Ultra-Rare Disease Warrior 🧬 Familial Chylomicronaemia Syndrome (affects 1 in 1 million) | Healing Out Loud | Founder of @ShwariOfficial
London, England
Joined April 2011
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I feel incredibly honoured to have a 5 page spread in this month’s issue on my experience living with FCS as well as being on the front cover of this spotlight edition 🤍 #rarerevolutionmagazine #frontcover #raredisease #fcsawarenessday
Years of unanswered questions, no medication that really helps, loads of ‘experiments’, new symptoms, new trial meds, new side effects, more uncertainty & no real direction …but we keep things moving because stopping or giving up isn’t an option 👊🏼
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HOW GRATITUDE CAN SHIFT YOUR MINDSET 🙏🏼🤍💫
Gratitude is a daily practice, not a one-time thing.
Start with 3 things you’re grateful for today & watch your perspective shift 🫶🏼
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A mindset reset is definitely something I needed… I even posted ‘another day, another symptom’ once on my story during a flare up. Even though my health issues have always been a let down and as frustrating as it can be, I realised still have so much to be grateful for.
I only used to think about the things I couldn’t do and get upset. I now focus more on the things I can do and realise how fortunate I actually am 🙏🏼💫🧿
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