Bill Clayton retweeted
Wes Streeting wants GPs to stop writing so many sick notes and send people to the gym.
Worth remembering Brynmor John MP had #MECFS and died on Westminster Bridge in 1988 after exercising in the House of Commons gym. He had been advised to exercise his way back to fitness.
Bill Clayton retweeted
People in the UK with Long COVID and ME:
Where @BethDobbin is bringing the smoke, let there be fire:
Now is the perfect time to arrange an in-person protest to show Downing Street the visual of how many people are affected by this illness, and also bringing attention to the current mistreatment of Savannah Victoria-May at Queen Elizabeth Hospital.
Needed to lead the organization are 2-3 patients and the same number of healthy (or mild) people committing just 4-6 hours a week.
Organizers in the Netherlands just pulled off a successful protest vigil, leading to numerous news stories, talk show program discussions, and finally forcing parliament's hand to pass a motion for action.
I have confirmed with the Dutch organizers that they are willing to consult and share their entire playbook.
The template is there. The moment is ripe. The next step is for willing organizers to take the lead.
Please DM me or reply if you have any interest in capitalizing on this historic moment (even if you're unsure - we can talk through it!) I will connect all those interested and we can let structure emerge organically.
For those that don't have the capacity, you can greatly help by spreading the word or connecting me with people that may be interested in organizing.
Chronic fatigue patients spent decades being dismissed, underfunded and told to exercise more. Long Covid is helping scientists discover what was really happening to them. Read more: bloom.bg/4AdxmzZ
📷: Brannon Richardson/Glemati Road Pictures
Bill Clayton retweeted
Suggestion for MP's induction.
Live one week on UC with no extras.
Spend a day in a wheelchair including at least one journey by public transport.
Put in a shift at a homeless shelter.
Help out in a care home for the elderly for a day.
This might help their understanding as MP's
Bill Clayton retweeted
We need an honest debate about welfare, not one built on myths and misinformation.
The repeated claim that people receive PIP for mild anxiety simply isn't true. PIP is assessed on someone's ability to carry out everyday tasks, not on their condition or diagnosis.
Bill Clayton retweeted
Four of @CityofYork elected members are blue badge holders. Full Council normally held on a Thursday has been moved to next Wednesday before access is removed in it’s entirety at the top end of the city & the Blake St/Lendal loop closed to BBH for 6 weeks from 12/11.#ClosedToUs
Bill Clayton retweeted
A massive well done to @BethDobbin on @GMB this morning, making clear how badly ME has been neglected and fighting her socks off for the community (despite the personal cost)🔥
We hope @edballs prediction proves right and that she hears from Downing Street very soon.
Bill Clayton retweeted
“This health issue has nothing out there for you… There are specialist clinics, but they don’t have any doctors… It’s life decimating. I’m in bed 22 hours of the day”
Former Olympic sprinter @BethDobbin on her letter calling on PM Andy Burnham for more #MECFS research funding.
Bill Clayton retweeted
Excellent, Sterling stuff and well said @_chris_coghlan
Great to hear @_Chris_Coghlan standing up for the SAS and UKSF in the House of Parliament. Not just as an MP, but as a reserve soldier. This constant lawfare is eroding the morale of the Special Forces and the greater @BritishArmy What do you think?
Bill Clayton retweeted
Brief aan de 🇬🇧 prime minister over ME en Long Covid. Door honderden (olympische) atleten, solidair met hun vml collega Beth Dobbin.
De vraag is bescheiden:
"We ask you to level the playing field with other illnesses"
Maar dat is dan ook alles. @RobJetten @ministerVWS
Gewoon volwaardige, lerende zorg oprichten voor alle patiënten. Gewoon de langjarige ambitie om te willen weten wat er in onze lichamen gebeurt.
Zoals we bij andere ziektes ook doen. Ziektes waarvoor het zorgstelsel wèl functioneert.
We willen gewoon overheidsactie proportioneel aan de maatschappelijke miljardenimpact. De enige reden dat dit ingewikkeld of moeilijk is, is omdat de echte wil ontbreekt.
Hi everyone, we’ve been working on something 🙏🏼 I’ve written a second letter to Andy Burnham, alongside 360 sports people, to urge him to meet with me and fund research into my much neglected health issue which impacts millions of others.
I can’t believe 360 people signed in just 1 week, so many amazing names and messages still coming in of people wanting to add theirs (so feel free to message to add yours, we’re keeping on the pressure!!!)
The list includes 114 Olympians, with 77 medals between them (and that’s not even including Worlds and Europeans 🤯). Also some huge names from football and many other sports!!
Thank you SO much to everyone that signed, I can’t tell you how much it means to me when I’m truly at rock bottom ❤️❤️❤️
I know everyone wants their issues taken seriously, but this has been neglected like nothing else. WE HAVE 0 APPROVED TREATMENTS!!! Please listen 🙏🏼 @andyburnham @number10gov @UKLabour @DHSCgovuk
Bill Clayton retweeted
Harrogate Station Gateway gets underway despite concerted opposition. By moving the taxi rank to the right side of a one way street any side loading WAV taxis will be unable to use it because the ramp is always on the left of the vehicle. Doubt that was considered. #AccessFail
Bill Clayton retweeted
My report has now been published!
- Just under 70% of those surveyed are at least housebound due to their chronic illness. Over a quarter are bedbound or hospitalised.
- Yet, 92.0% of respondents were no longer under the monitoring or care of any NHS specialist department, and 72% were no longer under primary care (GP) monitoring.
- 88.9% of bedbound participants with "contested" conditions are too ill to access face-to-face NHS care at all, with no adaptations and appropriate travel arrangements being facilitated so they can get the help they need – which is rarely available within the NHS.
This doesn't even scratch the surface of the shocking revelations I encountered through this research.
Forced to Go Private is now live, with voiceover available. As always, this is free of charge. (Link in first reply.)
I don't usually ask this, but shares of this report would be extremely useful, so it doesn't just remain within our echo chamber. Therefore, please consider retweeting or passing the link on. This is a scandal and is completely unsustainable, both for patients and the handful of private services who are able to offer at least some of the help we need.
Thanks once again to the amazing volunteers who took part in this survey, despite being in such poor health. I truly hope this does you justice and that together we can make change. 💚
#NHS #longcovid #dysautonomia #MCAS #MECFS #EDS #vaccineinjury #PAIS #POTS #lyme #scandal #medicalgaslighting
Bill Clayton retweeted
What a wonderful thing to wake up to,huge thanks to everyone who signed and to @BethDobbin #pwME
Hi everyone, we’ve been working on something 🙏🏼 I’ve written a second letter to Andy Burnham, alongside 360 sports people, to urge him to meet with me and fund research into my much neglected health issue which impacts millions of others.
I can’t believe 360 people signed in just 1 week, so many amazing names and messages still coming in of people wanting to add theirs (so feel free to message to add yours, we’re keeping on the pressure!!!)
The list includes 114 Olympians, with 77 medals between them (and that’s not even including Worlds and Europeans 🤯). Also some huge names from football and many other sports!!
Thank you SO much to everyone that signed, I can’t tell you how much it means to me when I’m truly at rock bottom ❤️❤️❤️
I know everyone wants their issues taken seriously, but this has been neglected like nothing else. WE HAVE 0 APPROVED TREATMENTS!!! Please listen 🙏🏼 @andyburnham @number10gov @UKLabour @DHSCgovuk
Bill Clayton retweeted
🚨 Bruno Fernandes on the defeat to Chelsea:
“People can say what they want about the manager. I’m not interested in that conversation right now.
This result is on us. The players.
We had chances in the first half. Good chances. The kind you have to take when you’re away from home and the game is still level. We didn’t take them.
Amad had opportunities. I had one myself that should have been better. Matheus had a goal ruled out for offside. These are the moments that decide games.
And we missed them.
Then came the second half.
Lisandro picks up a yellow. A few minutes later he gives away a stupid foul in the box. Second yellow. Penalty. Red card. Game over.
That is not on the manager. That is on the player. You cannot make decisions like that when the team is already under pressure. You have to be smarter. You have to think about the consequences.
And after that, we gave up.
I’m not saying we stopped running. But the intensity dropped. The belief dropped. You could see it. Chelsea controlled the rest of the game and we looked like a team that had already accepted the result.
Fans are angry. They should be. They travel, they pay, they watch, and they see the same mistakes. Missed chances. Unnecessary fouls. Players making the game harder for themselves.
Michael sets the team up. He gives us a plan. He speaks to us during the week and at half-time. But he cannot take the shots for us. He cannot stop a player from committing a foul that leads to a red card. He cannot force us to keep fighting when the game turns against us.
That part is on the players.
We are in a bad position in the table. Everyone knows that. But we are not going to get out of it by blaming the manager every time we lose. We have to look at ourselves first.
Because if we keep missing chances, if we keep making stupid fouls, if we keep switching off when things get difficult, then the result will be the same no matter who is standing in the technical area.
And right now, that is the truth.”
Bill Clayton retweeted
More media coverage of @bethdobbin letter to @andyburnham in The Times.
thetimes.com/uk/healthcare/a…
Bill Clayton retweeted
More questionable reporting from @yorkpress Council auditors undertook 146 fraud investigations, only 22 related to parking permits & some of those res park permits yet it’s blue badges that make the headline again with photo. Lazy journalism✅ #UnconciousBias
Bill Clayton retweeted
Nearly half of people who apply for PIP are in work and use the funds to enable themselves to stay in work. Cutting PIP will add to the welfare budget as those people will no longer be able to stay in the work force.
Bill Clayton retweeted
Justin Webb said, if I heard correctly, that people on PIP get £1700 a week. But £1,700 a week would be nearly 9 times the actual maximum and is not possible under the rules. #r4today
Bill Clayton retweeted
When road crews show zero common sense, cyclists needn’t be surprised when they find pedestrians walking in the cycle track on a bend with no visibility. Owing to the kerb, pedestrians using wheelchairs are forced to turn around & go back. #AccessFail #SafetyFail





































