Freelance Writer The Charlotte Observer Author of the award winning book, The Reluctant Donor Published in Chicken Soup for the Soul
Joined May 2012
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#AAKPPOLICY2025 -be informed and watch the passionate work being done to help kidney patients get past blocks in their care and improve treatments in the care of kidney disease. Get involved by learning how YOU as a patient can help make changes! Add your voice!
The Living Donor Protection Act is close to being passed but one of my senators has not supported it! There are 5 living kidney donors in my family ! So I called one of my senators office … and asked for his support ! Your senator works for you. #AAKPPolicy24
#AAKPPolicy24 always gives hope to kidney patients and their families! This is the AAKP 7th Policy Summit and it is humbling to see the movers and shakers in the world of kidney disease!
Suzanne Ruff retweeted
We are thrilled to announce that this year's National Patient Meeting will be held in sunny Orlando, FL! ☀️🎊
Join us Sept 25-27 for the largest kidney patient conference in the U.S.
Don't wait - register NOW. See you soon! bit.ly/AAKPNPM #KidneyPatients24
Suzanne Ruff retweeted
Come join us in Orlando, Florida, for this year's National Patient Meeting! Meet fellow patients, hear from a diverse line-up of speakers, and enjoy the surrounding amenities.
You won't want to miss it. Learn more and register today! bit.ly/AAKPNPM #KidneyPatients24
Incredible amount of information about kidneys and kidney disease at the Global Kidney Summit #GlobalKidney2024 ! If you’re concerned about your kidneys join AAKP - it will give you hope!
Did you know it is the “Decade of the Kidney”? Are you immunocompromised? The #GlobalKidney2024 is chock full of info! Join AAKP! It’s free and will give you the information you need to help your kidneys!
Suzanne Ruff retweeted
AAKP’s Paul Conway authors editorial in POLITICO on the need to make certain all kidney patients have choice & ongoing, long-term access to new innovations that protect them from healthcare-associated infections and catheter-related bloodstream infections. bit.ly/3sBYhbs
Suzanne Ruff retweeted
READ! As Congress considers change for USA transplants, patients, & donors, transplant pros say ETHICS, LAW, & PRINCIPLE must prevail. Some want to ditch altruism and put GOVERNMENT between patients & their transplant teams. NOT US! bit.ly/3NiF7iJ @ASTSChimera @AST_info
Suzanne Ruff retweeted
AAKP patients, donors, and families thank BIPARTISAN CONGRESSIONAL LEADERS for launching the LIVING DONOR PROTECTION ACT. KidneyVoters™ - America can do better! Tell Congress: stop discrimination in current/future life and disability insurance! bit.ly/AAKPTakeAction
Suzanne Ruff retweeted
READ! As Congress considers change for USA transplants, patients, & donors, transplant pros say ETHICS, LAW, & PRINCIPLE must prevail. Some want to ditch altruism and put GOVERNMENT between patients & their transplant teams. NOT US! bit.ly/3NiF7iJ @ASTSChimera @AST_info
Suzanne Ruff retweeted
AAKP patients, donors, and families thank BIPARTISAN CONGRESSIONAL LEADERS for launching the LIVING DONOR PROTECTION ACT. KidneyVoters™ - America can do better! Tell Congress: stop discrimination in current/future life and disability insurance! bit.ly/AAKPTakeAction
Suzanne Ruff retweeted
AAKP patients, donors, and families thank BIPARTISAN CONGRESSIONAL LEADERS for launching the LIVING DONOR PROTECTION ACT. KidneyVoters™ - America can do better! Tell Congress: stop discrimination in current/future life and disability insurance! bit.ly/AAKPTakeAction
Suzanne Ruff retweeted
AAKP Paul T. Conway is named for the 6th year to the U.S. Presidential Rank Awards Review Board to recommend top 1% of Federal Government Execs for White House honors. Past awardees from DOD, DHS, HHS, NASA, & more - American leadership in science and innovation. #AAKPforPatients
Suzanne Ruff retweeted
Celebrate #NationalKidneyMonth by helping AAKP expand our reach and RAISE THE PATIENT VOICE. Like us, follow us, and share us on social media! Learn more about what AAKP is doing for kidney awareness this month: bit.ly/AAKPKidneyMonth #AAKPforPatients #KidneyDisease
Suzanne Ruff retweeted
Your kidneys need water to work properly. Not getting enough -- especially if that happens often -- can cause kidney damage. How can to tell if you’re drinking what you need: wb.md/3P2jXUW
"Learn the issues, get involved, and remember this: other people will speak for you if you don’t speak for yourself. You have the power to change things." -AAKP Chair of Policy/Global Paul Conway bit.ly/PolicySummit22 #AAKPSummit22
