💙 There's still time to join the IF Siblings Day celebration! 📢 Share our toolkit on social media and don’t forget to tag us @ifsbh on Twitter, Facebook, and Instagram. Use the hashtags: #IFSiblingsDay #SBHSiblings #SmileSiblings 👉 Toolkit: ifglobal.org/wp-content/uplo…

📣 Let’s celebrate IF Siblings Day together! 💙 📸 Don’t forget to send us your photo by April 1st to be featured! 👉 Download the toolkit ifglobal.org/wp-content/uplo… #IFSiblingsDay #SBHSiblings #SmileSiblings

Beza Haile, Founder & Executive Director of HOPE - Spina Bifida and Hydrocephalus, will speaking at the N4G side-event! 📅 March 24, 2025 | 🕝 2:30 PM CET 📍 Civil Society Pavilion, Paris & Online 🔗 Watch the livestream here 👉bit.ly/CSPavilionN4G

1 day left until IF’s International Women’s Day Webinar where we will discuss how to #AccelerateAction . Join us: bit.ly/IFWomensDay2025 #IWD2025 #AccelerateAction #SpinaBifida #Hydrocephalus #SBH #DisabilityRights #GenderEquality

2 days left until IF’s International Women’s Day Webinar where women disability activists from all over the globe will join forces on how to #AccelerateAction for the rights of women with disabilities facing multiple discrimination. Register and join us: bit.ly/IFWomensDay2025

ONE DAY TO GO! On 3 March 2025, the world will be united to celebrate the World Birth Defects Day (WBDD)! This year’s theme is #EveryJourneyMatters emphasising that birth defects affect individuals, family, friends, and communities. IF toolkit: bit.ly/4gQOrFK

TWO DAYS TO GO! Get ready to join us for the #WorldBDDay campaign on birth defects, preventive measures, and advancements in care and treatment. Read more on IF website: bit.ly/4blSJ79 Download the IF Social Media toolkit: bit.ly/4gQOrFK #WorldBDDay #SBH

Every life is unique, just like every rare disease story! On #RareDiseaseDay, we stand together with our global #SBH community: bit.ly/41yM7ib ✨What does rare mean to you? Share your story! ✨Co-signed the historic Kuala Lumpur Declaration: bit.ly/3APOAdx

Save the dates and join us: 28/02 #RareDiseaseDay #PLWRD #Resolution4care 03/03 #WorldBDDay - Download IF toolkit: bit.ly/4gQOrFK 07/03 IF #IWD2025 webinar- Register: bit.ly/41pox7x #AccelerateAction 08/03 #IWD2025 - Download IF toolkit: bit.ly/4gM0qUZ

On @Rotary 's 120th anniversary, we are excited to launch our publication #ServiceClubs in Action for #SpinaBifida 👉 bit.ly/4kd9c1h #SBH #SiBIAM #fundacionporamor #DASH3300

📢 IF supports Rare Diseases International with the proposed WHA Resolution on #RareDiseases to be adopted during #WHA78 in May: bit.ly/4jUPlUy The resolution underscores IF's priorities as per the recent Kuala Lumpur Declaration: bit.ly/3APOAdx

Be our Valentine - show us some ❤️ Donate monthly or just once 👉 bit.ly/3Qj5PYQ Your support can make a meaningful difference in the lives of people with Spina Bifida and Hydrocephalus and their families worldwide! 🫶 #SpinaBifida #Hydrocephalus #SBH #DisabilityRights

📣 Just launched: New guidelines to optimise urological care 🩺💧 providing tools to: ➡️ Prevent renal damage ➡️ Improve bladder function ➡️ Improve the quality of life of children with #SBH and their families Read more👉 bit.ly/UrologyGuide #SpinaBifida #UrologyCare

IF welcomes the thematic pre-GDS summit webinar today organised by @IDA_CRPD_Forum @unprpd @iddcconsortium to promote #HealthEquity for #PWD. Check IF's work on #HealthEquity in the historical Kuala Lumpur Declaration and co-sign: bit.ly/3APOAdx @GDS_Disability #GDS2025

Join us next week for the EU-Ukraine webinar on spinal dysraphisms: Epidemiology of Spina Bifida in Ukraine and the prevention of #NTDs! 👥 Prof. Wladimir Wertelecki & Dr. Sylvia Roozen 📅 Thursday 6 February, 18:00 CET / 19:00 EE 📍 Online (Zoom) 🔗 bit.ly/ERNeUROGEN06Feb25

On #EducationDay, IF calls for a rights-based approach to inclusive education for students with disabilities, such as #SpinaBifida & #Hydrocephalus #SBH #JournéeDeLÉducation #inclusion

⏳1 hour to go until the #WFAAW25 webinar. 💬 Join the discussion and get or share expert advice on #FoodFortification policies for a healthier, stronger, and smarter future for all 👉 bit.ly/WFAAW25 #FolicAcid #SpinaBifida #Hydrocephalus #SBH

Looking forward to welcoming you to tomorrow's #WFAAW25 webinar 'Prevention of Neural Tube Defects: Leaving No One Behind'! Whoever hasn't registered yet can still do it here 👉 bit.ly/WFAAW25 Not to be missed! ✨ #FolicAcid #FoodFortification #SBH #LeaveNoOneBehind

#WFAAW25 Mandatory #FoodFortification with #FolicAcid is a cost-effective measure to reduce this risk of #NTDs 👉 bit.ly/WFAAW25toolkit