IA is a #supportgroup run by and for people with an #ileostomy or an #internalpouch, with the primary aim of supporting people to live their life post surgery.
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How often do you get up during the night with an internal pouch?
For some, it's not an issue. For others, it's just part of life, and disrupted sleep can make the day harder.
Image: "Funny face in the night sky. Brisbane, 1st December 2008" by Tatters, licensed under CC BY 2.0.
Heatwaves are becoming more common in the UK, remember those record temperatures at the end of May?
If you have an ileostomy or internal pouch, hot weather can put you at much higher risk of dehydration, because your body can't absorb water the same way it usually does...
When to get help.
Contact your GP or call 111 if you feel dizzy, have no urine output for 6 or more hours, or can't keep fluids down.
For more information, please read IA's publications on staying hydrated and maintaining kidney health with an ileostomy or internal pouch, available on our website: iasupport.org
This information does not replace advice from your healthcare provider.
IA Professional is a dedicated website designed to support those working in primary care. If you think a colleague or healthcare professional in your network would benefit, you can also download and print our IA Professional leaflet to share with others.
iasupport.org/wp-content/upl…
Adjusting to life with an internal pouch takes time.
IA has resources, information and a community of people who genuinely understand what you are going through.
Comment below or DM us if you would like more information.
Chewing food thoroughly makes a real difference and can help your body process things more comfortably. If you are unsure or have concerns, your stoma care nurse is always a good first point of contact.
Fruit and vegetables are an important part of a balanced diet, and there is no reason why having a stoma should stop you enjoying them. The key is to take it gradually. Try new things a little at a time and see how your body responds. Chewing well makes a big difference too.
Did you know we have a leaflet with travel tips to help you prepare for your holiday? It includes practical advice and important things to think about to help you feel more confident when travelling.
iasupport.org/wp-content/upl…
Butt burn can be really uncomfortable and sometimes difficult to manage, especially if you are not sure what is causing it or what helps to ease the symptoms. If you have found something that works for you and are comfortable sharing it, please let us know in the comments.
Everyone’s experience of living with an ileostomy is different, and it is natural to have questions. You may be wondering about diet, recovery after surgery, returning to work, travelling, or how it may affect your relationships and day-to-day life.
iasupport.org/wp-content/upl…
It is wonderful to hear that attendees felt there was a good mix of topics throughout the day. We aim to make Information Day supportive and relevant for everyone, whatever stage of their ostomy or internal pouch journey.
It's absolutely fine to shower or bathe without your stoma bag on, although some people prefer to keep their bag on in the bath.
Avoid creams or lotions around your stoma before fitting a new bag, as this can affect adhesion.
Do you enjoy camping? In our latest article, adventurer, geologist and ostomate James Whitford shares his experience of off-grid camping with a stoma.
He covers hydration tips, packing essentials and practical advice from life on the road. iasupport.org/online_article…
One of the most common worries people have before and after surgery is whether others will be able to smell their stoma. The good news is that, provided your bag has a good seal around the stoma and against your skin, there should be no smell at all.
