

Quick update .. Riley’s transplant appts went well! Labs, echo, EKG and PFTs are all stable. Some of the kidney labs were slightly elevated but we see nephrology next week.Since we are curren…

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Update to transplant appts @ChildrensPhila ❤️

Update to transplant appts @ChildrensPhila ❤️

Visit the post for more.

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Nephrology update 💙

Nephrology update 💙

Visit the post for more.

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Riley's Aunt Debbie needs your Help! ❤️ We would greatly appreciate any help you can offer. No donation is too small .. even if all you can do is share! Thank You! ❤️ . gofund.me/b2c86e935
Donate to Rebuilding After Fire: Help Deborah's Family Recover, organized by Deborah Makuszewski

Donate to Rebuilding After Fire: Help Deborah's Family Recover, organized by Deborah Makuszewski

My name is Deborah Makuszewski and I am a 57-year-old wife an… Deborah Makuszewski needs your support for Rebuilding After Fire: Help Deborah's Family Recover

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#CHD #Heterotaxy #LoeysDietz #Transplant #Warrior #BeatingtheOdds Everyday!
Image from Smile4Riley 🍀 (@Smile4Riley)
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Update .. Transplant Appts. ♥️

Update .. Transplant Appts. ♥️

Update .. Riley’s transplant appointments went well last week! Labs, echo, EKG and PFTs all were within ‘Riley’s’ range.There was discussion of Riley’s yearly testing …

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Update .. ❤️

Update .. ❤️

Update .. sorry for the delay.The results from Riley’s bronchosopy looked good! He can continue to drink without the thickener. Yay! We will bronch again in March.The white stuff that was in …

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Discharged from @ChildrensPhila ❤️

Discharged from @ChildrensPhila ❤️

Riley has been discharged!All of the procedures went well. Dr Leftin said the bronchosopy looked good, but of course we have to wait for the lavage results.Endoscopy did show some white stuff in th…

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Riley's procedures are all scheduled for November. #CHD #Heterotaxy #LoeysDietz #Transplant #Warrior #BeatingtheOdds Everyday! ❤️♻️💜
Image from Smile4Riley 🍀 (@Smile4Riley)
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Update to Appts @ChildrensPhila ❤️

Update to Appts @ChildrensPhila ❤️

Update .. Riley’s transplant appts yesterday went well!Best news we received is Riley is finally over 100lbs! Yay!Riley did wear a 24 hour holter monitor today. Main reason is to see if the n…

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Riley Loves his @HVRanch with Everything from pizza to fries to pancakes! Yes Pancakes! 😋 Thinking this bottle will last a little while! #CHD #Heterotaxy #LoeysDietz #Transplant #Warrior #BeatingtheOdds Everyday! ❤️♻️💜
Image from Smile4Riley 🍀 (@Smile4Riley)
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Oculoplastics

Oculoplastics

Riley’s appt with Oculoplastic went well on Tuesday. The decision has been made to remove the ‘lump’ over Riley’s eyebrow. Dr Katowitz believes it’s a cyst. Riley is already…

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Update .. ❤️

Update .. ❤️

Riley’s FEES study went well on Wednesday. Coordination seems to be slowly improving as we wean. So we will stay the course. Riley will be completely thickener free in 6 weeks!Dr Ruiz is goin…

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Family vacation 💙

Family vacation 💙

Couple pics of Riley from family vacation last week.Two more weeks and Riley will be headed to Heart Camp with the Cardiac Center at CHOP!As far as the gtube. We have a med to try over the next wee…

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Update for Summer 💜

Update for Summer 💜

Update. Riley’s transplant appointments on Monday went well! Echo, EKG, PFTs, blood work … all within Riley’s range. Cardiology would like to repeat the holter monitor since starting a …

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