@carrainc

We conduct collaborative research to prevent, treat and cure pediatric rheumatic diseases. A world free of limitations from pediatric rheumatic diseases.

 Washington, DC
carragroup.org
Joined April 2016
  • Tweets2.2K
  • Following979
  • Followers1.1K
1.1KMedia
💙 Today is World Young Rheumatic Diseases Day (aka World JA Day)! 💚 Please join us in recognizing the kids who face these complex diseases with courage, resilience, and hope. 🙌 Check out our video to highlight their experiences! ➡️ youtu.be/hfBbughHycg #WORDDay2024
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🌟 We’re proud to showcase Lauren Covert, M.D., of @dukemedicine and her research using bioengineered human muscle to understand mechanisms of juvenile dermatomyositis​ (JDM).
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💙 National Estate Planning Awareness Week is a reminder to create an estate plan to protect your loved ones and support the causes close to your heart.🫶🏽 If you’d like to include CARRA, a 501(c)(3) non-profit, in your estate plan, reach out to Caitlin Williams at CARRA.
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🙌 We're proud that our patients and caregivers play an integral role in research, such as this important project led by Daniel Horton, MD, MSCE, of @RutgersU University. Read more about CARRA research here ➡️ carragroup.org/wp-content/up…
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💜 Patient and caregiver voices were one of the highlights of the Pediatric Lupus @FDA Workshop that CARRA helped organize to accelerate drug development. Shout out to @LADAOrg for empowering patients and families for this - and so many other - important opportunities!
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🌍🎉 A BIG win for African paediatric rheumatology! This #WorldArthritisDay, we celebrate our 4th Management Guideline, focused on SJIA! ❤️🩺 Together, we turn evidence into action #NoChildIsLeftBehind! 📖 Read: link.springer.com/article/10… #ChildhoodArthritis #GlobalHealth
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💙 If you’re a patient or family member affected by a pediatric rheumatic disease, please consider becoming a member CARRA – at no cost. Your perspectives can help shape the future of pediatric rheumatology research. 👉 Learn more and join us: carragroup.org/membership/be…
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👋 Hope to see everyone at #ACR26! I'm looking forward to soaking up all the latest in #rheumatology and sharing on socials as a #ACRambassador!
American College of Rheumatology
@ACRheumOct 14
ACR Convergence is coming to Orlando! Join us where rheumatology meets – November 6-11.

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Thank you to @jrheum for sharing this important research into the clinical characteristics associated with initial TNFi nonresponse in patients with juvenile spondyloarthritis (JSpA). Congrats to the authors! #spondy #pedsrheum
The Journal of Rheumatology@jrheumOct 15
Research Article Clinical Disease Manifestations Associated With Tumor Necrosis Factor Inhibitor Nonresponse in Juvenile Spondyloarthritis 📖 jrheum.org/cgi/content/full/… @IndianaUniv @RileyChildrens @GWSMHS @carrainc #Pediatric #RheumaticDiseases #Spondyloarthritis
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✨Meet Alaina Davis, MD, MPH, of @VUMChealth in our latest Member Spotlight! ✨ Dr. Davis was nominated not only her dedication to providing the highest standard of care, but also her compassion. Read more: carragroup.org/blog/membersh…
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Join us as we celebrate and congratulate the 2026 recipients of the ACR Master designation! 🌟 VIEW → acr.tw/4jdqLAo #ACR26
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🌎 On #WorldArthritisDay, we want to highlight how CARRA physicians, researchers, families, and partners are working together toward a world where every child with arthritis thrives. Learn more 👉🏽 carragroup.org/wp-content/up… #pedsrheum, #rheumatology, #ArthritisAwareness
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🧠 Did you know that #mentalhealth problems (e.g. anxiety and depression) are more common in kids with rheumatic diseases? It's not surprising since they often struggle with physical limitations, chronic pain, and the burden of managing their condition. #mentalhealthmatters
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💙CARRA researchers are working to find better ways to address mental health concerns. CARRA’s Mental Health Workgroup, including patients and families, helped develop the first evidence-based consensus guidance statements for mental health in youth with rheumatic disease.
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These were endorsed by the American College of Rheumatology and published in Arthritis Care & Research.acrjournals.onlinelibrary.wi… #WorldMentalHealthDay, #mentalhealthmatters, #mentalhealth, #mentalhealthawareness

American College of Rheumatology Guidance Statements for Addressing Mental Health Concerns in Youth...

Objective Pediatric rheumatologic diseases (PRDs) are characterized by high rates of anxiety and depression known to impact health-related outcomes. We present guidance statements to assess and...

acrjournals.onlinelibrary.wiley.com
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💙 Have a donor-advised fund? Your DAF can help advance pediatric rheumatology research. Recommend a grant to CARRA through your donor-advised fund. Log in to your DAF account and search for: Childhood Arthritis and Rheumatology Research Alliance EIN: 46-4152355 #DD3, #DAFDayIII
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💜 Patient and caregiver perspectives were so essential to the recent Pediatric #Lupus @FDA Workshop! Thank you to @LADAOrg for empowering patients and family members to share their insights! 🙌
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✨We're proud to share these highlights from researchers who are working toward a world where every child with rheumatic disease thrives. 💙 Read more in our Annual Report ➡️ carragroup.org/.../08/CARRA_…
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Meet the ACR Social Media Ambassadors! Follow along as these rheumatology social media stars get ready for ACR Convergence 2026. Discover their must-see sessions, join them at the meeting experience, and get a first-hand look at what the #rheum community is all about! Find and follow them here → rheumatology.org/social-medi… #ACR26 #ACRambassador
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Kudos to Elizabeth for sharing her impactful #Carepartner journey with Miah. @CaringForLupus
CARRA@carraincOct 5
💜 Patient and caregiver voices - such as Elizabeth SantaCruz - were a highlight of the Pediatric #Lupus @FDA Workshop. Thank you to @LADAOrg for empowering patients and family members for this - and so many other - important opportunities! 🙌
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💜 Patient and caregiver voices - such as Elizabeth SantaCruz - were a highlight of the Pediatric #Lupus @FDA Workshop. Thank you to @LADAOrg for empowering patients and family members for this - and so many other - important opportunities! 🙌
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