•Life through lupus•

The mental heaviness of chronic illness…….. That’s some hard stuff.

The challenges, the pain, the exhaustion, it all builds you into someone new. Someone stronger.

It’s hard living inside of a body that limits you. It’s a full time job. Always thinking about what is physically possible, how you’ll feel during, how you’ll feel after, and how it’ll affect you for days and even weeks after.

Just four years ago I was on zero medications. Today, I take multiple medications each morning before I start my day… and each night before I go to bed. Life can change in the blink of an eye…even for the healthiest of people. I wish more people understood that.

Nothing says chronic Illness like a hand full of pills for breakfast. 🥴

Lupus is kind of like being put in a old car with four flat tires, a overheated engine and being expected to merge onto the highway at the speed of everyone else.

Why am I so passionate about sharing my journey? Because if the warriors of this illness don’t, who will? We are the ones affected, we know how difficult this road is. It is our responsibility to bring visibility to an otherwise invisible illness. If we don’t, who will? 💜

Them: “Food is fuel” “You’ll feel so much better if you eat” “Food gives you energy” Me: Have you met my body?

Having one's symptoms dismissed by a health care professional is called “medical gaslighting,” a term that comes from Gas Light, a 1938 play that was later adapted into a movie, in which the husband manipulates his wife into questioning her perceptions of reality and her sanity.

A ER doctor once told me -he didn’t know anything about lupus and to follow up with my doctor. BUT I was sent to the ER by my doctor who didn’t understand what was causing my symptoms. 1.5 million Americans, five million people worldwide have lupus. Why is this still happening?

Doctors don’t even understand lupus.

People don’t realize that lupus is more than just a rash. Lupus is PAINFUL.

I am negative spoons at this point. — 🥄 🥄🥄🥄