autoimmune patient advocate + founder @telltalehealth ~ unstoppable force ~ interested in many things!
sf
Joined June 2023
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also! big news, i leaned last week that my Crohn's is in remission :') my gastro was shocked by how good my results were
it took me almost 2 years to go from incorrect autoimmune dx -> Crohn's dx -> medication that works. tbh i started thinking i'd never get out of it.
as more and more treatments become available, it becomes pertinent that we quickly and effectively identify treatments that will work for a given person's autoimmune disease, and then effectively coordinate that care.
anything less is a failure to patients.
it's a crime that we let people feel like shit for years living with undiagnosed conditions that have treatments. and then even post-diagnosis finding the correct treatment. i had to try 5 biologics, 3 NSAIDs, and a DMARD before finding the drug i could be stable on for longer than 2 months.
:')
a good partner takes away the need to impress anyone, and that frees you to go chase the stuff youd normally be too embarrassed to try. no more cringe tax. the doubt and anxiety go away and you get unrelenting support from someone you care about. creative stuff, business, what you wear, any dying dream. who cares whos checking you out (or judging you) when you already have your person. who cares what your friends think when you have someone who will ride with you to the end of the earth. you stop caring what anyone thinks. except them. and if theyre the right one, theyll be there for you no matter what. infinite confidence glitch.
extension: identity shifting is real and you can become any type of guy (gender neutral)
the task is then to figure out from an information environment presenting infinitely many options the type of guy you want to commit to becoming
the best way i can describe this is that you start experiencing dysphoria when you act incongruently with the new identity that you’re aligning with. and that’s just a much easier way to change than using willpower to fight the unwanted identity every day
xitter.cf/charmcgi/status/210730…
fyi tnf inhibitors can improve depression in individuals with higher inflammatory load (in this study, measured by crp)
girl this literally happened to me with my depression when i went on tnf inhibitors
pubmed.ncbi.nlm.nih.gov/2294…
this is the first time i’m doing a proper recomp and just in the beginning of seeing results, and it’s fascinating to me how different this is from the experience of losing weight just to have lower number on scale
latter makes me behave smol and cutesy, whereas this makes me feel expansive? like life feels bigger, i’m happy and excited to be seen rather than feeling like this tiny thing that’s hiding away. i feel more real and less like an ideal image i’m trying to chase.
if you’ve followed me for awhile you may have picked up on this: before / after photos are one of my favorite post formats on the internet. they give me a sense of hope and possibility when things feel bad and regressions happen. as long as you’re still alive you can keep going.
you can just do things over a very long period of time despite health setbacks, you just gotta keep going 😤
xitter.cf/charmcgi2/status/15625…
