jnaus retweeted
The Pulmonary Fibrosis Trust would like to hear from PF sufferers, on how long they waited for diagnosis and referrals.
We would be grateful if you would complete the 3 questions by clicking the link below.
buff.ly/40S6Qw2
jnaus retweeted
Toxic nurse leadership: do you have a bullying or critical boss?
Micromanaging, unsupportive leaders can create toxic teams, negatively impacting morale and patient care.
Find out what to do if your team is affected.
rcni.com/nursing-standard/ne…
jnaus retweeted
Adults 50 years of age or older needed now
Join the Fluent Trial to help see if an investigational vaccine may be able to prevent seasonal flu for people aged 50+.
Want to take part? Contact our Agile Research team today @ Tel: +44 (0) 1752 439123 E-mail: [email protected]
jnaus retweeted
Read more about the background to this study here
👇
nihr.ac.uk/news/uks-first-no…
jnaus retweeted
📣 We've found that people living with #pulmonaryfibrosis experience a concerning level of disconnection and isolation. More support is needed.
Together can make a difference. Help us to raise awareness by liking and sharing this post💜
Read our survey: actionpf.org/news/people-wit…
jnaus retweeted
👋Meet Anitha.
Anitha is a medical student at @imperialcollege and as part of her degree she's investigating the impact of air-flight experiences for people with #pulmonaryfibrosis.✈️
She's also interviewing doctors who specialise in #PF.
actionpf.org/news/meet-the-s…
#research
jnaus retweeted
📣 Today, we shared key points from our ‘I wish it was cancer’ report at @wfpevents 'Next Steps for Respiratory Health Services in England', highlighting the devastating impact of slow diagnosis and lack of continuity of care.
💜 Read our report here:
actionpf.org/news/people-wit…
jnaus retweeted
Great news for RSV prevention in England!
The JCVI published their statement today recommending that an RSV immunisation programme, that is cost effective, should be developed for both infants and older adults.
gov.uk/government/publicatio…
jnaus retweeted
📣 Join us for... Talking PF! 💬🫁
💻 This free online event, on 30 November 2023 from 10:00 to 15:30, is open to anyone affected by pulmonary fibrosis.
With a packed agenda covering a range of PF-related topics, view the programme and register today!
➡️actionpf.org/news/registrati…
ALT Graphic shows the 'Talking PF' logo on a laptop screen, with text beneath it reading: "Registration now open!"
jnaus retweeted
📣 Do you have pulmonary fibrosis (PF), or have you cared for someone with PF in the last 12 months? If so, we want to hear from you.
🗣 We need your voice to help us change things for the better.
⬇️ Please complete our survey and share it with others:
actionpf.org/news/survey2023
jnaus retweeted
NEW: we need to talk about NHS staff retention.
At a time when Britain’s healthcare system is acutely short of workers, *1 in 7* UK-trained doctors are practising overseas. No other developed country is like this, which immediately tells you there’s a problem.
Let’s dig deeper:
jnaus retweeted
An incredible 13,208 of you backed our petition asking the government to prioritise funding for PF and interstitial lung disease services. 👏
Thanks for your support 💜
We will continue to drive forward our campaigning work to create a better future for people affected by PF.
ALT Graphic says: Thank you for 13,208 signatures."
jnaus retweeted
It is now #RareDiseaseDay across the globe 🌍
📌 Organise and post your event: cutt.ly/98d6NtE
✨ Join the Global Chain of Lights & #LightUpForRare: cutt.ly/zPlxnHb
📖 Share your story: cutt.ly/s8d612W
🔥 Share our resources: cutt.ly/M8d69nH
jnaus retweeted
One of the notable things in the HSIB watchdog interim report was that they started with an approach designed to "reflect and improve upon the best ... focusing on what is working rather than what is not working."
This approach didn't survive contact with reality.
jnaus retweeted
Any UK tweeps: please keep an eye out for my friend’s brother who has gone missing. They are really worried about him. Last seen in Crowborough. Thank you ❤️
jnaus retweeted
The government has responded to our petition about prioritising funding for pulmonary fibrosis (PF) and interstitial lung disease.
We have issued a statement, detailing our position, which you can read here: actionpf.org/news/apf-govern…
ALT Image says: "Update on our petition, following the response from government. Read our statement."
jnaus retweeted
If you have been affected by the #Medibank data breach please register to participate in the group action at medibankclassaction.com.au
jnaus retweeted
Affected by pulmonary fibrosis? We want to hear from you! 🙋♂️
We’re recruiting a group of volunteers to share their thoughts and feedback on the information and resources we provide for our PF community. 💜
✉️ Email [email protected] to learn more about this opportunity.
ALT A graphic with text: "Help shape information and resources for the PF Community"
jnaus retweeted
📣 Is your life affected by pulmonary fibrosis (lung scarring)?
🗓️ 1st November 7pm UK time. FREE Online Event 💻
REGISTER now to find out how we are planning to find effective treatments faster. Everyone is welcome 🤗
actionpf.org/news/www-action…
#curepf #remap_ild