Living the horror and wonder lurking behind the usual surface of health. I play with words in bed. Book and tea hoarder cliche.
Portland, OR
Joined January 2008
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Michelle retweeted
Reading John Berger, thinking of Ghassan Kanafani’s “Letter From Gaza,” and listening to Moustaki. There is no way out of hauntology at this point. Any future we imagine will have to include the dead.
Michelle retweeted
It would be very Anne Carson to write a poem which analogizes winning the Nobel to Catullus’ amorous use of the sparrow, as narrated by a pilgrim en route to salute the relics of a saint created by wind. In an apocryphal text.
Michelle retweeted
In 3weeks I turn 32.
I’ve never had a relationship. Never been on holiday with friends. Never finished my education. Never been out to work. Never lived away from family. Each year my 🌍 gets smaller.
It’s 2yrs since I ate a meal.
16years since I went out on my own.
I have #MECFS
Michelle retweeted
@njfatigue explored Chicago, IL and set out to discover what’s in a name? We wanted to know if anyone knew what ME/CFS is? Do they know how serious it can be? Do they know the terms Myalgic Encephalomyelitis and Chronic Fatigue Syndrome? Let’s find out.
#notjustfatigue #mecfs #pwme #myalgice #myalgicencephalomyelitis
25 yrs ago when I was 1st dx w/#mecfs, I saw a woman say she prayed Kaddish for her old healthy self. At the time I thought *I'm not dead!* Except in a way I was. It took 17 years to accept that & so relieved now to have done so.
“Most of us know what #grief is supposed to look like..There’s a name for it, a shape to it, permission built into the word itself. The grief that comes with #ChronicIllness rarely gets that same recognition, even from the person living thru it”: buff.ly/jOpSIz3 #NEisVoid
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Michelle retweeted
More people should know that The Atlantic's editor-in-chief is an American who volunteered to become an IDF prison guard.
In his memoir, he admitted to covering up serious prisoner abuse of Palestinians.
Wallace Shawn’s resurfaced rant about Israel shows just how normalized anti-Semitism has become, @jkirchick argues: theatlantic.com/ideas/2026/0…
Michelle retweeted
We are delighted to bring you a new campaign at the request of our amazing caregiver volunteer Denise Lopez-Majano. Denise is turning 70 & wants to help spread kindness throughout our community - 70 acts of kindness by Dec. 7th! Details: meaction.net/post/70-acts-of…
#pwME #caregiver
Michelle retweeted
Here's my interview with Guardian columnist George Monbiot about his recent column on the awful treatment of people with ME/CFS: virology.ws/2026/10/01/trial…
Michelle retweeted
Chronic illness is just:
"here's a referral
to get another referral
to get another referral
to get another referral
to get another referral"
until you get medical fatigue
Those eyes! So adorable!
Amidst the displacement camps in Gaza, a father creates a moment of joy for his daughter—fashioning a cardboard playhouse inside their tent to shield her from the harshness of their circumstances and bring a smile to her face—offering a profound example of resilience and hope born from the heart of suffering. The children of Gaza deserve a life; they seek safety and peace.
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Michelle retweeted
Today should've been Dr. Refaat Al-Areer's 47th birthday, but Israel assassinated him.
A professor who has epitomised the quintessential levels of knowledge, honour, and dignity.
An inextinguishable light for Palestine and the world. May Allah place him in the highest heaven.
Michelle retweeted
Friendly reminder that 56% of Israeli Jews want to expel all 2,000,0000 Palestinian citizens of Israel.
haaretz.com/israel-news/2025…
Yes, this is indeed why I'm spending less and less time reading about politics. So little asking of "yes...but why?"
"If you fear that you will miss something by not reading this style of essay, let me assuage your concerns. Here is the advice you will get in every single one: “My opponents should be more like me.” There you go. Never say I haven't saved you time..."
znetwork.org/znetarticle/don…
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Mysticism has been on my mind of late (behindthesurface.com/2026/01…) so I loved this review of Claire Carlisle's new book Transcendence for Beginnings. Looking forward to reading it! The Stretch of a Soul thepointmag.com/criticism/th…
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Yes, not just a life inside #chronicillness but a life literally *inside*--a bedroom, a home, a dr office. A life that is not exclusively tragic but resilient, hilarious, & yes, beautiful. Thank you, David!
David joined #MillionsMissing with his wife Shaina who is a #pwME. He shares that it is a beautiful life but that it involves grief for the life they hoped hoped for. Full video on YT.
Take action for disability marriage equality w @DREDF. dredf.org/marriage-equality-…