An organization committed to creating awareness of, and promoting research into a cure for Shwachman Diamond Syndrome.
Joined April 2013
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On October 11-12 John & his good friend Paul Konish, plan to ride 83 miles on the XNH Adventure Trail from the Connecticut River in Vermont to Bethel, Maine to raise funds for the Shwachman-Diamond Syndrome Foundation.
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Amazon has discontinued their Amazon Smile program. We greatly appreciate all of you who have given to SDSF through that program. We value your generosity in those donations. Please consider replacing your donation with a small monthly donation at: shwachman-diamond.org
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Help Support SDSF during this time of End of Year Giving.
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SDSF is proud to be at the American Society of Hematology Meeting representing all SDS patients everywhere. instagram.com/p/Cl_nXBoOAks/…
In the spirit of giving thanks, tag someone below who has been there for you on your SDS journey. Give them recognition of how they brought a smile to your face and made this journey easier. #sdssayingthanks instagram.com/p/ClWhhKTO1kX/…
SDSF Thanks Your For Your Continued Support in helping us reach our goal! conta.cc/3Jo4Z8y
With less than 24 hours to go until Giving Tuesday, We need your help more than ever!
We've been given an opportunity to double your impact with a matching grant.
From now until December 1st, your donation will be doubled.
conta.cc/3D9I2BE
With less than 24 hours to go until Giving Tuesday, We need your help more than ever!
We've been given an opportunity to double your impact with a matching grant.
From now until December 1st, your donation will be doubled.
conta.cc/3D9I2BE
