We are a meeting of equals - part of DEEP - the UK network of dementia voices

York, England
Joined April 2018
Register today! you don't need to have had a diagnosis of dementia to take part! joindementiaresearch.nihr.ac…
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Grab a cuppa & settle in with "Our #DEEP News", full of taking part opportunities and with special thanks to @SeaPowerBand & @Krankenhausfest for facilitating a donation in memory of @tonyhusband1 & launch of the DEEP creative award. Read all about it here bit.ly/40JYYhE
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York Minds and Voices retweeted
I don’t know who signed off on that multiple death @alzheimerssoc Society ad but is really misguided. It starts with a male voice saying his mum not knowing how to cook his roast dinner meant she” was dead”, which sends an awful message on every level, then goes downhill. My mum died from Alzheimer’s but only once. Everything else was a long goodbye. Painful, devastating but part of the disease. She didn’t die. Older people generally deserve dignity, everyone with dementia need it equally I wish @TimesRadio & any other broadcaster rethinks playing it. It sends the wrong message IMO
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And if you need all that to explain an ad, it must be a really crap ad. It is.
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Too right!
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but the best bit of 10 years of #MindsandVoices was captured this week by Bob picking up on the glorious feeling of coming together again. #belonging #peersupport #welcome #growth #recovery @Innov_Dementia @IMcMillan click on image to see all
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So much in 10 yrs of #MindsandVoices = not bad for a bunch of ‘dead’ people! On which note we've met & said say goodbye to Liz, Charlie, Rita, Alison, Stuart, Maria Elena, Elaine, Wendy et al who left #DEEP tracks So, on the shoulders of those giants, ‘Here’s to the next ten!’
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10 years of #MindsandVoices another highlight · Campaigning on the right to a grand day out with the late great @tonyhusband1 @IanBeesleyphoto and @IMcMillan culminating in a trip to Scarborough. idealproject.org.uk/media/un…) @Innov_Dementia @alzheimerssoc @dementiaforward #DEEP
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10 years of #MindsandVoices another highlight. putting together and delivering the first ever ‘Good Life With Dementia’ course: youtube.com/watch?v=XRS4Aha0… @Innov_Dementia @KateSwaffer @doryitsme @TraceyShorty28 @Clareycoco @elhijodevera
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Looking back on 10 years of Minds and Voices in the #DEEP network - some great achievements. Like OUR dementia strategy - still valid but yet to be heeded locally! dementiavoices.org.uk/wp-con… check it out @george_rook @GailGre59728262 @NorthYorksHCP @M_Wilberforce
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Well this week we had our 10th Birthday - here with our fab banner our OG's - the Three Tenners @Innov_Dementia @GailGre59728262 @george_rook @doryitsme
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We like it too!
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Replying to @YorkMandV
It’s a wonderful read, and the building block of more research. The description of carrying out a #litreview is a must read!
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A wonderful achievement by #SUNshiners @kmptnhs and @DrRAshworth - people with dementia in the driving seat of research #DementiaEnquirers with thanks for funding from @TNLComFund
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to sign up for the Zoom meeting email [email protected]
On 25th April we launch the independent report into the #DementiaVoices prog funded by @TNLComFund @TommyShakes shares his findings & recommendations The Evaluation Advisory Group of ppl w dementia share how they led the process from recruitment to approving the report book here
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Yes! as J, one of our members says, 'Sometimes i just can't be a#*€d' !!
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York Minds and Voices retweeted
Got your hanky? My #WellIKnowNow swansong with the wonderful @suzysopenheart is out. We talk about the death of Suzy's mum who lived with #dementia & what Suzy plans next. Heartfelt, genuine, moving. Listen here: pippakelly.co.uk/podcast/suz…
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York Minds and Voices retweeted
People can and do live on their own with #dementia and without informal support. A series of new resources offers advice to enable this, including guidance for people living with dementia, commissioners and people working with people with dementia: livingalonewithdementia.co.u…
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