Helen (@creeppette) profile picture

Helen

@creeppette

Creepy Crawley of the female variety. Suburban habitat. Diet consists of fried food and chocolate.

Joined March 2010
  • Tweets233
  • Following95
  • Followers26
29Media
Photo by Helen (@creeppette)Photo by Helen (@creeppette)Photo by Helen (@creeppette)Photo by Helen (@creeppette)Photo by Helen (@creeppette)Photo by Helen (@creeppette)Photo by Helen (@creeppette)Photo by Helen (@creeppette)Photo by Helen (@creeppette)Photo by Helen (@creeppette)
The @BigGive Christmas Challenge is now OPEN 🌟 Any donation you make from now until midday 5 Dec through the Big Give website will be doubled for FREE and makes twice difference. Donate now buff.ly/40Wus1Y Thank you so much for your support! #ChristmasChallenge23
Image from MPS Society UK, here for those with rare diseases (@MPSSocietyUK)
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182 runs Edrich Upper D27 #ENGvNZ
Image from Helen (@creeppette)
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Anyone in @HomeCountiesWCL looking for a friendly this Sunday? @CheshamCricket women have a pitch and a team. Get in touch.
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Rare disease clinical trial participants don't always live close to the clinical trial sites. We provide local and international support to patients who need to relocate in order to participate. #clinicaltrials #clinicaltriallogistics #rarediseases
Image from Rare Disease Research Partners (@RD__RP)
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We're starting a new series of posts called Pocket Knowledge, where we share compact and easy-to-understand information on some of the rare diseases we work with. We're hoping these will be interesting and informative for everyone! #raredisease #rarediseases #research
Image from Rare Disease Research Partners (@RD__RP)
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“Here at Secret Cinema, community outreach is really important to us.” – Kath Tomlin, Secret Cinema Community Manager secretcinema.org/charity-and… #SecretCinema #SecretCinemaValues #RiseUpRavagers #GuardiansOfTheGalaxy
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“Secret Cinema’s community outreach programme gives opportunities for local community groups to enjoy the worlds we create.” – Kath Tomlin, Secret Cinema Community Manager secretcinema.org/charity-and… #SecretCinema #SecretCinemaValues #RiseUpRavagers #GuardiansOfTheGalaxy
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We need just a few more people to donate/claim rewards on our crowdfunder to get an £8,000 pledge from Sport England! Please support if you can crowdfunder.co.uk/p/better-s…
A better space at Chesham Cricket Club

A better space at Chesham Cricket Club

We're improving facilities including parking, furniture, changing rooms and more to make this a better space for the whole community.

crowdfunder.co.uk
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Can you spread the word? We need just 19 more people to donate or claim a reward on our @crowdfunderuk to get an £8k pledge from @Sport_England Share this post and tell friends, family and colleagues to get behind us! crowdfunder.co.uk/p/better-s… #PlacesandSpaces #Birmingham2022
A better space at Chesham Cricket Club

A better space at Chesham Cricket Club

We're improving facilities including parking, furniture, changing rooms and more to make this a better space for the whole community.

crowdfunder.co.uk
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Done!
MPS Society UK, here for those with rare diseases (@MPSSocietyUK) profile pictureMPS Society UK, here for those with rare diseases@MPSSocietyUK12 May 2022
#MovementforGood is back! @benefactgroup are giving you the chance for us to win a £1,000 donation! You can nominate us here: buff.ly/39HoED2. Please spread the word to get as many nominations for us as you can! 😄
Image from MPS Society UK, here for those with rare diseases (@MPSSocietyUK)
#MovementforGood is back! @benefactgroup are giving you the chance for us to win a £1,000 donation! You can nominate us here: buff.ly/39HoED2. Please spread the word to get as many nominations for us as you can! 😄
Image from MPS Society UK, here for those with rare diseases (@MPSSocietyUK)
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We're delighted to share our video showcasing the origins of the MPS Society and our work over the past 40 years. Thank you to all involved with making it @DesignScienceUK and Shine a Light Productions. youtu.be/A2YH0_b9i2M
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Getting ready for @LLHalf running for @MPSSocietyUK woo hoo!!
Image from Helen (@creeppette)
Image from Helen (@creeppette)
Image from Helen (@creeppette)
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Good luck @englandcricket women’s team in #CWC22 #WeGotGame @wegotgameofficial
Why not take a run through London’s most beautiful landmarks and raise money for us while you do it! The ballot for this year’s @royalparkshalf marathon is now open until 5th February. You can enter here: buff.ly/2R31eco. Good luck everyone!
Image from MPS Society UK, here for those with rare diseases (@MPSSocietyUK)
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We want to smash our target & raise an ambitious £18K in the @BigGive #ChristmasChallenge21 to support the #mentalhealth & #wellbeing of thousands of people living with a rare disease. We know how hard this is for them and we need your help. Donate now: bit.ly/MPSxmas21
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I’m voting for @MPSSocietyUK in the @BigGive #CC21mychoice because the team are so good at supporting people living with MPS, Fabry and related LSDs.
MPS Society UK, here for those with rare diseases (@MPSSocietyUK) profile pictureMPS Society UK, here for those with rare diseases@MPSSocietyUK6 Dec 2021
Please enter @MPSSocietyUK in the @BigGive #CC21mychoice! An additional £1,000 would be used to fund our services to support the #mentalhealth and #wellbeing of our members in 2022.
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I’m Dan. My son Luca has MPS II Hunter disease. I’m supporting the @MPSSocietyUK in the @BigGive #ChristmasChallenge21. Donations made TODAY and until 12pm on 7 Dec will support dads like me. Please donate now to help more families: bit.ly/MPSxmas21
Image from MPS Society UK, here for those with rare diseases (@MPSSocietyUK)
Image from MPS Society UK, here for those with rare diseases (@MPSSocietyUK)
Image from MPS Society UK, here for those with rare diseases (@MPSSocietyUK)
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Day 2 of the @BigGive #ChristmasChallenge21 and we've raised £9,724 so far. Let's see if we can get to over £10,000 by the end of today and smash our target! All funds will go towards our #mentalhealth and #wellbeing services in 2022. Share and donate now: bit.ly/MPSxmas21
Image from MPS Society UK, here for those with rare diseases (@MPSSocietyUK)
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Guidance and example responses for the NICE consultation on Vimizim are now available: buff.ly/2UYSgkW Please add your voice to the consultation before 3 December: buff.ly/3FRtqZq
Image from MPS Society UK, here for those with rare diseases (@MPSSocietyUK)
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