Defending the rights of people with albinism in Africa
UK / Tanzania / Malawi
Joined October 2014
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Standing Voice retweeted
Important news 👇 Huge congratulations to @StandingVoice and all of those who helped reach this historic milestone in Tanzania.
Standing Voice retweeted
We are thrilled to announce the launch of our new mini documentary: "Raising the Voices of People with Albinism: Building Community Networks in East Africa". 🎬 Join us as we explore the vital work of long-term ILDS partner @StandingVoice. Watch now 🔗 bit.ly/StandingVoice-ILDS-Mi…
Standing Voice retweeted
Only 2 days left! to join our webinar on Climate Justice for Persons with Disabilities: A Case Study of Persons with Albinism. 🌍
📅 Zoom | Int’l Sign Language & captioning available.
Register now 👉 lnkd.in/gn6VWNy2
#ClimateAction #AlbinismAwareness #DisabilityRights #Webinar
Standing Voice retweeted
GlobalSkin is excited to welcome new #members to our global alliance! With 282 members from 70 countries and 59 unique disease areas, our community continues to grow.
To learn how to become a #GlobalSkin member, visit globalskin.org/member-commun…
#Dermatology #Community
Standing Voice retweeted
Awareness campaign on rights of people with albinism at Sunuzu Trading Centre, Zomba. Through participatory theatre, we're engaging communities to promote and respect human rights. Thanks to the @EUinMalawi -funded Ufulu Wanga Project and partners @StandingVoice & @beyondsuncare
Standing Voice retweeted
Very nice to go back to the community, each time I reconnect with the community I feel responsible and energetic to stand up for human rights. Thanks @EU_Commission @DeproseM @StandingVoice @yoneco3
Standing Voice retweeted
I commend the SADC for taking a crucial step with the adoption of the Declaration on the Protection of Persons with Albinism at the 44th Summit in Harare. This marks a significant milestone for human rights promotion for persons with albinism in the region. #AlbinismRights
Standing Voice retweeted
Journalists from various media houses are attending a training that has been organized by YONECO & Standing Voice under the EU-funded project called Ufulu Wanga. The training focuses on ethical reporting, human rights, & protecting vulnerable groups including people with albinism
Standing Voice retweeted
1 in 5,000 people in Sub-Saharan Africa and 1 in 20,000 in Europe & North America live with albinism. In some places, individuals with albinism face severe discrimination, emphasising the need for human rights protections and societal change #WorldSkinHealthDay #SkinHealthforAll
Standing Voice retweeted
The ILDS and @IntSocDerm proudly launch the inaugural #WorldSkinHealthDay today, Monday 8 July 2024! This annual event raises awareness about the impact of skin diseases & underscores the urgent need for better education and access to treatment worldwide: ilds.org/news-events/news/WS…
Standing Voice retweeted
8 July is #WorldSkinHealthDay! Let's raise awareness and improve access to care for over 3,000 skin diseases affecting 1.8 billion people worldwide. Skin health impacts quality of life and is often overlooked in health policies. #WSHD2024 #SkinHealthforAll worldskinday.org/about/
Standing Voice retweeted
To celebrate #WSHD2024, we’re excited to announce the Africa regional event in #Tanzania! On 8 July at Mbeya Regional Hospital, 150-200 people with albinism will receive free skin screenings, treatments and health education. Led by the Ministry of Health and @StandingVoice.
Standing Voice retweeted
Why do we need a Nystagmus awareness day on June 20th?
We raise awareness because we want more people to be aware of it. The more people who know, the more people with albinism with nystagmus can get the help, support, and services they need in education, employment,
Standing Voice retweeted
AAN condemns ❌ the murder and mutilation of a two-year-old girl with albinism in the Kagera region of Tanzania.
These attacks must stop 🛑 and we strongly condemn them. We send our heartfelt condolences to the family of the child and call for more protection measures,
Standing Voice retweeted
Narika, 12 & Stephan, 15, faced discrimination at their old school. Now, their new school offers sanctuary & friendships. Narika dreams of being a lawyer, Stephan a pilot. On #AlbinismDay, UNICEF works to help children w/ albinism reach their full potential, free from stigma.
Standing Voice retweeted
Every day, people with albinism suffer serious human rights violations.
Yet, they continue to defy odds, overcome hurdles & face injustices with resilience.
Thursday is #AlbinismDay: un.org/en/observances/albini…
Standing Voice retweeted
Today we celebrate 10 years of #AlbinismDay!
@UnAlbinism highlights the progress made so far & calls for renewed commitment to ensure every person with #albinism can enjoy fully their #HumanRights & live a life of dignity, opportunity & inclusion.
ohchr.org/en/press-releases/…
Standing Voice retweeted
Happy International Albinism Awareness Day!
“We must celebrate victories of this past decade – and recognise the invaluable contributions that persons with albinism make in our communities and the world at large"
🔗 youtu.be/tjbxkp17YwE?feature…
#10IAAD #AlbinismDay
Standing Voice retweeted
It has been 10 years since the launch of International Albinism Awareness Day (#IAAD). 2024 theme is “10 years of IAAD: A decade of collective progress.”
#albinismawareness | #HumanRightsForAllPeople
@StandingVoice | @MacBainMkandawi
