Advocating for patient access to optimal dermatological care.
Washington, DC
Joined February 2017
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Today is #WorldPsoriasisDay!
Medications for chronic skin conditions like #psoriasis have been selected for Medicare drug price negotiations. Access to treatment options must remain a priority for patients.
Learn more in DCAN's advocacy toolkit: bit.ly/4u6CiUX
Skin cancer is the most common type of cancer. It strikes one in five Americans and accounts for one-third of all U.S. cancer diagnoses. But, skin cancer is “cancer that patients can see,” and when detected early, it’s highly treatable.
Read more: healthpolicytoday.org/2023/0…
#DYK? Many patients covered by Medicaid and TRICARE cannot access their medications because #vitiligo is misclassified as a cosmetic condition.
Learn more about inconsistent classification in vitiligo:
bit.ly/4crUMH1
October is #EczemaAwarenessMonth!
#DYK? More than 30 million Americans live with atopic dermatitis or another form of eczema. It can affect sleep, work and mental health.
Treatment options only matter when patients can access them.
Learn more: bit.ly/4i6lQAa
#Vitiligo and #AlopeciaAreata are systemic, immune-mediated conditions, not cosmetic concerns.
Yet when misclassified, patients on Medicare, Medicaid and TRICARE too often see medically necessary treatment delayed or denied.
Learn more: bit.ly/4hCNSDp
#ICYMI: DCAN hosted a webinar discussing the burden of #AlopeciaAreata from the clinician perspective, followed by an analysis of the current Medicare & Medicaid coverage landscape for those living with the condition.
Watch to learn more this #AAM: bit.ly/4saxD2m
When health plans misclassify #AlopeciaAreata as cosmetic, there are direct and harmful consequences, such as:
🔵 Denied coverage for evidence-based therapies
🔵 Delayed treatment
🔵 Increased emotional & psychological distress
Read more this #AAM: bit.ly/4hCNSDp
#AlopeciaAreata is often misunderstood as a cosmetic condition despite its autoimmune pathology and chronic nature.
Read more in DCAN's policy brief this #AlopeciaAwarenessMonth: bit.ly/3PGlqFd
Today is #WorldLymphomaAwarenessDay!
Cutaneous lymphomas are rare skin cancers often mistaken for eczema or psoriasis, leading to delayed diagnosis. Most are chronic and treatable. Knowledge is power.
Learn more from @skinlymphoma: bit.ly/3Si0bVV
It's #EczemaAwarenessWeek!
Mark your calendars! @nationaleczema is hosting a webinar on October 1, highlighting eczema's impact across the nation, spanning all ages and insurance types.
Learn more & register: bit.ly/4qQ9yig
Listen to the Marcos family as they discuss the barriers many families face and why patient advocacy is essential to improving awareness and access for those living with #AlopeciaAreata.
Watch to learn more during #AlopeciaAwarenessMonth: bit.ly/4hhqv29
September is #AlopeciaAwarenessMonth!
#DYK? Insurance coverage of treatments for #AlopeciaAreata is highly variable and restricted.
Learn more: bit.ly/44qaDm9
Training to become a doctor is notoriously grueling. Yet despite the thousands of hours of education, there’s one topic that’s not often taught: how to navigate insurer’s utilization management tactics.
Read more: healthpolicytoday.org/2024/1…
Hear from the Marcos family as they open up about the barriers many people with alopecia areata face, and why patient advocacy matters for improving awareness and access.
Watch to learn more: bit.ly/3U2KYy3
Barriers to patient access in dermatological care include:
🔹Misclassification of skin diseases as “cosmetic”
🔹Copay accumulators
🔹Step therapy
Read more in DCAN & @USskincoalition's briefing report: bit.ly/4vWBBgU
Denied Medicare Part D coverage for an FDA-approved JAK inhibitor for #AlopeciaAreata?
@NAAF_Org wants to hear your story to help advocate for better access to care. Share here: naaf.org/has-medicare-part-d…
#DYK? #Vitiligo and #AlopeciaAreata are dermatological health conditions that have medical consequences that extend far beyond changes to physical appearance.
Read more: bit.ly/4hCNSDp
#StepTherapy aims to cut expenses for insurance companies, but the cost to patients with skin conditions is just too high.
Watch to learn more: bit.ly/4c9LCOM
Watch Lucy and Stephanie Marcos discuss the personal and emotional impact of #AlopeciaAreata, from childhood diagnosis to the challenges of accessing appropriate care: bit.ly/4hhqv29
While the interconnectedness between eczema – a chronic inflammatory skin disease – and mental health conditions – notably anxiety and depression – is indisputable, it is also manageable.
Read more this #ChronicDiseaseAwarenessMonth: healthpolicytoday.org/2022/1…
