A multi-stakeholder initiative dedicated to putting rare cancers firmly on the European policy agenda
Joined January 2014
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Rare Cancers Europe retweeted
Osteosarcoma remains a disease with an unmet therapeutic need and imperfect risk stratification biomarkers.
In Annals of Oncology, @samuelabbou and coll. report on ctDNA quantification using lpWGS as a prognostic biomarker in the OS2006 phase 3 trial annalsofoncology.org/article…
Rare Cancers Europe retweeted
Perception of cancer by pts is based on organ-of-origin without mechanistic consideration. @AliceFranzoi et al explain why cancer representations should evolve toward comprehensive portraits that include biology. This is a task of the IHU @PrismCenter annalsofoncology.org/article…
Rare Cancers Europe retweeted
In Annals of Oncology, investigators report on a clinico-genomic analyses of 1817 KRAS-mutated lung 🫁 adenocarcinomas, shedding light on genomic alterations 🧬 associated with outcome, towards a clinico-genomic risk stratification annalsofoncology.org/article… #LCSM @DanaFarber
Rare Cancers Europe retweeted
The safety results of durvalumab/tremelimumab/enfortumab vedotin #EMUC22 Alexandra Drakaki. Neoadjuvant triples for the VOLGA randomised trial! Ambitious!! The combo appeared safe with no clear ⬆️ skin, liver or neuro tox. pCRs in 6 downstaging in 9. The R3 is enrolling globally
Rare Cancers Europe retweeted
New 📢 #Salivaryglandcancer: ESMO Clinical Practice Guideline for diagnosis, tx & follow-up. Clinical & pathological diagnosis, staging & risk assessmt, & managemt. Tx algorithms given.
ow.ly/Hr0050LsUPO
@Carlavanherpen @_rarecancer @ERN_EURACAN #rarecancer @ESMO_Open
Rare Cancers Europe retweeted
Risk reduction & screening of cancer in hereditary breast-ovarian cancer syndromes: ESMO Clinical Practice Guideline. Developed by multidisciplinary team incl. patient reps, w/ framework 4 managing clinical setting restricted by limited quality data.
ow.ly/sBbi50Lk3z1
#HBOC
Rare Cancers Europe retweeted
Great seeing all participants at today's session with some excellent discussions on topics around the European #rarecancer policy landscape, & looking foward to tomorrow's session on #rarecancers in the new #COVID-19 era.
👉ow.ly/ZNt450HGejM
@ESOncology @myESMO @casali_pg
Rare Cancers Europe retweeted
Interested in opportunities for #rarecancer patients from digitalisation? Join the RCE-ESMO-ESO Training for #PatientAdvocates session (10 Feb) ‘#Cancercare: ensuring digitalisation benefits rare #cancer patients’.
Registration 👉 ow.ly/ZNt450HGejM
@ESOncology @myESMO
Rare Cancers Europe retweeted
Don’t miss the second session of the RCE-ESMO-ESO #RareCancer #PatientAdvocates Training Course taking place on 9 February, ‘Rare cancers in the new #COVID19 era’.
Registration 👉 ow.ly/ZNt450HGejM
@ESOncology @myESMO
Rare Cancers Europe retweeted
Calling all patient advocates interested in rare cancers
📣 Register for the RCE-ESMO-ESO Training Course for #RareCancer #PatientAdvocates session (8/02) to get the latest info on the #EUCancerPlan and the #EUCancerMission’
👉 ow.ly/ZNt450HGejM
@ESOncology @myESMO
Rare Cancers Europe retweeted
Our take: don’t merge ‘rare cancers’ as a single entity in clinical studies! A therapy may be effective in one or some (rare) cancers (or, agnostically, against one target): ‘rare cancers’ are a political/methodological priority, not a therapeutic label… annalsofoncology.org/article…
Rare Cancers Europe retweeted
It’s not too late to register for the free 6th ESO-ESMO-RCE Clinical Update on Rare Adult Solid Cancers. Submit questions now before the Live sessions on 29/30 January or watch pre-recorded sessions.
Learn more - bit.ly/3A5p6US
@myESMO @_rarecancer @ESOncology
Rare Cancers Europe retweeted
🚨 The second part of the ESO-ESMO-RCE Clinical Update on Rare Adult Solid Cancers is near!
✍️Send your questions to [email protected], no later than JANUARY 18, 2022. Speakers could select yours! bit.ly/313xbMB #oncoalert @myESMO @_rarecancer #rarecancers
Rare Cancers Europe retweeted
If you have not caught up with our podcast 'A Brain Tumour and Me' check it out now. New episode dropping soon! #BTSM #BrainTumorThursday theibta.org/category/podcast…
Rare Cancers Europe retweeted
Treatment with injections of Zika virus destroys brain tumors in mice without causing neurological damage #BTSM medicalxpress.com/news/2022-…
Rare Cancers Europe retweeted
#ERNs must be supported by integrating high-quality, consensus-driven clinical practice guidelines to help assist both #oncology professionals face the challenges of #rarecancers, and improve #rarecancer patient outcomes ow.ly/sNmq50Hb35A
#RareCancers in all policies: "It is vital to integrate robust, evidence-based clinical practice guidelines at #ERN level to help bring state-of-the-art care to pts w/ #rarecancer & serve clinical decision-making in conditions of uncertainty" @curijoey
ow.ly/txjh50HgcGV
Rare Cancers Europe retweeted
The novel technologies of #AI and Big Data can advance potentially life-saving research and use of information efficiently to underpin long-term follow up care as well as to understand the causes of #childhoodcancer.
Read the SIOPE Strategic Plan Update: siope.eu/media/documents/sio…
Rare Cancers Europe retweeted
#RareCancers in all policies: "It is vital to integrate robust, evidence-based clinical practice guidelines at #ERN level to help bring state-of-the-art care to pts w/ #rarecancer & serve clinical decision-making in conditions of uncertainty" @curijoey
ow.ly/txjh50HgcGV
Rare Cancers Europe retweeted
Pre-recorded sessions of the 6th ESO-ESMO-RCE Clinical Update on Rare Adult Solid Cancers are available online from today! Register for FREE and start to improve your knowledge on diagnosis and treatment of these tumors. bit.ly/313xbMB @myESMO @_rarecancer #rarecancers
Rare Cancers Europe retweeted
#RareCancers in all policies: @jeanyvesblay on why our call-to-action includes the need to create well-functioning networks at each Member State level to be connected to the rare cancer ERNs @ERN_EURACAN @ERNEuroBloodNet & GENTURIS
ow.ly/ZoKX50GWUkK (pdf) #EUCancerPlan