Smith-Kingsmore Syndrome is a rare genetic disease. We are committed to improve quality of life through medical advancements and community support.
Joined January 2020
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🧡 If you’re able, please consider an end-of-year donation to support SKS research and community. smithkingsmore.networkforgoo…
🧡 Thank you for helping make 2025 a year of meaningful progress. We look forward to a strong and hopeful 2026 ahead!
🩷 Your gift today can push SKS research further. smithkingsmore.networkforgoo…
🩷 Together, we’ve already raised $30,000 — enough to fund 6 months of drug repurposing work in the lab. 🧪
Six months of testing medicines. Six months closer to treatments.
And the more we raise, the further this research can go.
More compounds tested.
More data analyzed.
More chances to find hope for people living with SKS.
This is the final week of our campaign — let’s finish strong!
👉 Every gift counts: smithkingsmore.networkforgoo…
Research is how we make treatments and a cure happen! You can fuel the next step by starting a fundraiser today to support SKS research. It's quick, easy and a great way to celebrate SKS Awareness Day!
smithkingsmore.networkforgoo…
🦟Tiny fruit flies could unlock treatments for our SKS community - help make this happen by donating today! smithkingsmore.networkforgoo…
🧬 Here’s what we’ve built together:
✔️ A mouse model to help understand how SKS affects the brain
✔️ Fruit fly models that carry SKS-specific MTOR mutations
These models are powerful tools — and they’re ready for what’s next.
We’ve laid the groundwork for the next step!
💜 Why are we here?
Smith-Kingsmore Syndrome (SKS) is a rare neurodevelopmental condition caused by changes in the MTOR gene.
🩷 It's Rare Disease Day! It's time to celebrate our incredible community and spread awareness about Smith-Kingsmore Syndrome.
🩷Our goal is to launch drug repurposing trials, based on research that has been funded by our community over the last five years.
Help us drive this research today: smithkingsmore.networkforgoo…
🩷 On August 15th, we celebrate SKS Awareness DAY! And it's our 5th birthday celebration!
🩷 The SKS Foundation has funded five years of SKS research - help us keep this going by sharing this link with your friends and family and donating today! smithkingsmore.networkforgoo…
🌟At the Smith-Kingsmore Syndrome Foundation, we aim to fund pioneering research!
🌟In 2020, we awarded UF $170,000 to advance SKS research.
🌟 Help us sustain this momentum by donating today!
smithkingsmore.networkforgoo…
SKS Fact of the Day: The Power of Community! 🌟
Since 2019, our incredible families and community have generously funded five years of groundbreaking Smith-Kingsmore syndrome research. Together, we’re making a difference! 💪❤️
smithkingsmore.networkforgoo…
Daily during Smith-Kingsmore Awareness month, we are sharing SKS facts!
Visit our website to learn more!
Donate today to support our mission!
smithkingsmore.networkforgoo…
Awareness is the first step towards understanding and taking action! During the month of August, we invite you to educate your community about our ultra-rare condition through our daily ☀️ SKS Fact of the Day ☀️
smithkingsmore.org/
💡Awareness is the first step towards understanding and taking action! During the month of August, we invite you to educate your community about our ultra-rare condition through our daily ☀️SKS Fact of the Day ☀️ during the month of August.
💡smithkingsmore.org/
🩷 International Smith-Kingsmore Syndrome Awareness Month is here - and it's our 5th birthday!!
🩷 We have a bold goal of raising $100,000 for SKS research and programs! Our SKS Foundation Board have pledged a match of $50,000. Your Help = Our Hope!!
smithkingsmore.networkforgoo…
