Ron Flewett retweeted
Big thanks to all the attendees at our @DHealthLDN showcase today. In particular we'd like to thank Kay Boycott our chair, Our fantastic clinician speakers Laura Lowndes & @mwickremas and our inspirational patient speaker @TriathARon
#DigitalHealthLondonTurns5
Great ride with @ActionPFsteve
Pulmonary Fibrosis Transplant Patients Support Group. Next meeting on 8 October 1600-1730. Contact: [email protected] [Photo shows group members @ActionPFsteve (5 years post-transplant) and @TriathARon (on active list) out for e-bike ride] @ActionPFcharity
Ron Flewett retweeted
“Reversing PF should be our goal. But it’s not just about finding better treatments, it’s about finding ways to identify patients with PF earlier before there is a lot of scar tissue and fibrosis.” (Toby Maher)
#PFSummit21 #PF #PFmonth #BreathingLife #pulmonaryfibrosis
Ron Flewett retweeted
To clinicians, carers, researchers and others: Join us and help raise awareness of #PF! “Awareness campaigns play an important role in getting patients to see a general practitioner and avoid delayed diagnosis.“ (Marlies Wijsenbeek)
#PFmonth #BreathingLife #pulmonaryfibrosis
Very good podcast on Pulmonary Fibrosis symptoms, very proud to be part of it
When #PulmonaryFibrosis develops, it's probably not sudden changes you instantly notice - and that's part of the problem. Learn more about recognizing the signs on a new episode of the Journeys through Pulmonary Fibrosis podcast.
Ron Flewett retweeted
There are many ways to keep fit and improve your quality of life – like Ron on his electric bike: „It has enabled me to carry on doing what I love doing.” (Ron Flewett)
#PF #PFmonth #BreathingLife #PFAwarenessMonth #qol
Ron Flewett retweeted
You can still join our free #yoga classes during #IPF Awareness Week (18-25 Sept): Connect your body, #breath and mind. Sign up here: eu-ipff.org/awareness
#PF #PFmonth #BreathingLife #PFAwarenessMonth #pulmonaryfibrosis #qol
Ron Flewett retweeted
Despite IPF being such a serious disease, there are still ways to enjoy life: "A chronic disease is an adjustment of life – not the end of it. There will have to be adjustments along the pathway." (Liam Galvin)
#PFSUMMIT21 #PF #PFmonth #BreathingLife #PFAwarenessMonth #qol
Ron Flewett retweeted
Our board and secretariat raising awareness of #IPF and challenges that still need to be addressed! Will you join us? Share a photo of you with our dedicated pin, our paper-cut #lung or share your video using #PF #PFmonth #BreathingLife #PFAwarenessMonth #pulmonaryfibrosis
Ron Flewett retweeted
Oxygen can make #breathing and exercise easier, prevent or lessen complications from low #blood oxygen levels, reduce blood pressure in the right side of your #heart, and improve your sleep and sense of well-being.
#PF #PFmonth #BreathingLife #PFAwarenessMonth #pulmonaryfibrosis
Ron Flewett retweeted
“In the next 5 years we will see a dramatic change in how we treat patients with Pulmonary Fibrosis.” - Helen Parfrey, PF Summit 2021
#PFSUMMIT21 #PF #PFmonth #BreathingLife #PFAwarenessMonth #pulmonaryfibrosis
Thank you PatientMpower for everything you do for IPF.
Watch our video interview with #IPF patient activist Ron Flewett @TriathARon exploring the impact of the pandemic on #IdiopathicPulmonaryFibrosis patients and how home monitoring of FVC & FEV1 was a “huge reassurance during COVID-19” #virtualcare hubs.la/H0V8m5T0
Ron Flewett retweeted
Ron, one of our Trustees, has been speaking to ITV Calendar sharing his concerns for clinically extremely vulnerable people who have been shielding during the pandemic and worries how this will impact them with 'freedom day' today 💜💙🙌buff.ly/3Bi9ugZ
Fantastic meeting we’ll do e everyone.
Kicking off our 7th @EU_IPFF General Assembly, reporting to our members, advisers and supporters what the European Pulmonary Fibrosis Federation has done in the past year, what we will work on in 2021 and 2022 in patient advocacy and research. We'll also elect new board members!
Ron Flewett retweeted
Kicking off our 7th @EU_IPFF General Assembly, reporting to our members, advisers and supporters what the European Pulmonary Fibrosis Federation has done in the past year, what we will work on in 2021 and 2022 in patient advocacy and research. We'll also elect new board members!
Ron Flewett retweeted
Take a look at the moving segment featured in @itvcalendar yesterday, featuring @TriathARon and Alison Cook, Chair of the Taskforce, talking about the impact of delays to lung disease diagnosis and care: itv.com/news/calendar/2021-0…
Ron Flewett retweeted
Tune in to see Ron and the Chair of the Taskforce, Alison Cook, talking about our latest press story, which you can read here: blf.org.uk/taskforce/press-r…
PF Trust Trustee, Ron Flewett, will be on ITV Calendar around 6pm this evening discussing missed appointments during the pandemic and #IPF Let's support Ron and tune in this evening! 💙💜📺
#raisingawareness #pulmonaryfibrosis #ITV #patientsupport #IPF #COVID19
Ron Flewett retweeted
PF Trust Trustee, Ron Flewett, will be on ITV Calendar around 6pm this evening discussing missed appointments during the pandemic and #IPF Let's support Ron and tune in this evening! 💙💜📺
#raisingawareness #pulmonaryfibrosis #ITV #patientsupport #IPF #COVID19
Ron Flewett retweeted
Priority #supermarket slots are going, #DeltaVariant on rampage, #Masks to become voluntary, yet #vaccine efficacy #VE for #transplant recipients unproven….Freedom Day for some but not the #cev and absolutely no #Government support #abandoned
Ron Flewett retweeted
Excellent Summit very informative
#PFSUMMIT21 Closing remarks by Steve Jones, President of the EU-IPFF - Thanks a lot to all attendees and sponsors - help us spread the news about this event and make sure to visit eu-ipff.org where we in the next couple of days will post recordings of all the sessions
