@ecfpg

Pharmacy professionals who care for people with cystic fibrosis

ecfs.eu/projects/european-cf-pharmacy-group/introduction
Joined March 2016
  • Tweets221
  • Following238
  • Followers422
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Euro CF Pharmacy Group retweeted
Patrick Wilson 💙@patrickiwilson6 Jun 2024
First sessions of the day “Psychosocial Care in the CFTR Modulator era” - Dr Edwina Landau mentioning that it’s essential to involve the CF Pharmacist in managing psychosocial side effects of Modulators. Also a hot topic at the @ecfpg meeting yesterday. @ukcfpg
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Euro CF Pharmacy Group retweeted
UK CFPG@ukcfpg18 Oct 2022
Happy #RxTechDay to all the wonderful pharmacy technicians working to provide better care for people with Cystic Fibrosis A small and select, but growing group! You’re brilliant and you’re invaluable to us all
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Euro CF Pharmacy Group retweeted
Patrick Wilson 💙@patrickiwilson21 Sep 2022
One for everyone affected by CF personally and professionally to complete @ukcfpg We know that getting the view of the CF community has helped shape research over the last few years… now let’s take it further!
Question CF@questionCF21 Sep 2022
Replying to @questionCF
Survey 2 is now LIVE! surveymonkey.co.uk/r/qCFsurv… the researchers have done their bit and we present to you the 71 questions that we would like you to go through, select your favourites and then rank your Top10. Please share far and wide
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Euro CF Pharmacy Group retweeted
Cystic Fibrosis@CFLeeds9 Jun 2022
Monica our hard working pharmacy technician ⁦@ECFSConference in Rotterdam⁩ with her poster on how she been supporting patient medication 💊 supply’s @CFLeeds ⁦@LeedsHospitals⁩
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#ECFS2022 @ECFSConference Day 1 presenting @Msluclocket & #cysticfibrosis MDT colleagues discussing impact/outcomes of switching from one #PrecisionMedicine to another in #paediatric population @cftrust @cf_care @BWC_NHS @BCHPhysio @BWC_dietitians Great work everyone!
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Euro CF Pharmacy Group retweeted
Sian Bentley@SianABentley26 Jan 2022
Replying to @ukcfpg
@ukcfpg @ecfpg really important refresh of an instrumental piece of work for defining research priorities for CF care. Literally takes 5 minutes to complete. #QuestionCF @patrickiwilson @NicolajshawShaw
Question CF@questionCF26 Jan 2022
Where are our healthcare professionals at? We’re keen to hear what you think should stay, what should go and what could be added in. #QuestionCF #cysticfibrosis
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Euro CF Pharmacy Group retweeted
Question CF@questionCF20 Jan 2022
And we’re live! surveymonkey.co.uk/r/questio… please let us know if the research priorities are still relevant 5 years on or if there’s something else research should be looking at! Please RT
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Euro CF Pharmacy Group retweeted
Amanda@APaedPharmacist24 Sep 2021
Fantastic to collaborate with a great group of CF pharmacists on this project @ukcfpg @ecfpg . Next step: to embed adherence data in the prescribing process @cfhealthhub 😁 authors.elsevier.com/c/1doG7…
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Euro CF Pharmacy Group retweeted
Patrick Wilson 💙@patrickiwilson12 Oct 2021
Annual @ukcfpg study day is happening today (virtually of course). Really looking forward to seeing all of the speakers today even if we can’t catch up ‘off screen’. Thank you to @MariLeaDavies1 and Douglas for organising what a fantastic programme of speakers
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Euro CF Pharmacy Group retweeted
Sian Bentley@SianABentley31 Aug 2021
Happy Tuesday! First publication from my @NIHRresearch / @NHS_HealthEdEng pre doctoral fellowship! @janedaviescf @ImperialNHLI Clinical PK & dose recommendations for posaconazole gastroresistant tablets in children with CF academic.oup.com/jac/advance…
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Inspiring talk @ECFSConference today from patient @MarcCotterill. If you missed it, it’s available on his you tube channel 🎬📽. Everyone who works in CF should see this! WHAT DO OUR PATIENTS NEED FROM US NOW? | My European CF Conference Talk youtu.be/JDA02YfeO7k via @YouTube

My European CF Conference Talk

A couple of weeks ago I was asked by my good friend @tim_wotton if ...

youtube.com
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Euro CF Pharmacy Group retweeted
Patrick Wilson 💙@patrickiwilson30 Mar 2021
Yay! Massive geek excitement here @NicolajshawShaw @SianABentley @ukcfpg @ecfpg
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Euro CF Pharmacy Group retweeted
Keith@keiththomps0n1 Oct 2020
Delighted to announce the appointment of @SianABentley to the role of @RBandH Consultant Pharmacist for Paediatric Chronic Suppurative Lung Diseases! 🍾 🥂 @ukcfpg @ecfpg @AgentPen
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Last chance to register for the #ECFS2020 Digital Conference: - Build a personal agenda - See the speakers & attendees list - #Network with industry & other participants - and much more! Do not miss this opportunity! Complete your #free registration at ecfs.eu/digital2020/registra…
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Save the Date! The 44th European Cystic Fibrosis Conference will happen June 2021 in Milan, Italy! Until then, we hope to see you at #ECFS2020 Digital happening 24-25 September! We can't wait to meet and explore the latest research in #CysticFibrosis. loom.ly/IKGt3d8
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Great news! Registration for the ECFS Digital Conference will open on 28 July! Be sure to save the date: loom.ly/bS3x2qg #ECFSgoesDigital #ShareTheNews #FreeEvent #Registration #CFCommunity #CysticFibrosis
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#ECFSGoesDigital! Join us for the first ECFS Digital 2020 Conference happening 24-25 September 2020. There will be eight live symposia, hot topic presentations and much more. Read our full Welcome Statement at ecfs.eu/digital2020 #CysticFibrosis #CFCommunity #DigitalEvent
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Euro CF Pharmacy Group retweeted
Khola Khan@KhanKhola14 Apr 2020
A big thank you to @SianABentley @SukeshiMakhecha for getting this out there....pubmed.ncbi.nlm.nih.gov/3226… – at Wandsworth, London
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Euro CF Pharmacy Group retweeted
Journal of CF@JournalofCF9 Jan 2020
#JournalCF Letter to the Editor explores the utility of n-of-1 trials to expand access to CFTR modulators for rare #cysticfibrosis mutations. ow.ly/NRS450xOcee
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Euro CF Pharmacy Group retweeted
Journal of CF@JournalofCF10 Jan 2020
The Second Announcement of the #ECFS2020 #cysticfibrosis Conference in Lyon is available: ow.ly/fnz550xQ8Oz
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