A film about making history. https://xitter.cf/t.co/JzKlwQrAIP And find us at https://xitter.cf/t.co/tEitiUl1cA
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Joined April 2019
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This story will warm your heart and give you hope after such a tough year for us all. Please #sharetoendthestigma m.youtube.com/watch?v=wTTq9Z…
Dancing at the Vatican retweeted
Frank Bennett (#IonisPharmaceuticals) led the development of tominersen, in clinical trials by #Roche. Ed Wild (#UCL) has been involved in the design and running of many #HD trials. Register now: tinyurl.com/May2024-webinar
#research #cures #cureHD
@HDSA @HDYOFeed @AmericanBrainCo
Dancing at the Vatican retweeted
If we are to 'allow people to stay healthy in their homes and communities for as long as possible' we need the right care at the right time in the right place. Many rare diseases are complex and in need of care pathways agreed and implemented @HSELive @roinnslainte @slainte
We'd like to see Health Regions work for those with complex care needs typified by those living with #RareDiseases. A number of care pathways have been approved by HSE. Let's see these pathways implemented across Ireland NOW to "road test" Health Regions. @BernardGloster @CcoHse
Dancing at the Vatican retweeted
It seems the skies know we need greater awareness for #HuntingtonsDisease #LightItUp4HD #HDAwarenessMonth
#Nort
ALT Northern lights turn the sky purple. #LightItUp4HD is an international awareness campaign to highlight the need for greater awareness for Huntington's disease, a hereditary neurodegenerative disease. May is HD awareness month
Dancing at the Vatican retweeted
It seems the skies know we need greater awareness for #HuntingtonsDisease #LightItUp4HD #HDAwarenessMonth
#Nort
ALT Northern lights turn the sky purple. #LightItUp4HD is an international awareness campaign to highlight the need for greater awareness for Huntington's disease, a hereditary neurodegenerative disease. May is HD awareness month
Dancing at the Vatican retweeted
The @LordMayorDublin supports the international #lightitup4HD awareness campaign to support #HuntingtonsDisease. May is #HDawarenessmonth. For info see huntingtons.ie
Dancing at the Vatican retweeted
To raise awareness of #HuntingtonsDisease research here in the Discipline of Physiology and in @NeurologyTCD we are hosting an event on the 21st May, open to all including researchers, students and those affected by HD. Free to attend, make sure to register at the link below
May is #HDAwarenessmonth. To mark it HD Researchers are hosting an event at @tcddublin. If you are interested in #HuntingtonsDisease register at: forms.gle/etreEi3wNwtQNnL59
@NeuroscienceIRL @Futureneuro_ie
@Beaumont_Dublin
#research #ENROLLHD
Dancing at the Vatican retweeted
HDAI add a huge thanks to Ed and Jeff for creating and developing @HDBuzzFeed . Also, a congratulations and thanks to the current editorial team at @HDBuzzFeed
Dancing at the Vatican retweeted
Government pledges specialist support as over 700 people in Ireland battle Huntington's Disease independent.ie/irish-news/ne…
Dancing at the Vatican retweeted
Thank you @HDAI_ie. We are inviting all members of the HD community to this meeting and hope to share our current work and plans with you and hear your thoughts and views on HD research in Ireland! We’re looking forward to meeting everyone on the 21st!! #HDawarenessmonth EHDN
Dancing at the Vatican retweeted
We’re also looking forward to this event and to hearing more about your important and valued work for the #HuntingtonsDisease community in Ireland.
Thank you @HDAI_ie. We are inviting all members of the HD community to this meeting and hope to share our current work and plans with you and hear your thoughts and views on HD research in Ireland! We’re looking forward to meeting everyone on the 21st!! #HDawarenessmonth EHDN
Dancing at the Vatican retweeted
Writing about Charles Sabine's TEDx talk and progress made for #HuntingtonsDisease in recent decades Elena Cattaneo says "we can always do something, rallying our strengths so that no one has to feel the pain of isolation and stigma anymore"
A must read: bit.ly/4diUDG7
Dancing at the Vatican retweeted
Thanks @GavBecton for coming along to advocate for families impacted by #HuntingtonsDisease. The HSE moratorium delays recruitment for a HD Nurse, already funded. Specialist services are vital for HD families who struggle with this complex neurodegenerative disease.
PLEASE LISTEN 🧵
This is Prof Ronan Collins @ronancollins7 (National Clinical Lead Stroke) scathing criticism of Dept of Health/@HSELive treatment of 850,000 people in Ireland living with neurology/neurodegenerative conditions and the moratorium on recruitment …
Dancing at the Vatican retweeted
Magdalen Rogers, @naiireland speaks of the vital need for neurology nurses. Posts already funded are not in post due to HSE moratorium @roinnslainte @HSELive #patientsdeservebetter
Dancing at the Vatican retweeted
Yes @sineadmariec Ireland has one of the lowest ratios of neurologists to patients in Europe. And people with HD face significant barriers to access MDT services. @HSELive @roinnslainte @slaintecare
Dancing at the Vatican retweeted
Thank you @cspencer1508 - here's a clip from the video and you can watch the full video here: hiddennomore.com/tedx #charlessabine #huntingtonsdiseaae
Dancing at the Vatican retweeted
Decades ago, I was a colleague at @NBCNews with a producer called Charles Sabine. Charles is doing amazing things on behalf of those, like himself, affected by Huntingtons Disease - please see this link: drive.google.com/drive/folde…
xitter.cf/HD_HiddenNoMore
Dancing at the Vatican retweeted
Coming to Ether Dome @Harvard next week, is Charles Sabine. Be there if you can @teamcoco @MattGourley m.youtube.com/watch?si=cykA-…
Dancing at the Vatican retweeted
NEW PUBLIC EV CHARGING LOCATIONS @DublinAirport.📍📣
Download the ePower app today on epower.ie to view the EV charge points at these locations.
#public #evchargers #publiccharging #dublinairport #carchargers #electricvehicles #evchargingnetwork #evnetwork
youtu.be/fGiNoL0jJLM?feature… #HDGratitudeDay Please watch and share this heartwarming video of international support x @FactorH_LatAm @HDAI_ie @HDSA @naiireland
