@elspeth_mathie

Reader in Health & Social Care Inclusion, CRIPACC,University of Hertfordshire, ARC East of England, Patient and Public Involvement.

 University of Hertfordshire
Joined March 2014
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  • Following1.3K
  • Followers1.2K
223Media
Fantastic to see a huge @InterdemEurope contingent in Bologna for their Annual Meeting & for #35AEC They have a number of sessions on our conference agenda throughout & are marking 25 years of vital work. Happy Anniversary! Alzheimer Europe is proud to be a key INTERDEM partner!
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🎉Happy 2⃣0⃣th anniversary to the @UniofHerts Public Involvement in Research Group (PIRg)! PIRg has supported @ARC_EoE #research by bringing public voices into design, delivery & impact. 📽️Watch how this group is making a difference in #research➡️arc-eoe.nihr.ac.uk/news-blog…
Happy 2⃣0⃣th anniversary to the @UniofHerts Public Involvement in Research Group (PIRg)! PIRg has supported @ARC_EoE #research by bringing public voices into design, delivery & impact. 📽️See how this group is making a difference in #research➡️https://arc-eoe.nihr.ac.uk/news-blogs/news-latest/university-hertfordshire-celebrates-20-years-public-involvement

ALT Happy 2⃣0⃣th anniversary to the @UniofHerts Public Involvement in Research Group (PIRg)! PIRg has supported @ARC_EoE #research by bringing public voices into design, delivery & impact. 📽️See how this group is making a difference in #research➡️https://arc-eoe.nihr.ac.uk/news-blogs/news-latest/university-hertfordshire-celebrates-20-years-public-involvement

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Looking forward to this tomorrow. Keynote speaker @BeresfordPeter - other speakers @AdGridley @DrHatiDunn Jill Evans Mebs Ahmed and NassemRaji
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We were devastated to learn of the sudden passing of Nigel Hullah, member of the European Working Group of People with Dementia. Together with the group, we paid tribute to him at meetings this week. Our deepest condolences to his family and friends alzheimer-europe.org/news/me…

Alzheimer Europe | In Memoriam Nigel Hullah

We were deeply shocked and saddened to learn of the sudden passing of our friend and colleague Nigel Hullah.

alzheimer-europe.org
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It has been an honour to be able to work with the Mencap members and my involvement team. Now to find opportunities to get these research active groups creatively co-producing with researchers. Getting their voices heard. No such thing as underserved communities is my goal.
Elspeth Mathie@elspeth_mathie27 Mar 2025
Replying to @NIHRinvolvement
@NIHRinvolvement @UniofHerts @AmanderWellings @Louca_Mai @CRIPACC1 @ARC_EoE @NIHRresearch @BeresfordPeter #inclusion #involvement & #engagement
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#PublicInvolvement in #research often overlooks people with learning disabilities & autism, leaving their health and care needs unmet. To address this, @ARC_EoE & 2 local MENCAPs are working together to develop effective engagement methods, like events. 🔗arc-eoe.nihr.ac.uk/news-blog…
#PublicInvolvement in #research often overlooks people with learning disabilities & autism, leaving their health and care needs unmet. To address this, @ARC_EoE & 2 local MENCAPs are working together to develop effective engagement methods, like events. 🔗https://arc-eoe.nihr.ac.uk/news-blogs/blogs/celebrating-working-partnership-alongside-people-learning-disabilities-and

ALT #PublicInvolvement in #research often overlooks people with learning disabilities & autism, leaving their health and care needs unmet. To address this, @ARC_EoE & 2 local MENCAPs are working together to develop effective engagement methods, like events. 🔗https://arc-eoe.nihr.ac.uk/news-blogs/blogs/celebrating-working-partnership-alongside-people-learning-disabilities-and

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📽️Watch @ARC_EoE's Inclusive Involvement in #Research Theme Lead, @elspeth_mathie, as she highlights the importance of sharing feedback with the communities and participants involved in #research! Check out the video below👇
NIHR Involvement@NIHRinvolvement24 Mar 2025
Why is it important to share feedback with people and communities after their involvement in research? 📽️ @elspeth_mathie gives us some insight on the topic of feedback, one of our Strategic Commitments for Public Partnerships:
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Replying to @NIHRinvolvement @elspeth_mathie
By 2030 we’ll: ✔️ strengthen our expectation that the public receives feedback on research and the impact of their contributions ✔️strengthen our expectation that researchers feed back results in inclusive ways ✔️ improve reporting of public partnerships in NIHR research (3/6)
NIHR. By 2030 we will: strengthen our expectation that members of the public receive accessible and inclusive feedback on the research progress and outcomes, and on the impact of their contributions; strengthen our expectation that research teams must feed back study results to participants in accessible and inclusive ways; improve reporting of public partnerships in NIHR-funded activities and research. Strategic Commitments for Public Partnerships.

ALT NIHR. By 2030 we will: strengthen our expectation that members of the public receive accessible and inclusive feedback on the research progress and outcomes, and on the impact of their contributions; strengthen our expectation that research teams must feed back study results to participants in accessible and inclusive ways; improve reporting of public partnerships in NIHR-funded activities and research. Strategic Commitments for Public Partnerships.

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There are 5 Strategic Commitments for improving public partnerships, but today we’re going to take a closer look at 1 of these – requiring feedback. Find out more about why this is important and what we’re doing... 💬 (1/6)
NIHR. Require feedback: In response to consistent demands from patients and the public, require those who commission, undertake and support research to provide feedback to the public and communities on their contributions. Strategic Commitments for Public Partnerships.

ALT NIHR. Require feedback: In response to consistent demands from patients and the public, require those who commission, undertake and support research to provide feedback to the public and communities on their contributions. Strategic Commitments for Public Partnerships.

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In response to patients and the public, we want to require those who commission, undertake and support research to provide feedback to the public and communities on their contributions. @elspeth_mathie explains why this is important ⬇️ (2/6)
NIHR. "We owe it to those who give up their time, share their lived experience to at the very least acknowledge their contribution and say thank you, let them know whether their input was useful, used or made a difference to the research." - Elspeth Mathie, Inclusive Involvement, NIHR Applied Research Collaboration East of England. Strategic Commitments for Public Partnerships: Require feedback.

ALT NIHR. "We owe it to those who give up their time, share their lived experience to at the very least acknowledge their contribution and say thank you, let them know whether their input was useful, used or made a difference to the research." - Elspeth Mathie, Inclusive Involvement, NIHR Applied Research Collaboration East of England. Strategic Commitments for Public Partnerships: Require feedback.

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Replying to @NIHRinvolvement @elspeth_mathie
Feedback is important to build effective longer-term relationships, and encourage people, including new and diverse communities, to continue to be involved in health and care research. Diane gives us a public perspective 👇 (5/6)
NIHR. "I believe that a priority for researchers should always be to give prompt, jargon free and honest feedback. This is not only good manners but helps to educate the volunteers in what is expected from them and shows that their time and effort are valued." - Diane Munday, NIHR public contributor. Strategic Commitments for Public Partnerships: Require feedback.

ALT NIHR. "I believe that a priority for researchers should always be to give prompt, jargon free and honest feedback. This is not only good manners but helps to educate the volunteers in what is expected from them and shows that their time and effort are valued." - Diane Munday, NIHR public contributor. Strategic Commitments for Public Partnerships: Require feedback.

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Reflecting on my privilege to have extraordinary colleagues to co-develop research and programmes for gender equality @women_in_sport @wish_pathway @UniofHerts. Proud that they are the ones advocating for the systemic changes needed for gender equality within their communities.
IOC MEDIA
@iocmedia7 Mar 2025
IOC's Gender Equality, Diversity & Inclusion (GEDI) Champion 2024 @Elizabethcjpike reacts to being named for her work in creating life-changing opportunities for women in sport and empowering female coaches. #SportForAllWomenAndGirls #IWD2025 @TeamGB @wish_pathway @UniofHerts
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check this out and please share Community of Practice session - 18th Feb 1pm to 2.15pm exploring the activities of the Participatory PhD Group, for more info contact [email protected]
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Community of Practice session - 18th Feb 1pm to 2.15pm exploring the activities of the Participatory PhD Group, for more info contact [email protected]
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Last year, 229 pregnant women were held in prison. Community based alternatives are essential to protect mothers and babies @LucyBaldwin08 @tanya_capper @kirstykitchen Miranda Davies @NuffieldFound @UniofHerts @UH_HSK @UHertsResearch @OSTCharity @TreviWomen #sentencingreview
The BMJ
@bmj_latest16 Jan 2025
Senior midwives and researchers raise concerns over maternity provision for pregnant women in UK prisons. Systemic problems need tackling to protect the health of pregnant women, new mothers, and babies while in criminal justice settings @midwifeteacher bmj.com/content/388/bmj-2024…

Improving maternity provision for incarcerated women in the UK

Laura Abbott and colleagues highlight gaps in clinical care for pregnant women in prison and consider how best to meet their needs Two newborn babies died in UK prisons in 2019-20 and another died in...

bmj.com
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Shared Lives Plus Ambassadors helped shape new resources to make health & social care events more inclusive. Think Local Act Personal, @SocFuture & @InControlOrg teamed up to ensure people with lived experience are heard. bit.ly/41DkUvx #LivedExperience #InclusiveEvents
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Recording of our CONSULT training launch webinar now added to the website, alongside details about how to access the e-learning: 🔗capacityconsentresearch.com/… Many thanks to the host, panel & attendees for their questions @shauntreweek @kerry_woolfall @Amy_M_Russell @UKCTUNetwork
Victoria Shepherd@VickyLShepherd5 Dec 2024
📢Now live📢 new CONSULT e-learning on trials involving adults with impaired capacity to consent. 4 core modules, case studies & links to resources. Free to access, complete at own pace, download certificate on completion 🔗capacityconsentresearch.com/… @CTRCardiffUni @ResearchWales
Image of flyer for CONSULT training on adults with impaired capacity to consent

ALT Image of flyer for CONSULT training on adults with impaired capacity to consent

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What a brilliant weekend of networking and learning! 🤝 In early November we hosted 70 early career researchers at the NIHR GOSH BRC Academic Training Weekend for two days of talks and workshops on navigating the research journey. Read our reflections: gosh.nhs.uk/news/gosh-celebr…
Group photo of everyone who attended the weekend.

ALT Group photo of everyone who attended the weekend.

Attendees smiling and laughing as they listen to one of the talks.

ALT Attendees smiling and laughing as they listen to one of the talks.

Speaker leading a breakout session.

ALT Speaker leading a breakout session.

Attendees smiling and chatting during a session.

ALT Attendees smiling and chatting during a session.

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Paying patient reviewers. Hats off to the BMJ for its next landmark step in its #PPP partnership journey. bmj.com/content/387/bmj.q258… @bmj_latest

The BMJ will remunerate patient and public reviewers

The BMJ will offer £50 for reviews by patients and the public From January 2025 patients and members of the public who complete a review for The BMJ will be offered £50 or a 12 month online subscri...

bmj.com
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Today we've launched a new requirement that all applicants must demonstrate how their research will address existing inequalities in health and social care as a condition of funding. Applicants will now be required to show how inclusion is being built into all stages of the research lifecycle. nihr.ac.uk/news/inclusion-no…
Inclusion now a key condition for funding. Applicants must demonstrate how their research will address existing inequalities in health and social care as a condition of funding.

ALT Inclusion now a key condition for funding. Applicants must demonstrate how their research will address existing inequalities in health and social care as a condition of funding.

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