I Am Super capes

We can't wait to share our family videos for Undiagnosed Children's Day! #UCDsuperhero teapawt.net/RedGoatFilms/status/98…

Want to find out more about the @GeneticAll_UK team? Genetic Alliance UK is the charity that runs SWAN UK. You can find out about us here: geneticalliance.org.uk/our-t…. We had to capture Jayne, Mariana, Nick and Lauren who came to work unwittingly dressed as a pack of fruit pastels!

We're doing a big shout out to Amanda Wathen @Ljaw75 who is running the @LondonMarathon for SWAN UK! Please help spur Amanda on and donate through @VMGiving: ow.ly/RRzD30iaw5M. Interested in doing something similar for SWAN UK? Email us: [email protected]

'The impact of getting a diagnosis through genome sequencing is huge. When there is a diagnosis it's often just a string of letters and numbers & it's hard to know where to go for support. SWAN UK still provides support for families whose children have received a rare diagnosis.'

'Without a #diagnosis you allow yourself to think, "perhaps it’s nothing, perhaps it will go, perhaps I’m just being over protective and neurotic".' ow.ly/YZdg30hV5VB #undiagnosed

Every week we send balloons to children who have been in hospital so that we can put a smile on children’s and families’ faces and let them know that they aren’t alone. To find out more about the support that SWAN UK offers, visit: undiagnosed.org.uk #undiagnosed

Here in Bristol we held a Christmas Party @HSJFoundation. LJ

Hi @RainbowTrustCC please can you RT to help us get the word out to families about our #undiagnosed genetic conditions information events coming up next year in Cardiff, Southampton & London? To find out more and register click here: ow.ly/iqzf30hcC9W #charitytuesday

After our successful #Newcastle event, we've got undiagnosed genetic conditions information events coming up next year in Cardiff, Southampton & London. Pls RT to get the word out to families @contactfamilies! To find out more and register click here: ow.ly/iqzf30hcC9W

We've got an #undiagnosed #genetic conditions information event coming up in London on 1 March. Would you like to come along? ow.ly/4xdd30h042l

Our lovely Parent Rep for East Sussex, Marie Pritchard has a stand at the @FamilyFund event today in #Brighton at @BrighthelmURC 10am-2:30pm. If you're in the area come and say hello! #undiagnosed

Our Big Ambition is that all families who have a child affected by a syndrome w/out a name get the support they need, when they need it. We want it recognised that being #undiagnosed is not always a temporary stage-the genetic cause of some conditions may never be known. *LR