On a mission to simplify medical information for families. Learn more ➡️ https://xitter.cf/t.co/zsWfqZ5DZ5

Indiana, USA
Joined June 2009
It was a nurse that led @rachelsuzhunt to a group of young cancer patients to make her journey less alone. Keep using your voice, Rachel! A few mentors for you: @TheLizArmy and Adam Hayden’s TikTok and blog glioblastology.com/ to see how “normal scary” your journey is.
I try not to get too personal on this app for fear of being perceived™️, but I wanted to share a piece I wrote for The @washingtonpost Cancer took my life by storm, and only now is it calming. I’m grateful I can shine some light on this growing issue washingtonpost.com/wellness/…
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2/ the waitlist of Hoosiers needing critical services 3/ reimbursement for services provided to children with complex health conditions. I will tirelessly advocate for adequate healthcare coverage for the 2 million Hoosiers who rely on Medicaid to receive life saving services.
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primaryrecord.com/the-import… Hot off the presses! Jean Ross, MHA, BSN, RN, critical care nurse, former VP of the Indiana Nurses Foundation, Dementia Friends Champion, and long-time CARE supporter, shares lessons learned volunteering with CARE in her latest article.
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I think #love is not just doing stuff you like for someone, it's doing something you hate, time after time because they need it and you love them. #als #mnd
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Jean Ross, RN retweeted
UCSF Health is in the early stages of testing various AI tools to tackle workforce burnout and staff shortages - with mixed feedback from nursing staff. Use cases they are testing: 🔮 Predictive analytics to flag patients deteriorating in-hospital The challenge with predictive analytics is always the “so what?” Unless there is a clear protocol on how to respond to the outputs of a predictive analytics engine, it’s just an academic exercise. We have clear protocols for when a patient suddenly develops a fever. But what do we do if predictive analytics “warn” me that a patient has a 20% risk of mortality in the next 30 days but no other symptoms? Until someone creates a protocol for these situations, it’s an insight with no action. 👩‍⚕️ AI matching engine to pair nurses with patients based on the nurse’s background, education and experience I guess perhaps language is the obvious matching parameter. Maybe clinical areas of interest…? But do we create a risk of frontline staff developing too narrow an experience of patient care if they end up treating a homogenous set of patients? Is increased specialization of this type net beneficial for patient care? I guess someone’s going to test it… 🏥 Predictive analytics for patient flow - recommending which patients should flow to which beds in the hospital OK this I like and is probably universally accepted (and I’m pretty sure already exists as 3rd party solutions) 📚 Custom GPTs for staff to query training materials E.g. asking the GPT “how to change a dressing” instead of needing to be taught live. This I like and we will likely see an internal FAQ chatbot for every organization - even outside of healthcare. While beneficial, this can’t be the killer use case… I mean, how much time does this actually save? Meanwhile a local nursing union has raised concerns that AI will reduce the clinical workforce, de-personalize patient care, and increase risks of error (e.g. AI bias). I think most of those concerns are largely addressable, especially with time and experience. And actually, the workforce shortage is so bad, I doubt AI will reduce the clinical workforce anytime soon. One could also ask: if AI could reduce the required clinical workforce while improving access/quality of car, why is that bad? That said I think this is a good example for getting the right initial use case - one that is high ROI and shows the potential of AI while being seen as universally beneficial by most parties - is so important for educating the healthcare system on the potential good for AI. Help everyone experience the potential good for AI and then people will be more open-minded to new use cases. What do you think? What use cases would get the most nursing buy-in while driving a high ROI?
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Always check on each other even if it seems out of place for you to do.
Shout out to the local liquor store clerk who hadn’t seen the patient in a few days so called in a welfare check…..pt found down, massive CVA
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Excellent piece. I cringe when I see new tech laser focused on wellness & health as if it’s all in our control. Sometimes it’s just bad luck and our words matter to ensure we do not isolate others: How to navigate a chronic illness vox.com/even-better/2023/12/… via @voxdotcom
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Most importantly…patients and family caregiver win!
Replying to @mickytripathi1
@mickytripathi1 on the concern of competition between HIE and #QHINs, "every time we connect up networks, both sides win" #onc2023 #HealthITROCKstar @ONC_HealthIT @DirectTrustorg
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From functional to useable…next up desireable! Sound familiar @mcintosh33?!
We’re finally moving from building infrastructure to the infrastructure being able to support making a tremendous difference - National Coordinator @mickytripathi1 @ONC_HealthIT #onc2023
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Thank you, @Indiana_EDC, for this opportunity!
We’re going to #CES2024, the most powerful tech event in the world, and we’d love to see you there! Stop by booth #61261 to chat with Jim and Jean, Co-founders of Primary Record at Eureka Park. We are right next to the startup stage with the Indiana Economic Development Corp!
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Hey X... it's me again! I am looking to talk to #GenZ, #Millennial #Caregivers who live in multigenerational households and therefore feel less isolated/#lonely. Bonus points if you live in a #multifamily/#planned #community (nursing homes, assisted living facilities, etc.)
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🚨🚨🚨GOOD NEWS ALERT: Investment in women's health is ON. Venture activity in the category has sky rocketed: women’s health investment grew 314% since 2018 vs. a 28% increase in overall healthcare investments. 2023 is on pace to become a top 3 funding year for the space 💪
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Jean Ross, RN retweeted
Spend an hour in my daughter’s kindergarten class today where I watched the teachers tie shoes, clean up throw up, use Google translate to help students in multiple languages, settle disputes, and wipe tears. All with smiles on their faces. Pay. Teachers. More. – at Pittsburgh, PA
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Jean Ross, RN retweeted
It was fun and fast paced and my thanks to the incredible team at CDC who willingly ripped up the rule book in the process of making this incredible resource more accessible to a wider audience. Much more to come!
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Check out the November @daughterhood Newsletter to register for Thursday’s @zoom fun!
Join @jeanrunrun Thursday, November 16th at 12pm EST as @Daughterhood collaborates with @primaryrecord to help Daughters decipher the medical story around their parent. Goal: Help Daughters be recognized as an integral part of the care team. RSVP ⤵️ mailchi.mp/daughterhood/daug…
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If a loved one is admitted to hospital and they have dementia, check to see if the hospital has a dementia support service. We never knew. At Walsall Manor Hospital my cousin told me. The support group were fantastic. #Dementia support - supporting you and your loved one. ❤️
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Poor dad back in hospital again, different hospital, different people, different understanding of dementia. So confusing for him.
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I thanked Mayor Fadness and Police Chief Gebhart privately and publicly. Does this sound like the actions of someone who wants to defund the police? Please don’t believe the false mailer the GOP put out against me today saying I’m anti-police. Vote #StevensonForFishers
I attended tonight’s Fishers City Council Meeting. 8 new police officers were sworn in. I really like the diversity in this group which reflects our community. I shared my appreciation of this with Mayor Fadness and Police Chief Gebhart. Thanks for keeping our city safe!
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I am so disappointed w/these false attacks. Who paid for these ads? Win on your own merits-not on false statements. I hope @toddpzimmerman @CeciliaCoble Tiffanie Ditlevson @ScottFadness & @FishersChief publicly denounce this. Fishers citizens deserve honest campaigns-not this!
The GOP is flat out lying about me in another negative mailer. I’ve never supported defunding the police. Without grandstanding, I’ve privately worked with the Mayor & Fishers Police Chief on police matters to help make our community better for everyone. Vote #StevensonForFishers
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What a care team looks like. Never let someone make you feel you should give up. In the darkest of diagnosis, there is joy, beauty, & laughter because of the people you surround yourself with…your care team. 🫂 to the Barkan family.
Replying to @AdyBarkan @beahero
Ady fought for the 24/7 care he needed to be home with us until the end of his life. It’s impossible to thank his incredible caregivers enough for their labor and care, which allowed us to live as a family through Ady’s health challenges. Everyone should have that chance. [3/4]
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