Unite is developing an all-in-one platform to bridge the gap between the rare disease community and researchers to accelerate the development of treatments and
San Mateo, CA
Joined March 2020
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Unite Genomics retweeted
Congratulations to everyone in the ALS community who worked tirelessly to make today’s approval happen! Here’s to notching many more wins from here!
Unite Genomics retweeted
Sandy,
Thank you for the enormous gift you were and continue to be for all of us.
With compassion, discipline, love, and unwavering faith in what people are capable of, you raised the bar for all of us. You spoke to everyone’s better angels. [1/9]
Unite Genomics retweeted
ALS is not just a disease of old men
Beautiful women of #HerALSstory were dx'd w #ALS b4 their 35th birthdays
May 9th is #WomensCheckUpDay & start of #WomensHealthWeek. ALS symptoms in comments but women more often affected w #bulbar onset.
#ALSAwarenessMonth #WomensHealth
So powerful. #ALSAwarenessMonth
So after a week in the ICU, I’m finally out. Not free from the hospital yet but I’m going to make it! This video we made for #ALSAwarenessMonth hits a little different now... last line and all 😭😭😭
Please RT this with all your heart. Full video on IG: @ScottFightsALS
Everyone's ALS experience is different. By completing a short questionnaire, you can receive a personalized image that you can share with your network like the example below. als.net/als-looks-like-me/ #EndALS #ALSLooksLikeMe #ALSAwarenessMonth
I didn’t know that ALS could look like my family until it was our family. It took so much from us, but it could never take away his ability to show love to those he cared about.
#ALSLooksLikeMe #alstdi #ALSAwarenessMonth #endals
👏👏👏
The CRU's @KristianaSalmon and @Genge_Angela are working with a group of internationally renowned ALS clinicians to advocate for more widespread genetic testing in ALS. Their position paper was published in @Brain1878 as a Special Commentary. #ALS #GeneChat #RareDisease
Yes!⏬️
You’ve seen us in NYC at Times Square, you’ve seen us in Chicago on the Magnificent Mile ... and now this May we are taking the ALS revolution to DC!
Click the link to help us honor you or your loved one who has or had #ALS on the National Mall in DC! bit.ly/37vhEs7
Unite Genomics retweeted
We've got a few bonus facts for you for today's #FactFriday.
-It’s estimated that between 14,000 and 15,000 Americans have ALS.
-It affects slightly more men than women.
#ALSAwareness #ALS @alsnewstoday
For veterans diagnosed with #ALS:
Did you know that people who serve in the military are twice as likely to be diagnosed with #ALS? Visit our forums to learn more and find out about resources to help veterans with ALS. buff.ly/3H3fWKs
#ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity
Unite Genomics retweeted
Join @PaganoniMDPhD and @MeritCudkowicz on Thursday 3/31 at 5 pm ET to learn about the HEALEY ALS Platform Trial and expanded access to investigational products for people who can't otherwise participate in the trial. partners.zoom.us/webinar/reg…
#ALS #MND #HealeyHope #EAP4U @MDAorg
Unite Genomics retweeted
Join us from 10 a.m. – 4:30 p.m. on Wednesday, March 30th to watch an Advisory Committee discussion on Amylyx Pharmaceuticals treatment AMX0035. This is a crucial step in AMX0035’s path toward approval in the FDA.
Register here: bit.ly/3qjCb9o
#ALSEvent
Unite Genomics retweeted
A very important milestone NRSN achieved - an FDA IND Clearance in the US, boosting the clinical program to potentially bring PrimeC faster to patients in need.
Thanks to the devoted team of NeuroSense Therapeutics for this impressive achievement!
finance.yahoo.com/news/neuro…
Unite Genomics retweeted
Please join @MeritCudkowicz, @PaganoniMDPhD and @univofkentucky researcher Ed Kasarskis, MD, PhD, for the latest news from HEALEY ALS Platform Trial plus Q&A! Thursday 3/17 at 5 pm Eastern: partners.zoom.us/webinar/reg…
#ALS #MND #HealeyHope #EAP4U @MDAorg
So much truth here. The best thing to do when you know someone needs help? Give them help. A meal dropped off at the door. A gift card. Anything! Less asking, more doing👍
"I do not ask for help. It’s my fatal flaw. I am the helper. At least, I thought I was. It took being in this particular situation to realize just how bad I was doing at being the helper." - Kara Montgomery
Wanna know the best way to help those in need? bit.ly/3H5d0Nd
Unite Genomics retweeted
Join @PaganoniMDPhD, @MeritCudkowicz, Warren Wasiewski, MD, Chief Medical Officer at @seelostx and Shafeeq Ladha, MD, Regimen E co-lead, to learn about trehalose, the newest investigational product in the HEALEY ALS Platform Trial. Thurs 3/10 at 5pm ET: partners.zoom.us/webinar/reg…
Please sign 🙏
ALS community petitions BrainStorm and the FDA to urgently determine a path forward for NurOwn - I AM ALS iamals.org/action/brainstorm…
❤
"True love isn’t perfect. And it isn’t always easy. But if fate chooses it for you – don’t hesitate – take the chance. It. Is. Beautiful. Even if I had known how it would end, I still would have picked him." als.net/news/a-love-story-20… @AugiesQuest @iamalsorg
Unite Genomics retweeted
Thousands of ALS patients wake up every morning with the hope that this drug will be approved.
Everyone is aligned - look at this coalition. All we want is @US_FDA and @BrainstormCell to move the process on the ALS clock.
2 minutes to sign. Individual actions add up.
People living with ALS deserve access to safe and effective treatments. ASAP. We are calling on @BrainStormCell and @US_FDA to work together to urgently move NurOwn, a promising treatment, through the regulatory process. Join us and sign this petition: bit.ly/3KGubrG