Award Winning Cystic Fibrosis Campaigner. 2017 Longford Person Of The Year, Kidney Transplant Recipient 💚Spearheaded Ireland’s #Orkambi Campaign #mymiracle
Longford, Ireland
Joined March 2009
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- Following2.8K
- Followers4K
- Likes7.4K
Jillian McNulty retweeted
Coming up @RTERadio1 @SarahAMcInerney
🏘️Following arson attack in Ringsend, how to deal with the Far Right
🍲Complaints to Hiqa about hospital food; why is it so bad?
🇵🇸Israel to partially withdraw from Gaza; we hear from the IDF
📱Should we all give up doom scrolling in 2024?
Jillian McNulty retweeted
Following reports she had been freed, the Bring Them Home group in Tel Aviv confirms that Emily Hand has now crossed into Israel. Department of Foreign Affairs in Dublin say they are unable to confirm. She was freed with other people from the Kibbutz Be'eri @rtenews
Jillian McNulty retweeted
Jillian hosts Longford's CF Valentine's Ball as it lights up the night sky @jilli09 @LoughRynnCastle longfordleader.ie/news/longf…
Jillian McNulty retweeted
@littlemisssalt1 @jilli09 @rrcffighters @ChildrensUnit @KaftrioY @kifder @g_urte @Rida_ZA @LatinoswithCF
Vihaan is 5 years old and has cystic fibrosis. If he lived in the U.S., he would soon be eligible for a powerful new drug that has been transforming lives.
But he lives in India, and the drug's maker is not making it available in poorer countries. nyti.ms/3lhqNLB
ALT Vihaan, 5, holds an oxygen mask to his face and holds the hand of his mother, Shwetha Sree, who is just outside of the image. He is sitting on a patterned couch and looking at his mother. Photo by Atul Locke for The New York Times.
Jillian McNulty retweeted
Promoting the greatest gift of all this Christmas, the gift of life - a message from our Liver Transplant Coordinators
Christmas is a time for giving, for receiving & for families to be together
Making the decision to donate your organs is the most important gift you can give
Jillian McNulty retweeted
Breaking: Vertex and HSE agree to HTA process for Kaftrio for cohort of 35 children excluded from 2017 deal. There is hope that this could break the deadlock around this issue.. @TodaywithClaire
Jillian McNulty retweeted
Great to see @jilli09 back on her feet, she said without Kaftrio she would be dead, and she's here supporting the 35 children who have been left out @cf_ireland
Jillian McNulty retweeted
⭐️Ray is live until 4:30 on @RTERadio1 ⭐️
Coming up:
👇 We're checking in with @jilli09
🏡We're chatting Bonos Childhood home
🥖@kettyquigley talks food in the capital
🙃We might explore procrastination with @CiaraConlon
and
👂Two listeners will go head-to-head in our quiz!
I’ll be on @RadioRayRTE this afternoon from 3 back where it all began! #kidneytransplant #recovery #becomeadonor #cysticfibrosis @IrishKidneyAs @cf_ireland Apply Organ Donor Card online ika.ie, free text the word 'Donor' to 50050 or Lo-call 1890 543 639
Jillian McNulty retweeted
If you live with a medical condition, those caring for you in an emergency must know about your condition.
@MedicAlertUK medical IDs hold your vital information so that those caring for you in an emergency instantly know how to care for you.
medicalert.org.uk/who-needs-…
Jillian McNulty retweeted
Teaghlach a bhfuil fiobróis chisteach ar a mbeirt iníon ag impí ar an Roinn Sláinte an druga Kaftrio a cheadú dá leanaí.
Jillian McNulty retweeted
Are you looking for an Irish charity to partner with to achieve your CSR goals and help improve the lives of others?
To find out more about what we do and how we can work together follow the link below, email us at [email protected].
cfireland.ie/get-involved/co…
Jillian McNulty retweeted
Poignant interview with #CFIreland member @jilli09 in the @SundayTimes
about the lifting of restrictions today.
thetimes.co.uk/article/unmas…
Jillian McNulty retweeted
Now Hiring- Post Doc level 2 (off scale payment) for 33 months working on Irish Comparative Study of Cystic Fibrosis (ICOS) Part 2. See job description on UCD JOBS @ucddublin #jobs @tcddublin @DCU @UCC @UCCPublicHealth #jobfairy
Jillian McNulty retweeted
⚡️It’s Tuesday and Ray is back in the hot seat!!⚡️ we’re live on @RTERadio1 and today we have:
🌊 Gerard O’Donnell from the @RNLI on the recent rescue at Fenit
😊 Sean Keys chats Borderline Personality Disorder
🎈@jilli09 tells us about her raffle and meeting Bill Murray!
Jillian McNulty retweeted
Jillian McNulty @jilli09 was delighted to have Bill Murray 💕 golfing 🏌️♂️ @EnniscroneGolf, Sligo 🍀 promoting her Signed Mayo Jersey for Cystic Fibrosis raffle 🤩🙌
@CysticFibrosisIreland
#billmurrayireland #billmurrayirishcoffee #billmurraygolf #billmurraysligo
Jillian McNulty retweeted
More reaction on what the latest decision on #AstraZeneca means for those who have already got the 1st dose of the #CovidVaccine
And what does it mean for those under 60 who have had their appointment cancelled?
@jilli09 @walls2
Coming up on @VirginMediaNews from @HSELive
Jillian McNulty retweeted
Check out the @drivetimerte panel discussion involving IPPOSI CEO @DerickOMisteal, CF campaigner @jilli09, and Tim Lynch of @dni_neurology on the current challenges regarding #Covid_19 vaccine rollout to cohort four #prioritisepatients rte.ie/radio/utils/share/rad…
Jillian McNulty retweeted
Tonight at Ten #TonightVMTV 📺 💻
🔴 ‘Vaccine bonus’ latest 💉
🔴 New NPHET optimism 🏥
🔴 Women and the pandemic #IWD
🔴 A right royal mess #OprahMeghanHarry
@sinead_ryan @SweetLikeAli @GColleranMD @jilli09 @CarrollJennifer @Noeline_B @bridsmithTD @ZaraKing
Jillian McNulty retweeted
Celebrating Longford's Inspiring Women #IWD2021 - Jillian McNulty: People are now living like people with Cystic Fibrosis dlvr.it/Rv0zQz