Ending our extended Usher Syndrome Awareness Day with @UsherKids #USHEQX
Gonna finish my Melbourne mile then have a beer to celebrate. Happy Usher Syndrome Awareness Day! #USHEQX
We own the equinox, do the impossible, make the day last more than 24 hours. There is lots of time to support @UsherCoalition today. #USHEQX
The @UsherCoalition is often called the heart of the USH community. If you want that heart to continue to exist we need your support #USHEQX
There is still time to donate to @UsherCoalition. We need your help desperately. Without it we won't be here. #USHEQX
And for the second year in a row I will walk my last mile on Usher Syndrome Awareness Day in Melbourne Australia! #USHEQX
In the last 26 days I have walked a mile in Hyannis, Wellfleet, and Sandwich on Cape Cod. #USHEQX
Walked a mile a day (at least) for 26 days. Save for one. Took 24 hours to fly here. Missed that day. #USHEQX
Getting my last mile along the river in Melbourne Australia! #USHEQX
Got my mile yesterday on the campus of UCLA in Los Angeles. #USHEQX
If you find Connections Conferences, International Symposiums, and USHTalks valuable, you need @UsherCoalition #USHEQX
If you think creating a pool of candidates to complete clinical trials for #ushersyndrome is important, you need @UsherCoalition #USHEQX















