Campaigning and researching since 2001 https://xitter.cf/t.co/rLdkp8Y3RR https://xitter.cf/t.co/rGvbqLUDym

London, England
Joined September 2015
ValproateSurvivors 🤰 #Valproate caremongerer retweeted
For just as long, thousands of women have detailed how catastrophically ill this material has made them, only to be systematically disbelieved, dismissed as hysterical, or told their chronic pain was psychological. #redress #patientsafety #notinert #misselling #avoidableharm @YvetteCooperMP @andyburnham @mariacaulfield @MHRAgovuk
For nearly two decades, the government and the medical establishment have resisted financial redress by claiming that mesh complications are simply an unfortunate, "inherent risk" of surgery. For just as long, thousands of women have detailed how catastrophically ill this material has made them, only to be systematically disbelieved, dismissed as hysterical, or told their chronic pain was psychological. #redress #patientsafety #notinert #misselling #avoidableharm @YvetteCooperMP @andyburnham @mariacaulfield @MHRAgovuk
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ValproateSurvivors 🤰 #Valproate caremongerer retweeted
Thanks to all the grandparents out there who are helping families raise healthy babies! #healthybabies #happygrandparentsday #ittakesavillage
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So far so 😃 Comment from one of our members @rebbromley
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ValproateSurvivors 🤰 #Valproate caremongerer retweeted
legalfutures.co.uk/latest-ne… Costs Judge Joseph also ordered Darren Hanison to pay the costs of the detailed assessments of six linked cases on the indemnity basis because he had “abandoned” both his clients and the proceedings. Mr Hanison was struck off earlier this year after he either admitted to or was found guilty of 17 allegations of professional misconduct, several involving dishonesty, which the Solicitors Disciplinary Tribunal said were “at the very highest level of seriousness”
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ValproateSurvivors 🤰 #Valproate caremongerer retweeted
"Language disorder was most prevalent (91.2%), followed by feeding/gastrointestinal disorders (69.8%), sleep disorders (63.2%), ADHD (33.8%), anxiety (12.9%), epilepsy (8.9%), and depression (3.0%)" link.springer.com/article/10… The comorbidity burden of kids with autism.
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ValproateSurvivors 🤰 #Valproate caremongerer retweeted
Pregnant women are the heart and soul of the NAAED Pregnancy Registry. Are you pregnant? Our research is done entirely over the phone with no changes to your routine! We need your input! Find out more here: aedpregnancyregistry.org #HealthyPregnancy #TwitterRx #obgyntwitter
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ValproateSurvivors 🤰 #Valproate caremongerer retweeted
👏With praise to all the women and men that have worked so hard whilst under immense pressure, financial hardships, increasing ill health and gaslighting. ✨Without your tenacity so much truth would be lost #FirstDoNoHarm #patientsafety #mesh #valproate #primodos
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ValproateSurvivors 🤰 #Valproate caremongerer retweeted
🚨Another year lost. Redress now for mesh & valproate and primodos families. 🚨🚨How can Regulation 20 (Duty of Candour) ever work if no one enforces it for real, documented harm? One patient’s suffering is important and yet institutions are shielded while patients lose. 🔶On 16 July, as Parliament headed for recess, mesh redress was kicked into the long grass again. 🔶Another year lost 🔶Women and children harmed by #mesh, #valproate and #Primodos wait in pain, financial ruin and broken promises. 🔶We welcomed the Hillsborough Law passing the Commons and its new statutory Duty of Candour. But we need action on redress now. 🔶Enough delays. we are exhausted by the systemic failings - 🚨 “It is a patronising and insufficiently curious way of doing business that is often at odds with the realities of helping patients heal and is increasingly out of place in a connected modern world. How to change it is still an unsolved problem. There have been inquiries, reports, and recommendations over the years, but the fundamental issues around power, justice, and compassion are still with us.” bmj.com/content/370/bmj.m309… #RedressNow #MeshInjured #Cumberlege #FirstDoNoHarm #PatientSafety #DutyOfCandour #valproate #Primodos @DHSCgovuk @PSCommissioner @jamesmurray_ldn @andyburnham @CarolineVoaden @SarahGreenLD @PreetKGillMP
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ValproateSurvivors 🤰 #Valproate caremongerer retweeted
Photo du Jour: @andyburnham meets Margaret Aspinall at the Houses of Parliament in London after the Hillsborough Law was passed by MPs. By Stefan Rousseau/PA
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ValproateSurvivors 🤰 #Valproate caremongerer retweeted
For 37 years, the Hillsborough families never gave up and they never accepted a lie. Their courage has changed this country for the better.
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Devastated to hear about this loss - another reason that patients need to be provided with full information about any risk.
Jacob Sunley was just 20 when he died. He was started on sodium valproate for epilepsy and was seizure-free for nearly three years. He changed from sodium valproate during the time that new restrictions for prescribing it to men and boys began.
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ValproateSurvivors 🤰 #Valproate caremongerer retweeted
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ValproateSurvivors 🤰 #Valproate caremongerer retweeted
The BMA has called off the unnecessary resident doctor strikes which were due to start on Monday 15 June. This is good news for patients, staff and the NHS. We'll work with the BMA over the coming days to finalise the details of the deal before it is put to their members.
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ValproateSurvivors 🤰 #Valproate caremongerer retweeted
What would have made me feel safe is a midwife listening to my concerns and not ignoring me because I was a young first time mother. There were at least 4 opportunities to save Grace, and every midwife ignored me.
'Doctors have taken over maternity, and they're not doing it very well.' Former president of the Royal College of Midwives, Caroline Flint, is 'distraught' by the news of further maternity failings in the NHS.
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