Improving outcomes for Ewing Sarcoma through European collaboration. Funding previously from the EC FP7 HEALTH-F2-2013-602856 now from ESRT and BCRT
Europe!
Joined November 2013
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EUROEWING Consortium retweeted
A new joint #Europeanguideline on the imaging of primary paediatric and adult osteosarcoma and Ewing sarcoma is now available! 🗞️
Many thanks to @FosterConsorti1, @euroewing, and @ESPRSociety, as well as all the authors, for this great collaboration!
🔗sciencedirect.com/science/ar…
EUROEWING Consortium retweeted
600th patient has entered #rEECur #ClinicalTrial; largest randomised trial in recurrent/refractory #EwingSarcoma. rEECur collected data on 5 widely used chemotherapies and is now assessing a 6th targeted drug. Thanks to our funders, clinicians & patients @euroewing @CRUKresearch – at Birmingham, England
EUROEWING Consortium retweeted
If you are wondering what the benefits of patient involvement in research are, read our latest blog post: bit.ly/3k2abqr
#sarcoma #GIST #bonesarcoma #desmoid #voicesofsarcoma #blog #makeyourvoiceheard #patientinvolvement @Amocras
EUROEWING Consortium retweeted
Applications for @aladdin_edu educational programme close soon! The project is designed to educate paediatric oncologists, pharmacists, advocates and regulators on regulatory science behind drug development for #childhoodcancer. Apply today! aladdin-education.eu/
#ALADDINedu
EUROEWING Consortium retweeted
🙌 Impressive progress within the #QUARTETproject, showing the importance of centralised RTQA for improved #radiotherapy treatment of #ChildhoodCancer 🎗️ Find out more about the project 👉 bit.ly/3zGOb9L
EUROEWING Consortium retweeted
Very happy to announce the first global survey of bone sarcoma patients - open to everyone who has had or has cared for someone who has had a bone sarcoma. Available in multiple languages - launched as part of the #FOSTER consortium. More details here:
sarcoma-patients.org/en/our-…
EUROEWING Consortium retweeted
STOP SCROLLING! Ticket sales for the #BoneCancerBall close THURSDAY at 8pm! ⏲
Join us for the biggest night of the year, featuring a sensational headline performance from @MPeopleHeatherS 🤩🕺💃
Get your tickets NOW 👉 ow.ly/BVZF50IYX5A
EUROEWING Consortium retweeted
Right now, at one of the most difficult times in their lives, people living with bone cancer are facing extra worries because of the rising cost of living.
To help, our Financial Assistance Grants are available now. Find out more: ow.ly/PxfT50KSaq2
EUROEWING Consortium retweeted
There's 2 days to go until Bake it for Bone Cancer Day! Help us Bake for a Breakthrough so we can keep funding vital research to give hope to patients like Freddie 🧡 Together we can make a difference for primary bone cancer patients 🍰 #BIFBC #UntilTheresACure
EUROEWING Consortium retweeted
Please take some time to fill out our survey and get it far and wide - we want a broad range of views to drive our future engagement events!!
We want to hear from you, please take a few minutes to have your voice heard on how to collaborate with patients, parents, carers and members of the public in the development and delivery of our #clinicaltrials
forms.office.com/r/7bYEz1kAu…
ALT Share your thoughts on the inclusion and engagement of patients, parents, carers and members of the public in the development and progress of our clinical trials. Please take a few minutes to share your thoughts in our survey: https://forms.office.com/r/7bYEz1kAui Any questions can be directed to [email protected]
EUROEWING Consortium retweeted
Results of the rEECur study in relapsed Ewing #sarcoma TC versus HD ifosfamide presented by Martin McCabe. Almost all pts had had already a lot of alkylating agents in first line. HD ifosfamide was better, though toxic, in terms of PFS and OS and better HRQol, in kids #ASCO22
EUROEWING Consortium retweeted
Study Finds High-Dose Ifosfamide Superior to Other Standard-of-Care Treatments in Recurrent and Primary Refractory Ewing Sarcomas ascopost.com/news/june-2022/… #sarcoma #oncology #cancer #ASCO22
EUROEWING Consortium retweeted
📣#ASCO22 @OfficialUoM research: High-dose ifosfamide helps people with recurrent or refractory #EwingSarcoma live longer fal.cn/3pc62
#CancerResearch #ChildhoodCancer #AYACancer #AYACSM #SCMSM
EUROEWING Consortium retweeted
A great collaboration for a rare disease 👏👏 👏
Topotecan and cyclophosphamide (TC) and high-dose ifosfamide for the treatment of recurrent/refractory Ewing sarcoma:
🔸High-dose ifosfamide is more effective in prolonging survival than TC
@ASCO #ASCO22 @OncoAlert
EUROEWING Consortium retweeted
Always good to see how collaborations can help obtain high-quality answers for rare diseases like Ewing's Sarcoma.
The next time you hear that a RCT cannot be done, think about this one 👇 #ASCO22
EUROEWING Consortium retweeted
#PlenarySession @ASCO
⭐️ So excited to see results of this HUGE collaborative ACADEMIC effort, and so PROUD of the participation of our exceptional #sarcoma team in the rEECur trial. Thanks to the patients and their families.@SarcomasHGUGM #SomosElMarañon 🏥 @GrupoGeis #ASCO22 – at Chicago, IL
Always good to see how collaborations can help obtain high-quality answers for rare diseases like Ewing's Sarcoma.
The next time you hear that a RCT cannot be done, think about this one 👇 #ASCO22
EUROEWING Consortium retweeted
Congratulations MD. Martin McCabe for his excellent participation in #ASCO22. "Phase III evaluation of topotecan and cyclophosphamide and high-dose ifosfamide in rEECur"
@ASCO @OAE_JCMT @school_latin
EUROEWING Consortium retweeted
💥 #ASCO22 Plenary Session Highlights 💥
✅PARADIGM: 1L mCRC left-side Pani+mFOLFOX6
✅rEECur: HD IFO better than TC in R Ewing Sarcoma
✅Destiny-04: T-DXd for HR+/- Her2low mBC hormone resistant
@ConquerCancerFd @OncoAlert @ASCO
#oncology #MIR #PracticeChanging
EUROEWING Consortium retweeted
SPAEN donates 10.000 € to help cancer/sarcoma patients from Ukraine: Prof. Uta Dirksen, Essen, Germany, coordinates efforts to direct young Ukrainian cancer patients into sarcoma centers – and thus helps save lives of the most vulnerable: bit.ly/3q8Sbeq
Photo: WDR
EUROEWING Consortium retweeted
Becoming a trustee is a way for many younger people to kickstart their careers and get rich experience.
We're looking for trustees now and we’d like to benefit from what makes you unique.
We’ve got your back as well.
Interested? We are.
sarcoma.org.uk/trustee