Happening Now | Marriott Kampala Stakeholder's meeting on the national Sickle Cell disease Research Agenda and Launch of the Development of National Sickle Cell Prevalence Survey Protocol by the @MinofHealthUG and Partners. The meeting aims to; 1. Share current evidence on the burden of SCD in Uganda and recognise researchers who built the evidence base. 2. Officially launch the development process for the National Sickle Cell Prevalence Survey protocol and the National SCD Research Agenda, and constitute the protocol development team. 3. Identify and prioritise research questions for the National SCD Research Agenda, including other congenital and inherited conditions. 4. Agree on a research coordination mechanism, roadmap, and stakeholder commitments. @bayloruganda @CHAI_health @Microhaem @cphluganda @CincyResearch @TexasChildrens @MakSPH @jcrc_official1 @TheSCMHFund @olaro_charles

THE ROAD TO THE 3RD ANNUAL UHURU SICKLE CELL RUN STARTS WITH ACTION! Before we lace up our running shoes on 3rd October 2026, we must strengthen the systems, partnerships and leadership needed to make a lasting difference. We are therefore proud to present the Lango Regional Sickle Cell Stakeholders Summit 2026, a strategic pre-event activity bringing together key stakeholders to collectively shape the region’s response to sickle cell disease. 📌 Theme: “Strengthening Regional Leadership, Health Systems and Multi-Sectoral Collaboration for Improved Sickle Cell Prevention, Care and Management in Lango Sub-Region.” 📅 2nd October 2026 📍 Margaritah Palace Hotel, Lira City 🎟️ Attendance is by invitation This Summit will create an important platform for health leaders, policymakers, development partners, healthcare professionals, civil society, community leaders and other stakeholders to engage, share evidence, strengthen collaboration and identify practical actions for improving sickle cell prevention, care and management across Lango. And then, on 3rd October, we take the message from the boardroom to the streets! The 3rd Annual Uhuru Sickle Cell Run will unite thousands of people behind one powerful cause, raising awareness, promoting early testing and supporting better care for people and families affected by sickle cell disease. DAY 1: DIALOGUE. LEADERSHIP. ACTION. DAY 2: MOVEMENT. AWARENESS. SOLIDARITY. Lango is getting ready. Stakeholders are coming together. The Run is calling. @bayloruganda @TexasChildrens @MinofHealthUG @USEmbassyUganda @DrAyumeCharles @HemexHealth @NicosamHealth @jcrc_official1 @MulagoReferral @SueNsibirwa @qcil_uganda2 @mbnclinical_lab