We are specialists in patient engagement and patient access in research, development and access to treatment, medical devices and services.
Europe - DE, ES, NL, FR
Joined May 2018
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admedicum retweeted
YOU'RE INVITED!!
✅🇮🇹 #conSLAncio, @admedicum, #APaIM, @EUPATI_IT are thrilled to invite you to the upcoming event of Networking Patients & Industries focusing on psych support in #Milan on Oct 9!
#Free sign-up➡️tinyurl.com/58bkea49
#ALSMNDWithoutBorders #patientengagement
admedicum retweeted
YOU'RE INVITED!!
✅🇮🇹 #conSLAncio, @admedicum, #APaIM, @EUPATI_IT are thrilled to invite you to the upcoming event of Networking Patients & Industries focusing on psych support in #Milan on Oct 9!
#Free sign-up➡️tinyurl.com/58bkea49
#ALSMNDWithoutBorders #patientengagement
admedicum retweeted
Every year, we celebrate June 21 as the Global ALS/MND Awareness Day. 🌍 ow.ly/E6eN50Rzhmq
#ALSMNDWithoutBorders #ALSIceBucketChallenge #MNDIceBucketChallenge
🗣️Parents, relatives & assistants of young SMA patients wanted (German)!
‼️ UPDATE: Der Termin des Workshops steht: 30.11.2023🗓️
Wir suchen noch Eltern, Angehörige/Assistent*innen, die #SMA-Betroffene durch die #Transition begleitet haben🧡Anmeldung: [email protected]
🗣️ We are looking for German-speaking young people with #SMA & relatives/carers for an online workshop! #spinalemuskelatrophie #spinalmuscularatrophy
Bastian who lives with #spinalmuscularatrophy is launching the organisation #mallorca for everyone (services for #barrierfree holidays). We know him as a committed member of SMAlltalk – a platform for which we create content. #InternationalDayOfCharity
is.gd/qMr7NY
For his German speaking podcast “Pinkelpause” the urologist Dr.Christoph Pies invited our colleague Dr.Vera Vennedey to discuss the relevance of #patientpreferences in the treatment of #benignprostatehyperplasia (#bph).
🎧Listen to it on Spotify:
open.spotify.com/episode/5FA…
#prostata
On SMAlltalk, German speaking people affected by #SpinalMuscularAtrophy (#SMA)& #caregivers talk about everyday life with their #raredisease – in videos, podcasts or reports that we create together with them.
🔊This Saturday, the platform will host a #liveevent at 2pm🗓️🩵
Have you listened to our #podcast yet? If not, it's high time you did. 😉
Get to know more about #PatientEngagement in #LifeSciences from our very inspiring guests & listen to "PATIENTS ON THE MOVE":
🔊 open.spotify.com/show/1LFzpX…
#PatientsOnTheMove
#healthcaresystem
admedicum retweeted
✅🇮🇹 🌎#conSLAncio, in collaboration w/ @admedicum, @AipiOdv & EuropaUomoItaliaOnlus are thrilled to invite you to the First Italian Event of Networking Patients and Industries in Milan on 26 Sept.
Free sign-up: tinyurl.com/4jahkf24
#patientengagement #ALSMNDWithoutBorders
admedicum, in collaboration with the associations @ConslancioOnlus @AipiOdv and Europa Uomo are thrilled to invite you to the First Italian Event of Networking Patients and Industries in Milan on 26 Sept.
Learn more and register here: admedicum.com/networking-paz…
#patientengagement
We are very pleased to welcome Dr. Helen Schoenborn, a talented #sociologist & #psychologist to our #team🙌
Helen holds a PhD in #sociology of emotions & is a true #linguistictalent: She studied in several countries & is fluent in 6 languages🌎
admedicum.com/employees/dr-h…
#talent
In latest episode of the #PatientsOnTheMove podcast, host Roger Legtenberg sits down with Jaime Michele Sanders, aka 'The Migraine Diva'. Join this conversation as they delve into #medicalGaslighting, stigmas in #migraine disorders, and counter strategies🔊open.spotify.com/episode/2rG…
Today we honor the strength and resilience of the families and individuals living with Dravet Syndrome, their daily battles, their enduring hope. Today we share their stories to foster empathy and fuel the ongoing research for a cure
#DravetAwarenessDay, #curedravet #rarediseases
We would like to invite German #IgAN & #FSGS patients/relatives to a moderated exchange💬 That way we want to learn from you about living with the disease & understand what is important to you💡Please fill in the questionnaire: eu.research.net/r/IgAN_FSGS_… #nierenkrank #morbusberger
admedicum retweeted
Have you heard of motor neurone disease (#MND)?
It’s a disease that kills a third of people within a year, and more than half within two years of diagnosis.
It kills six people a day.
It has no cure.
On #GlobalMNDAwarenessDay, put #MNDOverMatter and help us raise awareness!
ALT An MND Association infographic highlighting the key facts about motor neurone disease.
Today is Global ALS/MND Awareness Day 2023! Hear EUpALS member associations express the need for further collaboration. Video subtitled in English #ALSawareness
youtube.com/watch?v=Hci3IPGl…
Last week, the whole international admedicum #team came together to discuss strategic topics in the Eifel, in Germany, in a beautiful monastery complex. 💬
#klostersteinfeld #strategyday #strategymeeting
Detecting & treating hepatitis infections before it is too late: We are happy to be part of the initiative "Hepatitisfreies-Köln" (#hepatitis-free #Cologne) lead by Deutsche Leberhilfe e.V.
☞ hepatitisfreies-koeln.de.
Read more in the press release: lnkd.in/eUjTm8-S
admedicum retweeted
⚠️URGENT: Important update on @EMA_News #CHMP review of @AmylyxPharma's #AMX0035 for treatment of #ALS #MND in #Europe🇪🇺📰➡️tinyurl.com/2p96uzjk
We strongly urge the CHMP to grant conditional approval of AMX0035 in Europe immediately!
ALS DOES NOT WAIT! #ALSMNDWithoutBorders
