TOSCiN is an NIHR funded study investigating the feasibility of a clinical trial to determine whether early or late closure is best for babies with a stoma
Manchester, England
Joined January 2020
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Disclaimer: This study is funded by the National Institute for Health Research (NIHR) Health Technology Assessment Programme (ref NIHR 128617). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.
We’re delighted the full results of ToSCiN are now available @NIHRresearch. Thank you to all those involved! @MFT_Research @NPEU_CTU @RMCH_PaedSurg @BAPS1953 @BAPM_Official journalslibrary.nihr.ac.uk/h…
Timing of Stoma Closure in Neonates (ToSCiN) retweeted
Our new paper reporting work from the @ToSCiN2 study funded by @NIHRresearch
UK neonatal stoma practice
160–200 babies/yr have stoma form for NEC/SIP
Closure 2m post formation
Large variation practice
Time for trial?
Retrospective population cohorts
@DrCBattersby, @DrCGale, @Marianfknight, @RMCH_PaedSurg
fn.bmj.com/content/early/202…
ToSCiN poster at #BAPS2022. Establishing current UK practice for neonatal stoma closure. @BAPSCongress @MedAllApp share.medall.org/posters/bb1…
Timing of Stoma Closure in Neonates (ToSCiN) retweeted
Great to hear that #Neonatal #Dietitians were involved in this consensus group for clinical research 🥳
@LynetteForsyth1 @MoNeoDietitian @Heather_Norris2
Excited to be starting our consensus meeting this morning. Lots of delegates signed up - see you shortly! @BAPS1953 @BAPM_Official @NeonatalSociety @RMCH_PaedSurg @NPEU_CTU @NeonatalSurgery
Excited to be starting our consensus meeting this morning. Lots of delegates signed up - see you shortly! @BAPS1953 @BAPM_Official @NeonatalSociety @RMCH_PaedSurg @NPEU_CTU @NeonatalSurgery
Timing of Stoma Closure in Neonates (ToSCiN) retweeted
Already my favourite Zoom call and it isn’t until Monday. Thankyou for @ToSCiN2 goodies @NPEU_CTU looking forward to establishing consensus on trial feasibility @NIHRresearch @BethDeja @trakmitch
Timing of Stoma Closure in Neonates (ToSCiN) retweeted
Our analysis in @BJSurgery of neonatal surgery & @NHSGIRFT Team from @RMCHosp @MFT_Research @bdi_oxford @FBMH_UoM | @BAPS1953 @BAPM_Official @NWNeonatalODN @NeonatalSurgery @NEWSFORTOFS @CDHUK_CHARITY academic.oup.com/bjs/advance…
Great to hear parents signing-up to the consensus meeting 4/7/22. Please join us if you can. Parental time / child care will be reimbursed. @Blisscharity @NECUK_Charity @SpoonsCharity
Timing of Stoma Closure in Neonates (ToSCiN) retweeted
Are you a parent of a child who has a stoma formed in the last three years? Bliss are supporting a study exploring when it is best to close stomas in babies. If you would like to join a talk with the researchers, find out more and show your interest here: buff.ly/3NPmssc
Parent/family input absolutely critical to this - advertisement will be via our parent advisory group and @Blisscharity networks. Please join if you can.
We need all those interested in neonatal stomas to help with this please: Nurses, Dieticians, Paediatric surgeons, Neonatologists etc. sign up at forms.office.com/r/D0AXdXLPD… @BAPS1953 @BAPM_Official @RMCH_PaedSurg
SAVE THE DATE. @ToSCiN2 Consensus Meeting 4th July. F2F in London or hybrid option. We’re looking for parents & health professionals to attend & help determine how a trial might work. Further details to follow. @BAPM_Official @BAPS1953 @Blisscharity
Timing of Stoma Closure in Neonates (ToSCiN) retweeted
Has your baby had stoma closure surgery in the last 3 years? We would ❤️to hear your views as they could inform the future timing of stoma closure for babies. Please contact @trakmitch @BethDeja or email [email protected] to take part in a telephone interview. Please share.
We’re delighted to report ToSCiN has completed recruitment, exceeding planned total of 40 infants by 16! 🍾🎉🥳 Well done and thank you to all the sites - brilliant work.
Also thanks to our Sponsor @MFT_Research, the fabulous team at the trials unit @NPEU_CTU
Timing of Stoma Closure in Neonates (ToSCiN) retweeted
Has your baby had stoma closure surgery within the last 3 years? If yes, your views could help us design a clinical trial to inform the timing of stoma closure surgery. Please contact Tracy Mitchell @trakmitch or Beth Deja @BethDeja (contact details in the picture).
Superb recruitment to @ToSCiN2 We’ve exceeded target of 40 and got to 54 🍾🎉🥳 All sites contributing - thank you for everyone’s hard work @RMCH_PaedSurg @RMCHosp @MFT_SMH @AlderHeySurgery @RHCGlasgow @SotonChildHosp @EvelinaLondon @uhbwNHS @Bham_Childrens @ChelwestFT @NPEU_CTU
Timing of Stoma Closure in Neonates (ToSCiN) retweeted
Has your baby had a stoma within the last 3 years? If yes, we would ❤️ to hear your views - they could help us design a clinical trial to inform the timing of stoma closure surgery. Please contact Tracy Mitchell @trakmitch or Beth Deja @BethDeja (contact details in the picture).
Timing of Stoma Closure in Neonates (ToSCiN) retweeted
#NSAutumn2021: Graciaa Singhal @ToSCiN2;
Data from a survey of health professional perspectives and current practice can be found here fn.bmj.com/content/early/202…