Mark Jackson (@_MarkJackson_) profile picture

Director of Policy & Influencing @PSPAssociation | formerly @mariecurieuk | Views my own |

Joined May 2020
Photo by Mark Jackson (@_MarkJackson_)Photo by Mark Jackson (@_MarkJackson_)Photo by Mark Jackson (@_MarkJackson_)Photo by Mark Jackson (@_MarkJackson_)Photo by Mark Jackson (@_MarkJackson_)Photo by Mark Jackson (@_MarkJackson_)Photo by Mark Jackson (@_MarkJackson_)Photo by Mark Jackson (@_MarkJackson_)
Only 1 in 5 people get #NHS Continuing Healthcare (CHC) funding, with postcode lotteries making access unfair. We’re supporting Dementia UK's call to #FIXCHC for fairer assessments and funding. Sign @DementiaUK petition: ow.ly/S90x50Z6CJ9 #healthcare
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Last week’s Budget was a missed opportunity to address huge gaps in funding, care and support for people living with PSP & CBD, who are impacted by every decision not to invest in social care.
This week we urged the Chancellor to remember the real #FiguresThatMatter in her Budget. Yet, today’s announcement failed to address the huge barriers to care and support, and the serious funding shortfall. Read our full response here: careandsupportalliance.com/r…
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Welcome to see funding for 250 new Neighbourhood Health Centres in the Budget last week. But as @NeuroAlliance highlights, too many people with conditions like PSP & CBD are still waiting too long for care and support. #ActNowForThe1in6 #TheBudget
Our Statement on the Budget: 26 November 2025 linkedin.com/pulse/our-state… #ActNowForThe1in6
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Stephen and Susan were declined CHC Funding earlier this year. Stephen believes they weren’t eligible because they’re managing by themselves, despite the stress and financial burden. Read their story pspassociation.org.uk/pspand… and how you can help #FixCHC by writing to your MP
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At our recent Leeds Friends & Family Day, Laura explained how Occupational Therapists can help and how day-to-day activities are assessed to maximise independence for people living with PSP & CBD. #OccupationalTherapy #FriendsAndFamilyDay #OccupationalTherapist #PSPASupport
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PSPA CEO Rebecca Packwood introduces the launch of the #MyNeuroSurvey from @NeuroAlliance . Fill the survey in as someone living with PSP/CBD or as a carer. Take the survey here: revealingreality.welcomesyou… #PSPA #NeurologicalConditions #MedicalSurvey #ShareExperiences #PSP #CBD
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AWARENESS GRANTS DEADLINE APPROACHING! The deadline for the PSPA Awareness Grants is fast approaching on 31st July & there is £8,000 to award for 2024. Apply here: pspassociation.org.uk/awaren… #PSPASupport #AwarenessGrant #RaiseAwareness #PSPAware #AwarenessCampaign #TeamPSPA
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Challenges and priorities for the #PSP and #CBD community: Insights from Mark Jackson from @PSPAssociation. Read at bit.ly/4cSTXWO #PressRelease
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Last year we launched our Awareness Raising Grants. This year we have £8,000 to award and the deadline for applications is 31 July. For more information and how to apply: pspassociation.org.uk/awaren… #PSPASupport #AwarenessGrant #RaiseAwareness #PSPAware #AwarenessCampaign #TeamPSPA
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A quick reminder of our #WeCare campaign. We are calling for a better deal for unpaid carers. Share your experiences with your local MPs, on social media and beyond! Resources: pspassociation.org.uk/awaren… #progressivesupranuclearpalsy #corticobasaldegeneration #supportforcarers
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Today marks the first day of Carer’s Week 2024. There are six million plus unpaid family and friend carers in the UK. PSPA will highlight our useful services and resources available to carers. #CarersWeek #Carers #PSPASupport #PSP #CBD
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On Monday, Mark Jackson, our Director of Policy and Influencing, spoke to BBC Three Counties Radio about our #WeCare campaign which launched on 3 June. Listen top Mark talk about PSPA, PSP & CBD and how people can get involved at 2:38 into the show. bbc.co.uk/sounds/play/p0hycn…
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Thank you @RareRevolutionM for sharing our #WeCare campaign and spreading the word.
PSPA, the UK charity dedicated to supporting people living with progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) has launched a new awareness campaign called #WeCare, backing calls to improve the support available for unpaid carers. rarerevolutionmagazine.com/u…
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New Podcast. In this special Volunteers Awareness Week episode we’re speaking to Sally Reynolds. Sally runs the Hampshire Support Group and is also a Link Volunteer. Listen: pspassociation.org.uk/wp-con… #PSPAPodcast #Podcast #VolunteerAwarenessWeek #Volunteers #PSP #CBD
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Our #WeCare campaign calls for a better deal for the family and friends who care for people living with PSP & CBD You can show #WeCare by writing to your local Election candidates and asking them to support #WeCare campaign if they’re elected this July. pspassociation.org.uk/awaren…
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There is still time to register for our free Family and Friends Day in Leeds. During the day you can connect with other families affected by PSP & CBD, hear updates from Dr Tim Rittman and take part in a Royal Ballet seated exercise class. eventbrite.co.uk/e/pspa-fami…
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We're looking for a creative and ambitious individual to join us as the Corporate and Community Fundraising Manager. If you enjoy building relationships, looking for new opportunities and working as part of a supportive team, we want to hear from you! pspassociation.org.uk/about-…
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Today is Advance Care Planning Day. This awareness day is to highlight the importance of advance care planning. PSPA has the Advance Decision Guidance Notes for people living with PSP & CBD. Download: pspassociation.org.uk/wp-con… #AdvanceCare #PSPAResources #AdvanceCarePlanDay
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We had an amazing day at the London Marathon yesterday! We want to send a MASSIVE thank you to all of our #TeamPSPA runners who did themselves and PSPA proud. Together they have raised almost £170,000 for PSPA! Thank you! Support our team, here: justgiving.com/campaign/team…
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